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Maine • Rare/Genetic
Maine does not have a state disability program, but people with Cystic Fibrosis can get federal disability benefits, Medicaid, housing help, and support services. This guide explains eligibility, how to apply, and what programs are available.
People with Cystic Fibrosis in Maine can qualify for federal disability benefits if their condition prevents them from working. The main programs are Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). SSDI is for those who have worked and paid Social Security taxes. SSI is for people with limited income and assets, including children and adults who have never worked. To qualify, your Cystic Fibrosis must be severe enough to stop you from doing substantial work for at least 12 months. The Social Security Administration (SSA) uses a strict medical review process to decide if you meet the criteria[1][7][8].
Maine does not have a state disability program for people with Cystic Fibrosis. Instead, residents rely on federal programs like SSDI and SSI. MainePERS offers a Disability Retirement Program for public employees who become unable to work due to a medical condition, including Cystic Fibrosis. To qualify, you must show a medically diagnosable condition, functional limitations that prevent you from doing your job, and that the condition is expected to be permanent. This is a retirement benefit, not a short-term disability program[2]. Maine also provides Medicaid, housing assistance, and independent living services for people with disabilities, which can be helpful for those with Cystic Fibrosis[3][5].
ABLE accounts let people with disabilities save money without losing eligibility for SSI, Medicaid, and other benefits. Maine residents with Cystic Fibrosis can open an ABLE account to save for disability-related expenses. Learn more about ABLE accounts and how to apply[internal_link: ABLE Accounts].
SSI has strict income and asset limits. In 2025, the monthly income limit for an individual is $943, and for a couple, it is $1,415. SSDI does not have income limits, but your benefit amount is based on your work history[7].
If your income or living situation changes, you must report it to the Social Security Administration. Not reporting changes can lead to overpayments and penalties. Learn how to avoid overpayments and report changes[internal_link: Avoiding Overpayments & Reporting Changes].
Contact MaineHealth Vocational Services for free benefits counseling. They can help you understand how work affects your benefits and guide you through the application process[4].
If you work for the state or local government in Maine, you may qualify for MainePERS disability retirement. Contact MainePERS for details[2].
Yes, you can get federal disability benefits like SSDI or SSI if your Cystic Fibrosis prevents you from working. Maine does not have a state disability program, but public employees may qualify for MainePERS disability retirement[1][2].
You need medical records that show your Cystic Fibrosis diagnosis, treatments, and how your condition limits your ability to work. The Social Security Administration will review your records to decide if you qualify[6][7].
You can apply for SSDI or SSI online at the Social Security website, by phone, or in person at a local SSA office. Public employees should contact MainePERS for disability retirement[6][2].
MaineHousing offers the Section 811 PRA program, which provides rental assistance for extremely low-income people with disabilities. This program helps with affordable housing and support services[5].
Yes, there are work incentives that let you keep some benefits while you work. MaineHealth Vocational Services offers free counseling to help you understand how work affects your benefits[4].
MainePERS disability retirement is a benefit for public employees who become unable to work due to a medical condition. You must show a permanent, disabling condition that prevents you from doing your job[2].
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, Maine's Independent Living Services Program helps people with significant disabilities live independently. Services include advocacy, information, and support, subject to funding[3].
MaineCITE Assistive Technology helps make assistive devices more available to people with disabilities. Contact them for information and resources[3].
SSI is for people with limited income and assets, while SSDI is for those who have worked and paid Social Security taxes. Both programs provide monthly payments and health coverage[1][7].
Yes, children with Cystic Fibrosis may qualify for SSI or for benefits as a dependent on a parent's Social Security record. The child must have a qualifying disability[7].
