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Utah • Rare/Genetic
People with Ehlers-Danlos Syndrome in Utah may qualify for federal and state disability benefits, including Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid, and work incentives. Eligibility depends on medical evidence, income, and work history. This guide explains how to apply and what support is available.
To qualify for federal disability benefits, you must have a medical condition that prevents you from working for at least 12 months. For Social Security Disability Insurance (SSDI), you need enough work credits (usually 40, with 20 in the last 10 years). For Supplemental Security Income (SSI), you must have limited income and resources. Ehlers-Danlos Syndrome may qualify if it severely limits your ability to work and is supported by medical evidence. The Social Security Administration (SSA) reviews your medical records and work history to decide eligibility.
2025 Updates:
In Utah, people with Ehlers-Danlos Syndrome may qualify for state-specific programs like Medicaid for the Aged, Blind, or Disabled. If you receive SSI or SSDI, you automatically meet the disability criteria for Utah Medicaid. If not, the State Medicaid Medical Review Board can determine disability based on medical evidence, without considering work status. Utah also offers Medicaid waivers for home and community-based services (HCBS), which can help with care at home.
2025 Updates:
Source: SSA.gov Source: Medicaid Utah Source: Utah ABLE Program
Source: Medicaid Utah Source: Utah ABLE Program Source: Utah Department of Workforce Services
Utah offers ABLE accounts, which allow people with disabilities to save money for disability-related expenses without losing benefits. In 2025, you can contribute up to $19,000 per year, or $34,650 if you work and your employer doesn’t contribute to your retirement account. Funds can be used for housing, education, transportation, and other qualified expenses.
Source: Disability Law Center Utah
Source: SSA.gov Source: Medicaid Utah
Report any changes in income, work, or health to SSA and Medicaid to avoid overpayments. Overpayments can happen if you earn too much, get other benefits, or don’t report changes. If you get an overpayment, you may have to repay it, but you can request a waiver if it wasn’t your fault.
Contact the Utah Division of Services for People with Disabilities (DSPD) or the Disability Law Center Utah for free help with applications and appeals.
Yes, Ehlers-Danlos Syndrome can qualify for SSDI or SSI if it severely limits your ability to work and is supported by medical evidence. You must meet federal and state eligibility requirements.
The SGA limit for 2025 is $1,620 per month for most people, or $2,700 for those who are blind. Earning above this limit may stop your disability benefits.
You can apply for Medicaid online, by phone, or in person. If you receive SSI or SSDI, you automatically meet the disability criteria. Otherwise, the State Medicaid Medical Review Board can review your medical evidence.
Medicaid waivers provide extra support for home care, therapies, and equipment. They help people with disabilities live independently in their communities.
Yes, you can work while receiving disability benefits, but your earnings must stay below the SGA limit. There are work incentives to help you keep benefits while working.
An ABLE account lets you save money for disability-related expenses without losing benefits. In Utah, you can contribute up to $19,000 per year, or $34,650 if you work and your employer doesn’t contribute to your retirement account.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Yes, proposed cuts to SNAP may reduce food assistance for people with disabilities. Utah has one of the lowest SNAP participation rates, so people with disabilities may be especially affected.
Report any changes in income, work, or health to SSA and Medicaid. Overpayments can happen if you don’t report changes, and you may have to repay them.
Children with Ehlers-Danlos Syndrome may qualify for SSI or SSDI if they meet eligibility requirements. They can also get Medicaid and other state programs.
Disability benefits are reviewed periodically to make sure you still qualify. The frequency depends on your condition and program.
