Fragile X Syndrome Benefits in Ohio: 2025 Guide

• To get Social Security Disability Insurance (SSDI), you usually need 40 work credits, with 20 earned in the last 10 years before your disability started. SSDI is for people who worked and paid Social Security taxes.
• Supplemental Security Income (SSI) is for people with low income and limited resources, regardless of work history. For 2025, the federal SSI payment is $943/month for an individual and $1,415/month for a couple.
• Both programs require proof that your disability prevents you from working at a substantial level (Substantial Gainful Activity, or SGA). For 2025, SGA is $1,620/month for non-blind individuals and $2,700/month for blind individuals.
• Fragile X Syndrome is listed in the SSA Blue Book under neurological disorders (Section 11.17) and can qualify if it meets the criteria for intellectual disability or other listed impairments.
• Children with Fragile X Syndrome may qualify for SSI if their condition meets SSA’s childhood disability standards.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• Ohio does not provide any extra cash payments on top of federal SSI benefits. This means SSI recipients get only the federal amount.
• However, Ohio offers strong support through Medicaid, food assistance (SNAP), housing help, and disability-specific services.
• Medicaid in Ohio covers many health needs for people with Fragile X Syndrome, including therapy, medications, and long-term care.
• County agencies may offer extra help with utilities, housing, or other needs, but these vary by location.
• Ohio’s Department of Developmental Disabilities and Department of Mental Health and Addiction Services provide services for people with intellectual and developmental disabilities, including Fragile X Syndrome.
• Children with Fragile X Syndrome may qualify for Medicaid waivers (HCBS) for home and community-based services.

Source: DisabilityResources.org, 2025 [Accessed: 2025-11-06]

• Gather medical records and proof of income/resources.
• Visit SSA.gov or call 1-800-772-1213 to start your application.
• For children, apply for SSI through SSA.gov or your local Social Security office.
• For adults, apply for SSDI or SSI online, by phone, or in person.
• Ohio’s Division of Disability Determination (DDD) will review your medical evidence.
• You may need to provide extra documents or attend a medical exam.
• If denied, you can appeal within 60 days.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• Step 1: Collect all medical records, school reports, and proof of income and resources. For children, include school evaluations and therapy notes.
• Step 2: Go to SSA.gov and use the online application for SSI or SSDI. You can also call 1-800-772-1213 or visit your local Social Security office.
• Step 3: Complete the application, including details about your disability, work history, and living situation.
• Step 4: Ohio’s Division of Disability Determination (DDD) will review your medical evidence. They may ask for more records or schedule a consultative exam.
• Step 5: Wait for a decision. Most decisions take 3–6 months.
• Step 6: If approved, you’ll get a notice with your benefit amount and start date.
• Step 7: If denied, you can appeal within 60 days. Appeals include reconsideration, a hearing, and review by the Appeals Council.
• Step 8: For children, apply for SSI and Medicaid. For adults, apply for SSDI or SSI and Medicaid.
• Step 9: Report any changes in income, resources, or living situation to avoid overpayments.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• SSI (Supplemental Security Income): Monthly cash for people with low income and resources who are disabled, blind, or age 65+.
• SSDI (Social Security Disability Insurance): Monthly cash for people who worked and paid Social Security taxes.
• Medicare: Health insurance for SSDI recipients after 24 months of benefits.
• Medicaid: Health coverage for SSI recipients and others with low income.
• SNAP (Food Stamps): Food assistance for low-income individuals and families.
• ABLE Accounts: Tax-advantaged savings accounts for people with disabilities.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• Medicaid: Ohio Medicaid covers therapy, medications, and long-term care for people with Fragile X Syndrome. Children may qualify for Medicaid waivers (HCBS) for home and community-based services.
• SNAP (Food Stamps): Extra help with food costs for low-income families.
• LIHEAP: Help with heating and cooling bills for low-income households.
• Ohio Housing Finance Agency: Programs for affordable housing.
• County-based Assistance: Local agencies may offer help with utilities, housing, or other needs.
• Disability Services: Ohio Department of Developmental Disabilities and Department of Mental Health and Addiction Services provide therapy, support, and case management.
• Work Incentives: Ohio offers programs to help people with disabilities find and keep jobs.

Source: DisabilityResources.org, 2025 [Accessed: 2025-11-06]

• Ohio offers ABLE accounts, which let people with disabilities save money without losing SSI or Medicaid benefits.
• You can save up to $18,000 per year in an ABLE account (2025 limit).
• Funds can be used for housing, education, transportation, and other disability-related expenses.
• Learn more and apply at Ohio ABLE or SSA.gov.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• For SSI in 2025, the federal income limit is $943/month for an individual and $1,415/month for a couple.
• SSDI has no strict income limit, but you cannot earn more than SGA ($1,620/month for non-blind, $2,700/month for blind in 2025) and still get benefits.
• Ohio does not add extra cash to SSI, so state income limits are the same as federal.
• Medicaid income limits vary by program and family size.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• Report any changes in income, resources, or living situation to Social Security within 10 days to avoid overpayments.
• If you get an overpayment, Social Security will send a notice and you can request a waiver or set up a repayment plan.
• Ohio does not have a separate state overpayment process for SSI, since it does not provide state supplements.
• Always keep records of all reports and communications with Social Security.

Source: SSA.gov, 2025 [Accessed: 2025-11-06]

• Social Security Administration
  Phone: 1-800-772-1213

  TTY: 1-800-325-0778

  Hours: 7am–7pm, Mon–Fri

  Website

  Apply for SSI/SSDI, report changes, get help.
• Opportunities for Ohioans with Disabilities (OOD)
  Phone: 1-877-644-6641

  Hours: 8am–5pm, Mon–Fri

  Website

  Ohio’s disability determination and support services.
• Disability Rights Ohio
  Phone: 1-800-282-9181

  TTY: 1-800-624-2600

  Email: [email protected]

  Hours: 9am–5pm, Mon–Fri

  Website

  Free legal advocacy for people with disabilities.

• Can Fragile X Syndrome qualify for SSI or SSDI in Ohio?

  Yes, Fragile X Syndrome can qualify for SSI or SSDI if it meets SSA’s medical criteria for disability. Children may qualify for SSI, and adults may qualify for SSDI if they have a work history. Ohio does not add extra cash to SSI, but Medicaid and other services are available.

• Does Ohio give extra money on top of SSI for Fragile X Syndrome?

  No, Ohio does not provide any extra cash payments on top of federal SSI benefits. SSI recipients get only the federal amount, but can access Medicaid, food, housing, and disability services.

• How do I apply for disability benefits for Fragile X Syndrome in Ohio?

  Apply online at SSA.gov, by phone at 1-800-772-1213, or in person at a local Social Security office. You’ll need medical records and proof of income/resources. Ohio’s Division of Disability Determination will review your case.

• What Medicaid services are available for Fragile X Syndrome in Ohio?

  Ohio Medicaid covers therapy, medications, and long-term care for people with Fragile X Syndrome. Children may qualify for Medicaid waivers (HCBS) for home and community-based services. Adults may qualify for Medicaid if they meet income and disability criteria.

• Can I work and still get SSI or SSDI for Fragile X Syndrome in Ohio?

  Yes, there are work incentives for SSI and SSDI recipients. You can earn up to SGA ($1,620/month for non-blind, $2,700/month for blind in 2025) without losing benefits. Ohio also offers programs to help people with disabilities find and keep jobs.