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Kentucky • Neurodegenerative
People with Amyotrophic Lateral Sclerosis (ALS) in Kentucky can get help with medical care, cash assistance, and support services through federal and state programs. This guide explains eligibility, how to apply, and what benefits are available.
People with ALS in Kentucky can get Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI) if they meet federal rules. ALS is a Compassionate Allowances condition, so applications are processed quickly. To qualify for SSI, you must have low income and few resources. SSDI requires a work history and enough Social Security credits. Both programs pay cash each month and help with medical costs. In 2025, the SSI payment is up to $914 per month. The Substantial Gainful Activity (SGA) limit is $1,620 per month for non-blind people and $2,700 for blind people. If you earn more than the SGA limit, you may not qualify for SSDI or SSI[3][5][6][7].
In Kentucky, people with ALS can get Medicaid, which covers doctor visits, therapy, and home care. Kentucky also offers Medicaid waivers for home and community-based services (HCBS), which can help with personal care, equipment, and support. If you are a public employee, you may qualify for Kentucky Public Pensions Authority (KPPA) disability benefits, but these may be reduced if you also get Social Security or Workers' Compensation. Kentucky’s public assistance programs help families with food, cash, and medical help. Young adults with disabilities can stay on their parents’ health plan until age 26 or longer if needed[2][4].
An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. You can use the money for housing, education, health care, and more. Kentucky offers ABLE accounts through the KY ABLE program. Learn more at https://www.kyable.org[8].
In 2025, the SSI payment is up to $914 per month. The SGA limit is $1,620 per month for non-blind people and $2,700 for blind people. If you earn more than the SGA limit, you may not qualify for SSDI or SSI. Medicaid income limits vary by family size and situation[3][5][6][7].
If your income, health, or living situation changes, report it to Social Security and Medicaid. Not reporting changes can lead to overpayments and loss of benefits. You can report changes online, by phone, or by mail. Keep records of all reports and letters[8].
ALS is a Compassionate Allowances condition, so your SSI/SSDI application will be processed quickly. Call Social Security or Centauri Health Solutions for help.
Centauri Health Solutions offers free help for WellCare members. Call 1-866-454-0411 to start your SSI or SSDI application.
Yes, ALS is a Compassionate Allowances condition, so SSI and SSDI applications are processed quickly. You can apply online or by phone for fast approval[6][7].
In 2025, the SSI payment is up to $914 per month. The amount may be less if you have other income or resources[3][5].
Yes, if you get SSI, you are automatically eligible for Medicaid in Kentucky. If you get SSDI, you may qualify after 24 months. Medicaid covers doctor visits, therapy, and home care[2].
In 2025, the SGA limit is $1,620 per month for non-blind people and $2,700 for blind people. If you earn more than the SGA limit, you may not qualify for SSDI or SSI[3][5][6][7].
Yes, there are work incentives that let you keep some benefits if you try to work. The Trial Work Period and Expedited Reinstatement programs help you test your ability to work without losing benefits[5].
Kentucky offers Medicaid waivers for home and community-based services (HCBS). These can help with personal care, therapy, and equipment. Contact your local Department for Community Based Services for details[2].
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most up-to-date rules and eligibility.
Yes, Medicaid covers health care for people with ALS. Young adults with disabilities can stay on their parents’ health plan until age 26 or longer if needed[2].
If you get other benefits, like Workers' Compensation or KPPA disability, your SSI or SSDI may be reduced. Report all benefits to Social Security and Medicaid to avoid overpayments[4][8].
Yes, Centauri Health Solutions offers free help for WellCare members. Call 1-866-454-0411 to start your SSI or SSDI application[1].
An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. Kentucky offers ABLE accounts through the KY ABLE program. Learn more at https://www.kyable.org[8].