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Ohio • Neurodegenerative
People with Huntington’s Disease in Ohio can get federal disability benefits like SSI and SSDI, plus state services for care, work, and financial help. This guide explains eligibility, how to apply, and where to get support.
To get Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) for Huntington’s Disease, you must have a medical diagnosis that meets Social Security’s definition of disability. Huntington’s Disease is listed in the Social Security Blue Book under neurological disorders, so it often qualifies quickly. You must also meet work or income requirements. SSDI needs work credits; SSI is for people with low income and resources. Both programs require U.S. citizenship or legal residency. For children, SSI has different rules based on family income and the child’s condition.
In Ohio, the Division of Disability Determination (DDD) works with the Social Security Administration to decide if you are medically eligible for disability benefits. Ohio also offers Medicaid waivers for home and community-based services, which can help people with Huntington’s Disease live independently. County boards of developmental disabilities provide assessment and service planning. Ohio has programs to help people with disabilities work, like Work Incentives Planning and Assistance (WIPA). If you need help managing your benefits, Ohio has legal advocates who can review and protect your rights.
Get your medical records ready.
Fill out the Social Security application online, by phone, or in person.
Ask for help from local agencies or nonprofits if you need it.
Apply for Medicaid waivers and other Ohio programs at the same time.
Report any changes in your condition or income.
SSA: Apply for Benefits (2025-11-06)
Ohio Benefits Portal (2025-11-06)
Step 1: Gather medical records that show your Huntington’s Disease diagnosis and how it affects your daily life.
Step 2: Apply for SSDI or SSI online at SSA.gov, by phone at 1-800-772-1213, or at your local Social Security office.
Step 3: If you need help with the application, contact Opportunities for Ohioans with Disabilities (OOD) or a local nonprofit like SOAR Ohio.
Step 4: Apply for Ohio Medicaid waivers through your county board of developmental disabilities.
Step 5: If you want to work, ask about Work Incentives Planning and Assistance (WIPA) from Disability Rights Ohio.
Step 6: If you need help managing your benefits, ask about representative payee protections from Disability Rights Ohio.
Step 7: Keep all agencies updated about changes in your health, income, or living situation.
SSA: How to Apply for Disability (2025-11-06)
Ohio Benefits: Apply for Programs (2025-11-06)
Disability Rights Ohio: WIPA Program (2025-11-06)
SOAR Ohio: Application Help (2025-11-06)
Social Security Disability Insurance (SSDI): Monthly payments for people who worked and paid Social Security taxes.
Supplemental Security Income (SSI): Monthly payments for people with low income and resources.
Medicaid: Health coverage for people with disabilities and low income.
Medicare: Health coverage after getting SSDI for 24 months.
Work Incentives: Programs that help you keep benefits while working.
SSA: Disability Programs (2025-11-06)
SSA: Work Incentives (2025-11-06)
Ohio Medicaid Waivers: Home and community-based services for people with developmental disabilities, including Huntington’s Disease.
County Boards of Developmental Disabilities: Assessment, service planning, and coordination.
Work Incentives Planning and Assistance (WIPA): Help with work and benefits from Disability Rights Ohio.
Legal Advocacy: Protection and rights help from Disability Rights Ohio.
SOAR Ohio: Training and help with SSI/SSDI applications.
Ohio Medicaid Waivers (2025-11-06)
County Boards of Developmental Disabilities (2025-11-06)
Disability Rights Ohio: WIPA (2025-11-06)
SOAR Ohio (2025-11-06)
Disability Rights Ohio: Legal Advocacy (2025-11-06)
Ohio offers ABLE accounts, which let people with disabilities save money without losing SSI or Medicaid benefits. You can use the funds for housing, education, transportation, and other needs. To open an account, you must have a qualifying disability that started before age 26.
For SSI in 2025, the income limit is $943 per month for an individual and $1,415 for a couple. SSDI has no income limit, but you must have enough work credits. Medicaid income limits vary by program and household size.
If you get too much money from SSI or SSDI, you may have to pay it back. Report changes in your income, living situation, or health to Social Security right away. Ohio has programs to help you avoid overpayments and understand your reporting duties.
Contact Opportunities for Ohioans with Disabilities (OOD) or SOAR Ohio for free help with your SSI/SSDI application.
Disability Rights Ohio offers free legal help and protection for people with disabilities.
Yes, Huntington’s Disease is listed in Social Security’s disability guide, so it usually qualifies for SSDI or SSI. You must also meet work or income rules. Ohio state programs may also help.
You can apply online at SSA.gov, by phone, or at a local office. Get help from OOD or SOAR Ohio if you need it. Apply for Medicaid waivers through your county board.
Ohio Medicaid waivers let you get home and community-based services. County boards of developmental disabilities help with planning and coordination.
Yes, Ohio has Work Incentives Planning and Assistance (WIPA) to help you keep benefits while working. There are rules about how much you can earn.
Disability Rights Ohio can review how your representative payee manages your money. They can report abuse or misuse to Social Security.
Children can get SSI if their family meets income rules. Some conditions, like Huntington’s Disease, may qualify for faster approval.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
It can take 6–8 months for a decision. Some conditions get faster approval. Medicaid waiver wait times vary by county.
An ABLE account lets you save money without losing SSI or Medicaid. Ohio offers these accounts to people with disabilities that started before age 26.
Report changes in income, living situation, or health to Social Security right away. Ohio has programs to help you understand your reporting duties.
Disability Rights Ohio provides free legal advocacy and rights protection for people with disabilities, including those with Huntington’s Disease.
