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Nebraska • Rare/Genetic
People with cystic fibrosis in Nebraska may qualify for federal disability benefits (SSI/SSDI) and state programs if their condition severely limits their ability to work or live independently. Eligibility depends on medical severity, income, and work history.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with cystic fibrosis, your condition must severely limit your ability to work and be expected to last at least 12 months or result in death. The Social Security Administration (SSA) considers cystic fibrosis a qualifying condition if it causes significant breathing, digestive, or other health problems that prevent you from doing substantial work. Even if your cystic fibrosis is not listed in the SSA’s official “Listing of Impairments,” you may still qualify if you can prove your symptoms are equally severe. For SSDI, you must have enough work credits (usually 40, with 20 in the last 10 years). For SSI, your income and assets must be below certain limits. In 2025, earning more than $1,620 per month ($2,700 if blind) is considered substantial work and may affect eligibility[1][7].
In Nebraska, people with cystic fibrosis who are denied federal SSI benefits because their disability is expected to last less than 12 months may qualify for the State Disability Program (SDP) through the Aid to the Aged, Blind, or Disabled (AABD) program. This program provides a small monthly payment and medical coverage for those who are blind or disabled and ineligible for Medicaid. The Disabled Persons and Family Support (DPFS) program also offers up to $400 per month for authorized services to help people with severe, chronic disabilities like cystic fibrosis live independently. Eligibility is determined by a licensed medical professional and reviewed by the state[4][6].
ABLE accounts allow people with cystic fibrosis in Nebraska to save money for disability-related expenses without losing SSI or Medicaid benefits. Contributions are tax-free, and funds can be used for housing, education, transportation, and more. Nebraska residents can open an ABLE account through the state’s ABLE program[internal_link: ABLE Accounts].
For SSI in 2025, the maximum monthly payment is $967. To qualify, your income and assets must be below certain limits. For SSDI, there is no income limit, but earning more than $1,620 per month ($2,700 if blind) is considered substantial work and may affect eligibility. State programs like AABD and DPFS have their own income and asset rules[2][7].
If your income or living situation changes, you must report it to the Social Security Administration or Nebraska DHHS to avoid overpayments. Overpayments can result in repayment demands or benefit reductions. Always report changes promptly and keep records of all communications[internal_link: Avoiding Overpayments & Reporting Changes].
Contact Nebraska Total Care or the Nebraska Department of Health and Human Services for free help with disability applications and to learn about state programs.
Yes, if your cystic fibrosis severely limits your ability to work or live independently, you may qualify for SSI, SSDI, or state programs like AABD and DPFS. Medical records and proof of financial need are required[1][4][6].
SSI is for low-income people with cystic fibrosis who have limited resources. SSDI is for those with a work history who can no longer work due to cystic fibrosis. Both require proof of disability[internal_link: SSI vs SSDI].
SSI pays up to $967 per month in 2025. SSDI payments depend on your work history. State programs like AABD and DPFS offer smaller payments and services[2][4][6].
Yes, children with cystic fibrosis may qualify for SSI if their condition is severe and their family meets income limits. Adults with cystic fibrosis that began before age 22 may also qualify for benefits on a parent’s record[7].
You need records showing your cystic fibrosis diagnosis, treatment history, and how it limits your daily activities. Doctor’s notes, test results, and treatment plans are helpful[1][4][6].
Yes, work incentives like the Trial Work Period allow you to test work without losing benefits. Earnings above $1,620 per month may affect eligibility[3][7].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Nebraska offers the State Disability Program (AABD) and Disabled Persons and Family Support (DPFS) for those who are denied federal benefits. These programs provide payments and services to help with living costs and independence[4][6].
Contact the Nebraska Department of Health and Human Services to learn about Medicaid waivers for home and community-based services. These waivers help people with cystic fibrosis receive support at home instead of in institutions[internal_link: Medicaid Waivers (HCBS)].
Yes, ABLE accounts let people with cystic fibrosis save for disability-related expenses without losing SSI or Medicaid benefits. Nebraska residents can open an account through the state’s ABLE program[internal_link: ABLE Accounts].
If denied, you can appeal the decision or apply for state programs like AABD or DPFS. Contact Nebraska Total Care or the Nebraska DHHS for help with appeals and alternative options[2][4].
