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New York • Neurodegenerative
People with Huntington’s Disease in New York can access federal and state benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. These programs help cover medical costs, daily living expenses, and long-term care.
People with Huntington’s Disease may qualify for federal disability benefits if their condition prevents them from working. The Social Security Administration (SSA) considers Huntington’s Disease a “compassionate allowance” condition, which means claims are often processed quickly. To qualify for Supplemental Security Income (SSI), you must have limited income and resources. For Social Security Disability Insurance (SSDI), you must have a work history and have paid Social Security taxes. Both programs require medical proof of disability.
Children with Huntington’s Disease may also qualify for benefits if they meet SSA’s definition of disability. Adults with a disability that began before age 22 may be eligible for benefits based on a parent’s work record.
Learn more about SSI vs SSDI and SSI & SSDI work incentives.
New York State offers additional support for people with Huntington’s Disease through Medicaid waivers, which provide home and community-based services. These waivers help cover costs for personal care, respite care, and other supports that allow people to live at home instead of in institutions. To qualify, you must meet both Medicaid and waiver-specific requirements, including income and asset limits. New York also has programs for employment support and vocational rehabilitation.
Learn more about Medicaid waivers (HCBS) and how to avoid overpayments.
Learn more about how to apply for New York Huntington’s Disease benefits and Medicaid waivers.
Learn more about SSI vs SSDI and Medicaid vs Medicare.
Learn more about Medicaid waivers (HCBS) and New York ABLE accounts.
ABLE accounts allow people with disabilities to save money for disability-related expenses without losing benefits. New York residents can open ABLE accounts through the state’s ABLE program. Contributions to ABLE accounts are not taxed, and withdrawals for qualified expenses are tax-free. There are annual and lifetime contribution limits.
Learn more about ABLE accounts.
Income limits for SSI and Medicaid vary based on household size and other factors. For SSI, the federal benefit rate in 2025 is $943 per month for an individual and $1,415 for a couple. Medicaid income limits are higher and vary by program. ABLE account contributions are limited to $18,000 per year in 2025.
Learn more about SSI income limits.
It is important to report any changes in your income, resources, or living situation to the Social Security Administration and Medicaid to avoid overpayments. Overpayments can result in penalties or loss of benefits. If you receive an overpayment, contact the agency to discuss repayment options.
Contact your local Social Security office or the New York State Department of Health for help with applications and eligibility questions.
People with Huntington’s Disease in New York may qualify for SSI, SSDI, Medicare, and Medicaid. Huntington’s Disease is a compassionate allowance condition, so claims are often processed quickly.
You can apply for SSI or SSDI online at SSA.gov, by phone, or in person at your local Social Security office. Huntington’s Disease is a compassionate allowance condition, so your claim may be processed quickly.
Medicaid waivers in New York provide home and community-based services for people with disabilities, including personal care, respite care, and other supports. These waivers help people live at home instead of in institutions.
To apply for a Medicaid waiver in New York, contact your local Department of Social Services. You must meet both Medicaid and waiver-specific requirements, including income and asset limits.
An ABLE account allows people with disabilities to save money for disability-related expenses without losing benefits. New York residents can open ABLE accounts through the state’s ABLE program.
Income limits for SSI and Medicaid vary based on household size and other factors. For SSI, the federal benefit rate in 2025 is $943 per month for an individual and $1,415 for a couple. Medicaid income limits are higher and vary by program.
Disclaimer: This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
It is important to report any changes in your income, resources, or living situation to the Social Security Administration and Medicaid to avoid overpayments. Overpayments can result in penalties or loss of benefits.
New York offers vocational rehabilitation and employment support services for people with disabilities, including job training, placement, and ongoing support.
Yes, children with Huntington’s Disease may qualify for SSI if they meet SSA’s definition of disability. Adults with a disability that began before age 22 may be eligible for benefits based on a parent’s work record.
People with Huntington’s Disease who receive SSDI are eligible for Medicare after a 24-month waiting period. Medicare provides health insurance for people with disabilities.
