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Louisiana • Neurodegenerative
People with Huntington’s Disease in Louisiana can get federal disability benefits (SSI/SSDI), Medicaid, and state support. Louisiana also offers emergency food aid during federal shutdowns and work incentives for those who want to work.
To get federal disability benefits for Huntington’s Disease, you must meet Social Security Administration (SSA) rules. Huntington’s Disease is listed in the SSA’s Compassionate Allowances, so approval is often fast. You need to show that your condition is severe and expected to last at least 12 months or result in death. You also need to meet work and income requirements for SSDI or SSI. For SSDI, you need 40 credits, with 20 earned in the last 10 years. For SSI, your income and resources must be below set limits. If you are blind or have another qualifying disability, different rules may apply. [^1]
If you work, your earnings must be below the Substantial Gainful Activity (SGA) limit. In 2025, SGA is $1,620 per month for non-blind individuals. If you earn more, your benefits may stop. [^2]
In Louisiana, people with Huntington’s Disease can get Medicaid through the Home and Community-Based Services (HCBS) waiver program. This helps pay for care at home or in the community instead of in a nursing home. You must meet both medical and financial eligibility rules. The HCBS waiver is for people with developmental disabilities, including Huntington’s Disease. [^3]
Louisiana also offers emergency state-funded SNAP (food stamp) benefits for vulnerable groups, including those with disabilities, during federal government shutdowns. If you are elderly, disabled, or have children in your household, you may get state aid when federal SNAP is not available. Able-bodied adults without these groups do not get state aid. [^4]
Louisiana’s Family Independence Temporary Assistance Program (FITAP) and Kinship Care Subsidy Program (KCSP) are not affected by federal shutdowns and continue to provide support. [^4]
Louisiana offers ABLE accounts for people with disabilities. These let you save money without losing SSI or Medicaid eligibility. You can use the funds for disability-related expenses like housing, education, and health care. [^6]
For SSI, the 2025 income limit is $943 per month for an individual. For SSDI, there is no strict income limit, but your earnings must be below the SGA limit ($1,620 per month for non-blind individuals in 2025). [^2]
If your income, work, or living situation changes, you must report it to Social Security and Louisiana agencies. Not reporting changes can lead to overpayments and penalties. [^5]
During federal government shutdowns, Louisiana provides emergency SNAP benefits to vulnerable groups, including those with disabilities. Check the Louisiana Department of Health website for updates.
Yes, Huntington’s Disease is a Compassionate Allowance for Social Security disability. You must show it is severe and expected to last at least 12 months or result in death. [^1]
Contact the Louisiana Department of Health or the Office for Citizens with Developmental Disabilities. You will need to fill out an application and provide proof of income and disability. [^3]
During federal government shutdowns, Louisiana provides emergency SNAP benefits to vulnerable groups, including those with disabilities. [^4]
Yes, you can work if your earnings are below the SGA limit ($1,620 per month for non-blind individuals in 2025). Work incentives help you keep benefits while working. [^2]
An ABLE account lets you save money without losing SSI or Medicaid eligibility. You can open one through the Louisiana ABLE program. [^6]
Report changes in income, work, or living situation to Social Security and Louisiana agencies to avoid overpayments and penalties. [^5]
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
SSI is for people with low income and resources. SSDI is for people who have worked and paid Social Security taxes. Both can help people with Huntington’s Disease. [^1]
Yes, you can get SNAP (food stamps) if you meet income and resource rules. During federal shutdowns, Louisiana provides emergency SNAP aid to vulnerable groups, including those with disabilities. [^4]
Louisiana offers Medicaid HCBS waiver, emergency SNAP aid, FITAP, KCSP, and work incentives for families caring for someone with Huntington’s Disease. [^3][^4]
Disability Rights Louisiana offers free Work Incentives Planning & Assistance (WIPA) counseling for people with disabilities. [^2]
