People with Prader-Willi Syndrome in Tennessee may qualify for federal disability benefits like SSI and SSDI, plus state programs such as Medicaid waivers and Family Support. Eligibility depends on medical severity, income, and work history. This guide explains how to apply and what support is available.
To qualify for federal disability benefits in Tennessee, you must have a medical condition that stops you from working for at least 12 months. For Social Security Disability Insurance (SSDI), you need enough work credits from jobs where you paid Social Security taxes. Most adults need 40 credits, with 20 earned in the last 10 years before becoming disabled[1][8]. For Supplemental Security Income (SSI), you must have low income and few resources, regardless of work history[2][4]. Both programs require that your condition meets Social Security’s definition of disability, which includes being unable to do substantial work—earning more than $1,620 per month in 2025 for non-blind individuals[5][6].
In Tennessee, people with Prader-Willi Syndrome may also qualify for state programs. The Family Support Program helps families with children or adults who have severe disabilities, including Prader-Willi Syndrome, by funding services like respite care, home modifications, and personal assistance[3][4]. The Katie Beckett program is for children under 18 with complex medical needs who do not qualify for TennCare due to family income. This program covers medical care not paid by private insurance[4]. Eligibility for these programs depends on the severity of the disability and family resources. Tennessee also offers Medicaid Home and Community-Based Services (HCBS) waivers for people with intellectual and developmental disabilities, which can include Prader-Willi Syndrome[4].
Federal programs for people with Prader-Willi Syndrome in Tennessee include:
Tennessee offers several programs for people with Prader-Willi Syndrome:
Tennessee residents with Prader-Willi Syndrome can open an ABLE account to save money for disability-related expenses without losing SSI or Medicaid benefits. These accounts let families save up to $18,000 per year, and earnings grow tax-free. Withdrawals for qualified expenses are not taxed[4].
For SSI in 2025, the federal income limit is $967 per month for an individual. Tennessee does not add a state supplement to SSI. For SSDI, there is no income limit, but you cannot earn more than $1,620 per month from work and still qualify[2][5].
If your income or resources change, you must report it to Social Security to avoid overpayments. This includes changes in work, living situation, or other benefits. Overpayments can lead to repayment demands, so report changes as soon as possible[4].
Contact your local Social Security office or a Tennessee disability advocate for help with your application. Many nonprofits offer free assistance.
Prader-Willi Syndrome does not automatically qualify, but it often meets Social Security’s definition of disability if it severely limits work or daily activities. You must provide medical evidence showing how the condition affects your life[6][8].
You can apply online at ssa.gov, by phone, or in person at a Social Security office. You will need medical records, proof of income, and work history. The state agency may ask for more medical tests[6][8].
Tennessee offers the Family Support Program for respite care and home modifications, and the Katie Beckett program for children with complex medical needs. Medicaid HCBS waivers also provide long-term support services[3][4].
Yes, adults with Prader-Willi Syndrome may qualify for Medicaid through SSI or a Medicaid HCBS waiver if they meet income and disability criteria. These programs help pay for medical care and support services[4][7].
The maximum SSI payment in 2025 is $967 per month. SSDI payments depend on your work history, with a maximum of $4,018 per month. Most people get less than the maximum[2][5].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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The Family Support Program helps families with a member who has a severe disability, including Prader-Willi Syndrome. It provides up to $6,000 per year for services like respite care, home modifications, and personal assistance[3][4].
Yes, children with Prader-Willi Syndrome may qualify for SSI, Medicaid, and the Katie Beckett program. These programs help with medical care and support services for children with complex needs[4][6].
The Katie Beckett program is for children under 18 with complex medical needs who do not qualify for TennCare due to family income. It covers medical care not paid by private insurance[4].
You can apply for Medicaid HCBS waivers through TennCare. These waivers fund home and community-based services for people with intellectual and developmental disabilities, including Prader-Willi Syndrome[4].
Yes, Social Security offers work incentives that let you try working without immediately losing benefits. If you earn less than $1,620 per month, you may still qualify for SSI or SSDI[5].
