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Nebraska • Rare/Genetic
People with Ehlers-Danlos Syndrome in Nebraska may qualify for federal disability benefits like SSI and SSDI if their condition severely limits their ability to work. Nebraska also offers state programs and supports for those with chronic disabilities.
To qualify for federal disability benefits (SSI or SSDI) in Nebraska, your Ehlers-Danlos Syndrome must be a medically determinable condition that prevents you from performing Substantial Gainful Activity (SGA) for at least 12 months or is expected to result in death. The Social Security Administration (SSA) uses a "Listing of Impairments," but even if your condition is not listed, you may still qualify if you can prove it is equally severe. For SSDI, you must also have enough work credits (usually 40, with 20 in the last 10 years). For SSI, financial need is required, and income and asset limits apply. In 2025, earning more than $1,620 per month ($2,700 if blind) is considered SGA and may disqualify you from benefits[1][6].
In Nebraska, people with Ehlers-Danlos Syndrome may qualify for state programs if they have a medically determinable severe, chronic disability diagnosed by a licensed professional. The Disabled Persons and Family Support (DPFS) program offers up to $400 per month for authorized services to help maintain independence and support employment. State employees may also be eligible for long-term disability insurance, which can provide up to 60% of monthly income if unable to work due to illness or injury. These programs are designed to help people with chronic conditions like Ehlers-Danlos Syndrome live as independently as possible[4][5].
ABLE Accounts allow people with disabilities to save money without losing eligibility for SSI, Medicaid, and other benefits. In Nebraska, you can open an ABLE account to pay for qualified disability expenses like education, housing, and transportation. Learn more about ABLE accounts and how to open one in Nebraska[6].
For SSI in 2025, the federal income limit is $967 per month. For SSDI, there is no strict income limit, but earning more than $1,620 per month ($2,700 if blind) is considered Substantial Gainful Activity and may disqualify you from benefits. State programs like DPFS may have different income and asset limits[2][6].
It is important to report any changes in your condition, income, or living situation to the Social Security Administration to avoid overpayments. If you receive too much money, you may have to pay it back. Always keep records of your reports and follow up on any notices from SSA[6].
Centauri Health Solutions offers free help applying for SSI or SSDI in Nebraska. Call 1-866-879-0988 (TTY: 711) Monday–Thursday 7:30 a.m. to 10:00 p.m., Friday 7:30 a.m. to 7:00 p.m.
Yes, if your Ehlers-Danlos Syndrome is severe enough to prevent you from working for at least 12 months, you may qualify for SSI or SSDI. You must provide medical evidence showing how your condition limits your ability to work[1][6].
You need detailed medical records from your doctors, including your diagnosis, treatment history, and how Ehlers-Danlos Syndrome affects your daily activities and ability to work. This evidence must show your condition is severe and long-term[1][6].
SSI pays up to $967 per month in 2025. SSDI payments vary based on your work history. State programs like DPFS may offer up to $400 per month for authorized services[2][5].
Yes, there are work incentives that let you try working without losing your benefits. If you earn more than $1,620 per month ($2,700 if blind), you may no longer qualify for SSI or SSDI[3][6].
SSI is for people with limited income and resources who are disabled, blind, or age 65 or older. SSDI is for those with enough work history and a qualifying disability. Both programs provide cash assistance[2][6].
Gather your medical records, check eligibility, and apply online, by phone, or in person at a Social Security office. You can get free help from Centauri Health Solutions[2][6].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Nebraska offers the Disabled Persons and Family Support program, long-term disability insurance for state employees, and Medicaid waivers to help people with chronic disabilities live independently[4][5].
Yes, children with Ehlers-Danlos Syndrome may qualify for SSI if their condition is severe and limits their activities. Benefits may continue into adulthood if the disability started before age 22[6].
An ABLE account is a tax-advantaged savings account for people with disabilities. It lets you save money for qualified expenses without losing eligibility for SSI, Medicaid, and other benefits[6].
Report any changes in your condition, income, or living situation to the Social Security Administration. This helps avoid overpayments and keeps your benefits current[6].
