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New Jersey • Neurodegenerative
People with Huntington’s Disease in New Jersey can get help through federal and state programs. These include Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid waivers, Temporary Disability Insurance (TDI), and ABLE accounts. This guide explains eligibility, how to apply, and where to get support.
Huntington’s Disease is a neurodegenerative disorder that often leads to severe disability. The Social Security Administration (SSA) recognizes it as a qualifying condition for Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). To qualify for SSDI, you must have worked enough to earn work credits. SSI is for people with limited income and resources, regardless of work history. Both programs require medical proof of your disability. You must also meet non-medical requirements, such as citizenship or legal residency.
For SSDI, you must have a severe disability expected to last at least 12 months or result in death. Huntington’s Disease usually meets this standard. SSI also requires that your income and assets are below certain limits. Both programs may require regular medical reviews to continue benefits.
Learn more about SSI vs SSDI and SSI & SSDI Work Incentives.
In New Jersey, people with Huntington’s Disease may also qualify for state-specific programs. The New Jersey Division of Disability Services (DDS) helps connect people with resources and services. Medicaid waivers, such as the Community Care Waiver and the Supports Program, provide home and community-based services for people with disabilities. These waivers can help with personal care, respite care, and other supports.
New Jersey Temporary Disability Insurance (TDI) provides short-term income if you cannot work due to a non-work-related disability, including Huntington’s Disease. To qualify, you must have worked at least 20 weeks earning at least $303 per week, or have earned a combined total of $15,200 in the base year. Family Leave Insurance (FLI) helps if you need time off to care for a family member with Huntington’s Disease.
Learn more about Medicaid vs Medicare.
Learn more about New Jersey Medicaid waivers and New Jersey ABLE account.
New Jersey ABLE accounts let people with disabilities save money for disability-related expenses without losing eligibility for SSI or Medicaid. You can save up to $16,000 per year, and the total account balance cannot exceed $100,000. Funds can be used for housing, education, transportation, and other qualified expenses. To open an account, visit the New Jersey ABLE website or call the ABLE program office.
Learn more about ABLE Accounts.
For SSI, the income limit in 2025 is $943 per month for an individual and $1,415 per month for a couple. For Medicaid, the income limit varies by program. For Medicaid waivers, the income limit is usually higher than for regular Medicaid. For TDI and FLI, there is no income limit, but benefits are based on your earnings. The maximum weekly benefit for both TDI and FLI in 2025 is $1,081.
If your income or condition changes, you must report it to avoid overpayments. For SSI and SSDI, report changes online, by phone, or in person. For Medicaid, report changes to the Division of Disability Services. For TDI and FLI, report changes to your employer or the Division of Temporary Disability and Family Leave Insurance. Overpayments can result in penalties or loss of benefits.
Contact the New Jersey Division of Disability Services for help with applications and questions about state programs.
Yes, Huntington’s Disease is recognized as a qualifying condition for both federal and state disability programs in New Jersey, including SSDI, SSI, and Medicaid waivers.
You can apply online at SSA.gov, by phone, or in person at a Social Security office. You will need to provide medical records and proof of income.
TDI provides short-term income if you cannot work due to a non-work-related disability, including Huntington’s Disease. The maximum weekly benefit in 2025 is $1,081.
FLI provides partial wage replacement for up to 12 weeks if you need time off to care for a family member with Huntington’s Disease. The maximum weekly benefit is $1,081.
Contact the New Jersey Division of Disability Services. They will help you apply for the Community Care Waiver or the Supports Program. You may need to provide proof of income and assets.
An ABLE account lets you save money for disability-related expenses without losing eligibility for SSI or Medicaid. You can save up to $16,000 per year.
Disclaimer: This guide is for informational purposes only. Always consult with a qualified professional for advice on your specific situation.
Yes, you must report changes to avoid overpayments. For SSI and SSDI, report changes online, by phone, or in person. For Medicaid, report changes to the Division of Disability Services.
Yes, Medicaid waivers like the Community Care Waiver and the Supports Program provide home and community-based services, including personal care and respite care.
The maximum weekly benefit for both TDI and FLI in 2025 is $1,081.
You can contact the Division of Disability Services by phone, email, or through their website. They can help you with applications and questions about state programs.
