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Illinois • Neurodegenerative
People with Huntington’s Disease in Illinois can get federal and state benefits like SSI, SSDI, Medicaid, and Health Benefits for Workers with Disabilities (HBWD). These programs help cover medical costs, provide cash support, and protect assets. This guide explains eligibility, how to apply, and key resources.
To get federal disability benefits for Huntington’s Disease, you must meet Social Security’s definition of disability. Huntington’s Disease is a neurodegenerative disorder that usually meets this standard. For SSI, your income and assets must be low. For SSDI, you need enough work credits. Both programs require that your disability prevents you from working for at least 12 months. In 2025, the SSI limit for an individual is $967 per month, and the SSDI amount depends on your work history. The Substantial Gainful Activity (SGA) limit for 2025 is $1,620 per month for non-blind individuals and $2,700 for blind individuals. If you earn more than the SGA limit, you may not qualify for benefits unless you use a work incentive.
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In Illinois, people with Huntington’s Disease can get extra help through state programs. The Health Benefits for Workers with Disabilities (HBWD) program lets you keep Medicaid while working. You can earn up to $4,393 per month (single) or $5,962 per month (couple) and have up to $25,000 in assets. You may pay a monthly premium based on your income. Illinois also offers Medicaid waivers for home and community-based services, which can help with care at home. ABLE accounts let you save money without losing SSI or Medicaid. To qualify for state programs, you must meet federal disability rules and Illinois income and asset limits.
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ABLE accounts let people with disabilities save money without losing SSI or Medicaid. In Illinois, you can save up to $18,000 per year. The total account limit is $550,000. Funds can be used for housing, education, health, and more. Open an account at IL ABLE.
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For SSI in 2025, the max is $967/month for an individual and $1,450/month for a couple. For HBWD in Illinois, the limit is $4,393/month (single) or $5,962/month (couple). The SGA limit for SSDI is $1,620/month (non-blind) or $2,700/month (blind). These limits change yearly.
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Report any changes in income, assets, or living situation to avoid overpayments. If you get too much money, you may have to pay it back. Use the SSA online portal or call 1-800-772-1213 to report changes. For Illinois programs, call 1-800-843-6154.
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Call the Illinois DHS Help Line at 1-800-843-6154 or the Social Security Administration at 1-800-772-1213 for help with your application.
Yes, Huntington’s Disease is a neurodegenerative disorder that usually meets Social Security’s definition of disability. You must show that it prevents you from working for at least 12 months. Medical records are needed to prove your case.
In 2025, the max SSI payment is $967 per month for an individual and $1,450 for a couple. Your actual payment may be less if you have other income or live with others.
Yes, you can work and get SSI or SSDI if you use work incentives. The SGA limit for 2025 is $1,620/month (non-blind) or $2,700/month (blind). HBWD lets you earn up to $4,393/month and keep Medicaid.
HBWD is a program that lets workers with disabilities keep Medicaid while working. You can earn up to $4,393/month (single) or $5,962/month (couple) and have up to $25,000 in assets. You may pay a monthly premium.
You can apply for Medicaid online at the Illinois DHS website or by calling 1-800-843-6154. You must meet income and asset limits and have a qualifying disability.
Medicaid waivers help pay for home care, respite, and other services for people with disabilities. They let you get care at home instead of in a facility. Ask your DHS office for details.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, ABLE accounts let you save up to $18,000 per year without losing SSI or Medicaid. The total account limit is $550,000. Funds can be used for housing, education, health, and more.
Yes, report any changes in income, assets, or living situation to avoid overpayments. Use the SSA online portal or call 1-800-772-1213 for federal benefits. For Illinois programs, call 1-800-843-6154.
If you get too much money, you may have to pay it back. Report changes as soon as possible to avoid overpayments. Contact SSA or DHS for help.
You can get help from the Illinois DHS, Social Security, or a Work Incentives Planning and Assistance Program. Call 1-800-843-6154 for DHS, 1-800-772-1213 for SSA, or 1-217-588-6326 for work incentives.
