Fragile X Syndrome Benefits in Missouri: 2025 Guide

To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with Fragile X Syndrome, you must meet the Social Security Administration’s (SSA) definition of disability. This means your condition must be severe enough to prevent you from doing substantial work and is expected to last at least 12 months or result in death. For children, the condition must cause marked and severe functional limitations. Adults need a qualifying work history for SSDI, while SSI is based on financial need. The SSA reviews medical records, school reports, and other evidence to decide eligibility.

• SSDI: Requires 40 work credits (20 in the last 10 years) for most adults.
• SSI: No work history needed; based on income and assets.
• Children: Must be under 18 and have a qualifying disability.
• Disabled Adult Child (DAC): Adults with disability before age 22 may qualify on a parent’s record.

SSA Disability Qualifications (accessed 2025-11-06)

In Missouri, people with Fragile X Syndrome may also qualify for state-specific programs. Medicaid waivers, such as the Home and Community-Based Services (HCBS) waiver, provide support for people with developmental disabilities. These waivers can cover services like personal care, respite care, and therapy. Eligibility for waivers depends on income, assets, and functional needs. Missouri also offers the MO ABLE program, which lets families save money for disability-related expenses without losing SSI or Medicaid benefits. Income limits for Medicaid and other programs change each year, so check current thresholds.

• MO ABLE: For people with disabilities onset before age 26.
• Medicaid Waivers: For those with developmental disabilities, including Fragile X Syndrome.
• Income Limits: Vary by program and household size; see official state tables.

MO ABLE Program (accessed 2025-11-06) MO HealthNet Income Limits (accessed 2025-11-06)

• Gather medical records, school reports, and proof of income.
• Decide if you need SSDI, SSI, or both.
• Apply online at SSA.gov or at your local Social Security office.
• For Medicaid waivers, contact the Missouri Department of Health and Senior Services.
• For MO ABLE, apply through the MO ABLE website.
• Report any changes in income or health to avoid overpayments.

• Step 1: Collect all medical records, school reports, and documentation of Fragile X Syndrome diagnosis.
• Step 2: Determine if you need SSDI (work history) or SSI (financial need). You may qualify for both.
• Step 3: Apply online at SSA.gov or visit your local Social Security office. You can also call 1-800-772-1213.
• Step 4: For Medicaid waivers, contact the Missouri Department of Health and Senior Services or your local Family Support Division office. Ask about the HCBS waiver for developmental disabilities.
• Step 5: For MO ABLE, apply online at the MO ABLE website. You’ll need proof of disability and identification.
• Step 6: Keep records of all applications and correspondence. Report any changes in income, health, or living situation to Social Security and Medicaid.
• Step 7: If denied, you can appeal. Seek help from a disability advocate or attorney if needed.

SSA Apply for Benefits (accessed 2025-11-06) MO HealthNet Application (accessed 2025-11-06) MO ABLE Application (accessed 2025-11-06)

• Social Security Disability Insurance (SSDI): Monthly payments for adults with a qualifying work history.
• Supplemental Security Income (SSI): Monthly payments for people with limited income and resources.
• Medicare: Health insurance for SSDI recipients after 24 months.
• Medicaid: Health coverage for SSI recipients and others with low income.
• Ticket to Work: Employment support for people with disabilities.

SSA Disability Programs (accessed 2025-11-06)

• Medicaid Waivers (HCBS): Home and community-based services for people with developmental disabilities, including Fragile X Syndrome. Services may include personal care, respite care, therapy, and more.
• MO ABLE Program: Tax-advantaged savings accounts for people with disabilities onset before age 26.
• MO HealthNet: Medicaid for low-income individuals and families.
• Vocational Rehabilitation: Employment and training services for people with disabilities.
• Family Support Division: Assistance with benefits, child care, and more.

MO Medicaid Waivers (accessed 2025-11-06) MO ABLE Program (accessed 2025-11-06) MO Vocational Rehabilitation (accessed 2025-11-06)

The MO ABLE program lets people with disabilities save money without losing SSI or Medicaid benefits. You can use ABLE funds for disability-related expenses like education, housing, transportation, and health care. To qualify, you must have a disability onset before age 26. Missouri residents can open an ABLE account online. Contributions are limited each year, and there are tax benefits.

MO ABLE Program (accessed 2025-11-06)

Income limits for SSI, Medicaid, and other programs change each year. For 2025, the SGA limit for SSDI is $1,620 per month ($2,700 for blind). Medicaid income limits depend on household size and program. See the official state tables for current thresholds.

MO HealthNet Income Limits (accessed 2025-11-06) SSA SGA Limits (accessed 2025-11-06)

If your income or health changes, you must report it to Social Security and Medicaid. Failing to report can lead to overpayments and penalties. Report changes online, by phone, or in person. If you get an overpayment notice, you can request a waiver or set up a repayment plan.

SSA Reporting Changes (accessed 2025-11-06) MO DSS Reporting Changes (accessed 2025-11-06)

• Social Security Administration
  Phone: 1-800-772-1213

  TTY: 1-800-325-0778

  Website

  For SSDI, SSI, and general disability questions.
• Missouri Family Support Division
  Phone: 1-855-373-4636

  Website

  For Medicaid, food stamps, and other state benefits.
• Missouri Vocational Rehabilitation
  Phone: 1-877-222-8963

  Website

  For employment and training services.

• Can Fragile X Syndrome qualify for SSDI or SSI in Missouri?

  Yes, Fragile X Syndrome can qualify for SSDI or SSI if it meets the SSA’s definition of disability. Children must have marked and severe functional limitations. Adults need a qualifying work history for SSDI or meet financial need for SSI.

• What is the 2025 SGA limit for SSDI in Missouri?

  The 2025 Substantial Gainful Activity (SGA) limit for SSDI is $1,620 per month for non-blind individuals and $2,700 for blind individuals. Earning above this limit may affect your benefits.

• How do I apply for Medicaid waivers in Missouri?

  Contact the Missouri Department of Health and Senior Services or your local Family Support Division office. Ask about the HCBS waiver for developmental disabilities. You’ll need to provide medical and financial information.

• What is the MO ABLE program?

  The MO ABLE program lets people with disabilities save money without losing SSI or Medicaid benefits. You can use ABLE funds for disability-related expenses. To qualify, you must have a disability onset before age 26.

• What are the income limits for Medicaid in Missouri?

  Income limits for Medicaid depend on household size and program. For 2025, see the official state tables. Limits change each year, so check current thresholds.

• Can I work while receiving SSDI or SSI in Missouri?

  Yes, you can work while receiving SSDI or SSI, but there are limits. The SGA limit is $1,620 per month for non-blind individuals. Work incentives help you earn income without losing benefits.