Montana • Rare/Genetic

Rett Syndrome Benefits in Montana

Montana offers federal and state benefits for people with Rett Syndrome, including Social Security Disability, Medicaid, and support programs. This guide explains eligibility, how to apply, and where to get help.

Rett Syndrome qualifies for Social Security Disability (SSDI/SSI) in Montana.
Montana Medicaid covers many disability-related services.
Montana has special programs for workers with disabilities.
You can get help with applications from state agencies.
Rett Syndrome is a rare genetic disorder with unique support needs.

Last reviewed: 2025-11-06

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Eligibility

To qualify for Social Security Disability Insurance (SSDI), you must have worked in jobs covered by Social Security and have a disability that prevents work for at least 12 months. You must also meet the Social Security Administration's work credit rules (usually 20 credits in the last 10 years)[^1].
Supplemental Security Income (SSI) is for people with limited income and resources, regardless of work history. Rett Syndrome is listed as a qualifying condition under the Social Security Blue Book, so most people with Rett Syndrome will meet the medical criteria for SSI or SSDI[^1].
Both SSDI and SSI require that your disability is expected to last at least 12 months or result in death[^1].

Montana Disability Determination Services (DDS) reviews medical evidence to decide if you meet federal disability criteria for SSDI or SSI. They use the same rules as the Social Security Administration but process claims for Montana residents[^2].
Montana Medicaid covers many services for people with disabilities, including personal care, therapy, and home health. If you have Rett Syndrome, you may qualify for Medicaid even if you work, through the Medicaid for Workers with Disabilities (MWD) program[^3].
The MWD program lets people with disabilities earn more and still keep Medicaid by paying a cost-share based on income. This helps families avoid losing health coverage when someone with Rett Syndrome starts working or earning more[^3].
Montana also offers statewide independent living services and developmental disability programs for people with rare genetic conditions like Rett Syndrome[^4].

How to apply in Montana

Gather medical records and proof of income.
Contact Montana Disability Determination Services for help with SSDI/SSI applications.
Apply for Medicaid through your local Office of Public Assistance.
Ask about the Medicaid for Workers with Disabilities program if you or a family member works.
Use the SSI Income Estimator tool to check eligibility[^5].

Step 1: Get your medical records. These should include a diagnosis of Rett Syndrome, treatment history, and how the condition affects daily life.
Step 2: Contact Montana Disability Determination Services. They can help you fill out SSDI or SSI forms and explain what evidence is needed[^2].
Step 3: Apply for SSDI or SSI online at ssa.gov, by phone, or in person at a Social Security office. Montana has 9 Social Security field offices[^2].
Step 4: Apply for Montana Medicaid. You can do this at your local Office of Public Assistance or online. If you work, ask about the Medicaid for Workers with Disabilities program[^3].
Step 5: If you need help with daily living, ask about developmental disability services and independent living programs[^4].
Step 6: Keep records of all applications and follow up regularly. If your claim is denied, you can appeal[^2].

Programs & Services

Social Security Disability Insurance (SSDI): Monthly payments for people who worked and paid Social Security taxes.
Supplemental Security Income (SSI): Monthly payments for people with limited income and resources.
Medicaid: Health coverage for people with disabilities, including therapy, home care, and personal assistance.
Medicare: Health coverage for people who get SSDI after 24 months.
ABLE Accounts: Tax-advantaged savings accounts for people with disabilities[^6].

Montana Medicaid for Workers with Disabilities (MWD): Lets people with disabilities keep Medicaid while working, with a cost-share based on income[^3].
Developmental Disabilities Program: Provides support services for people with rare genetic conditions like Rett Syndrome[^4].
Pre-Employment Transition Services: Helps young people with disabilities prepare for work[^4].
Statewide Independent Living Services: Offers counseling, advocacy, and training for people with disabilities[^4].
Long-Term Disability Insurance: Optional insurance for state employees, but not for the general public[^7].

Money & Banking

ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. Montana offers ABLE accounts through the state program. You can use the account for disability-related expenses like therapy, equipment, and education[^6].

SSI has strict income and resource limits. In 2025, the federal SSI limit is $943 per month for an individual. Montana may have higher limits for some programs. Medicaid for Workers with Disabilities uses a sliding fee scale based on net-countable income[^3].

If you get too much SSI or SSDI, you may have to pay it back. Report changes in income, living situation, or medical status to Social Security right away. This helps avoid overpayments and keeps your benefits safe[^8].

Tips & Gotchas

Need Help Applying?

Contact Montana Disability Determination Services or your local Social Security office for free help with applications and forms.

Contacts

Montana Disability Determination Services
Phone: 1-800-222-2022
Hours: Monday-Friday, 8:00 AM - 5:00 PM
Website
For help with SSDI/SSI applications and medical eligibility.
Montana Office of Public Assistance
Phone: 1-888-706-5005
Hours: Monday-Friday, 8:00 AM - 5:00 PM
Website
For help with Medicaid and other state benefits.

FAQs

Does Rett Syndrome qualify for Social Security Disability in Montana?
Yes, Rett Syndrome is listed as a qualifying condition for Social Security Disability (SSDI/SSI) in Montana. Most people with Rett Syndrome will meet the medical criteria for benefits.
How do I apply for Medicaid in Montana if I have Rett Syndrome?
You can apply for Medicaid at your local Office of Public Assistance or online. If you work, ask about the Medicaid for Workers with Disabilities program.
Can I work and still get Medicaid if I have Rett Syndrome?
Yes, Montana's Medicaid for Workers with Disabilities program lets people with disabilities keep Medicaid while working, with a cost-share based on income.
What services does Montana Medicaid cover for Rett Syndrome?
Montana Medicaid covers therapy, personal care, home health, and other disability-related services for people with Rett Syndrome.
Are there special programs for children with Rett Syndrome in Montana?
Yes, Montana offers developmental disability services, pre-employment transition services, and independent living programs for children and adults with Rett Syndrome.
How do I get help with my disability application in Montana?
Contact Montana Disability Determination Services or your local Social Security office. They can help you fill out forms and explain what evidence is needed.

Official resources

Social Security Disability Eligibility(federal)
Montana Disability Determination Services(state_agency)
Montana Long-Term Disability Insurance(state_agency)

Related Purple guides

Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.

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