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Kentucky • Rare/Genetic
People with Fragile X Syndrome in Kentucky may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. These programs help cover medical care, therapy, and daily living costs.
Fragile X Syndrome is a genetic condition that can cause intellectual disability, developmental delays, and behavioral challenges. To qualify for Social Security Disability Insurance (SSDI), you must have a medical condition that prevents you from working and have enough work credits. For Supplemental Security Income (SSI), you must have limited income and resources, and your condition must seriously limit your activities. Both programs require a diagnosis and medical evidence showing how Fragile X Syndrome affects your ability to work or live independently [1].
Children with Fragile X Syndrome may qualify for SSI if their condition limits their activities and their family meets income and resource limits. Adults may qualify for SSDI if they have a work history and meet the medical criteria [6][7].
In Kentucky, people with Fragile X Syndrome may qualify for Medicaid waivers that cover home and community-based services, such as therapy and support for daily living. These waivers help families get services not covered by regular Medicaid. Children with Fragile X Syndrome may also get early intervention services through the state’s early childhood programs. Adults with Fragile X Syndrome may qualify for vocational rehabilitation and supported employment services. Kentucky also allows dependents with disabilities to stay on their parents’ health insurance until age 26, and sometimes beyond if the disability continues [2].
Kentucky’s public assistance programs aim to help families with children who have disabilities get food, cash, and medical help. Families may also qualify for the Kentucky Transitional Assistance Program (K-TAP) if they have children and meet income requirements [9].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. In Kentucky, you can open an ABLE account through the state’s ABLE program. The account can be used for things like therapy, education, and housing. There are limits on how much you can save each year, but the money grows tax-free [3].
For SSI, the income limit in 2025 is $914 per month for an individual. For SSDI, there is no strict income limit, but you cannot earn more than the Substantial Gainful Activity (SGA) limit, which is $1,470 per month for non-blind individuals in 2024. The SGA limit may increase slightly in 2025 due to inflation [3].
For Medicaid, income limits depend on your household size and whether you get other benefits. In Kentucky, children with disabilities may qualify for Medicaid if their family meets income requirements [2].
If your income or health changes, you must report it to Social Security and Medicaid. Not reporting changes can lead to overpayments, which you may have to pay back. For SSI and SSDI, report changes online or by phone. For Medicaid, report changes to your local Department for Community Based Services [8].
Centauri Health Solutions offers free help for WellCare of Kentucky members applying for SSI or SSDI. Call 1-866-454-0411 for support.
Kentucky Medicaid waivers can cover speech, physical, and occupational therapy for people with Fragile X Syndrome. Ask your doctor or local agency about eligibility.
Yes, children with Fragile X Syndrome may qualify for SSI if their condition limits their activities and their family meets income and resource limits. You need medical records and proof of how the condition affects daily life [1][6].
Kentucky Medicaid waivers cover therapy services like speech, physical, and occupational therapy for people with Fragile X Syndrome. Early intervention programs also offer therapy for children with developmental delays [2].
To apply for Medicaid waivers, talk to your doctor or contact your local Department for Community Based Services. They can help you apply and explain what services are covered [2].
Yes, adults with Fragile X Syndrome may qualify for SSDI if they have a work history and meet the medical criteria. You need medical records and proof of how the condition affects your ability to work [6][7].
The income limit for SSI in 2025 is $914 per month for an individual. This limit may change each year based on inflation [3].
Yes, people with Fragile X Syndrome can open an ABLE account to save for disability-related expenses. The account does not affect SSI or Medicaid benefits as long as you follow the rules [3].
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, you must report changes in income or health to Social Security and Medicaid. Not reporting changes can lead to overpayments, which you may have to pay back [8].
Yes, you can work while getting SSI or SSDI, but there are limits on how much you can earn. For SSI, your income must be below the limit. For SSDI, you cannot earn more than the SGA limit [3][8].
Families may qualify for Medicaid waivers, early intervention services, and cash assistance through K-TAP. They can also get help with therapy and support for daily living [2][9].
Yes, Kentucky allows dependents with disabilities to stay on their parents’ health insurance until age 26, and sometimes beyond if the disability continues [2].
