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Virginia • Rare/Genetic
People with Fragile X Syndrome in Virginia may qualify for federal disability benefits like SSI and SSDI, plus state Medicaid waivers and ABLE accounts. Eligibility depends on age, income, and functional limitations. This guide explains how to apply and what support is available.
To qualify for Social Security Disability Insurance (SSDI), you generally need 40 work credits, with 20 earned in the last 10 years before your disability began. For Supplemental Security Income (SSI), eligibility is based on limited income and resources, and your disability must be severe enough to last at least 12 months or result in death. Fragile X Syndrome may qualify if it causes significant functional limitations[5].
The Social Security Administration uses a five-step process to decide if you qualify:
If you meet these criteria, you may be approved for benefits[1].
In Virginia, SSI recipients receive only the federal benefit amount: $943 per month for individuals and $1,415 for couples in 2025. There is no additional state supplement[1].
Virginia Medicaid offers waivers for people with developmental disabilities, including Fragile X Syndrome. The three main waivers are Building Independence, Family & Individual Support, and Community Living. These waivers provide services like personal care, respite, and supported living. There is a waiting list, and slots are assigned based on urgency of need[2].
To qualify for Medicaid waivers, you must be determined eligible for a developmental disability by your local Community Services Board (CSB). Children and adults with Fragile X Syndrome may qualify if their condition meets the state's definition of developmental disability[2].
Virginia does not require work requirements for Medicaid for people receiving disability benefits. This means you can keep Medicaid coverage even if you are not working[4].
Step 1: Collect Documentation
Step 2: Apply for SSI/SSDI
Step 3: Apply for Medicaid Waivers
Step 4: Open an ABLE Account
Step 5: Report Changes
Medicaid Waivers for Developmental Disabilities: Virginia offers three waivers for people with developmental disabilities, including Fragile X Syndrome:
Medicaid for Persons who are Aged, Blind, or Disabled (ABD): Health coverage for people with disabilities who meet income and resource limits. This program may be available to people with Fragile X Syndrome who do not qualify for waivers[6].
ABLE Accounts: Virginia ABLE Now accounts allow people with disabilities to save money for disability-related expenses without losing SSI or Medicaid eligibility[3].
Virginia ABLE Now accounts let people with disabilities save up to $17,000 per year for disability-related expenses. Funds in an ABLE account do not count toward SSI or Medicaid resource limits. To open an account, visit the Virginia ABLE Now website[3].
In 2025, the SGA limit for SSDI is $1,550 per month for non-blind individuals. The federal SSI payment is $943/month for individuals and $1,415/month for couples. Virginia does not add a state supplement to SSI[1].
You must report changes in income, living situation, or medical status to Social Security and Medicaid. Failure to report changes can result in overpayments and penalties. Use the Social Security online portal or call your local office to report changes[1][4].
Contact your local Community Services Board (CSB) for help with Medicaid waiver applications. For SSI/SSDI, call Social Security at 1-800-772-1213.
Yes, if Fragile X Syndrome causes significant functional limitations that prevent you from working, you may qualify for SSI or SSDI. You must meet the Social Security Administration's medical and financial criteria[1][5].
Virginia offers three Medicaid waivers for developmental disabilities: Building Independence, Family & Individual Support, and Community Living. These provide services like personal care and supported living. Contact your local CSB to apply[2].
In 2025, the federal SSI payment is $943 per month for individuals and $1,415 for couples. Virginia does not add a state supplement to SSI[1].
No, if you receive disability benefits, you do not need to meet work requirements to keep Medicaid coverage in Virginia. Work requirements apply only to adults aged 19-64 without a disability[4].
Contact your local Community Services Board (CSB) to start the waiver application process. The CSB will assess your eligibility for developmental disability services and place you on a waiting list if needed[2].
Yes, you can work and still receive SSI or SSDI, but your earnings must be below the SGA limit ($1,550/month in 2025 for non-blind individuals). Work incentives may allow you to test your ability to work without losing benefits[1][3].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
An ABLE account lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid eligibility. Virginia ABLE Now accounts have a $17,000 annual contribution limit[3].
Yes, there is a waiting list for Medicaid waivers for developmental disabilities in Virginia. Slots are assigned based on urgency of need[2].
Report changes in income, living situation, or medical status to Social Security and Medicaid. Use the Social Security online portal or call your local office to avoid overpayments[1][4].
Yes, children with Fragile X Syndrome may qualify for Medicaid waivers if they meet the state's definition of developmental disability. Contact your local CSB for more information[2].
