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Indiana • Rare/Genetic
People with Rett Syndrome in Indiana may qualify for federal disability benefits like SSDI and SSI, as well as state programs for health care, income support, and work incentives. This guide explains eligibility, how to apply, and what help is available.
To qualify for Social Security Disability Insurance (SSDI), you must have a severe medical condition that stops you from working and is expected to last at least 12 months or result in death. You also need enough work credits from jobs where you paid Social Security taxes. For Supplemental Security Income (SSI), you must have limited income and resources, and meet the Social Security Administration's definition of disability. Rett Syndrome is listed as a qualifying condition for children under Social Security's Compassionate Allowances program, which speeds up approval for certain severe disabilities [ssa.gov, 2025-11-05].
Adults with Rett Syndrome may qualify for SSDI if they have a work history, or for SSI if they have low income and resources. Children with Rett Syndrome may qualify for SSI if their family meets income limits [ssa.gov, 2025-11-05].
In Indiana, people with Rett Syndrome may qualify for state disability programs, Medicaid, and Medicaid waivers. The Indiana Disability Determination Bureau (DDB) works with the Social Security Administration to decide if someone meets the medical definition of disability. Indiana also offers Medicaid waivers for children and adults with disabilities, which can provide home and community-based services (HCBS) like therapy, respite care, and personal care [in.gov, 2025-11-05].
Children with Rett Syndrome may qualify for Indiana's Medicaid waiver programs if they meet the state's medical and financial criteria. Adults with Rett Syndrome may also qualify for state disability benefits if they meet Indiana's eligibility rules [in.gov, 2025-11-05].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Indiana residents can open an ABLE account through the state's ABLE program. Funds can be used for education, housing, transportation, and other qualified expenses [in.gov, 2025-11-05].
If your income or living situation changes, you must report it to the Social Security Administration to avoid overpayments. Overpayments can happen if you earn too much, get other benefits, or fail to report changes. Report changes online, by phone, or in person at a local SSA office. If you receive an overpayment notice, you can request a waiver or set up a repayment plan [ssa.gov, 2025-11-05].
Rett Syndrome is a Compassionate Allowance condition, which means children with Rett Syndrome may qualify for faster approval of SSI or SSDI benefits. Make sure to mention this when you apply.
Rett Syndrome is a rare genetic disorder that affects brain development and causes severe physical and mental disabilities. It is listed as a Compassionate Allowance condition by Social Security, which means children with Rett Syndrome may qualify for faster approval of SSI or SSDI benefits [ssa.gov, 2025-11-05].
Yes, children with Rett Syndrome may qualify for SSI if their family meets income and resource limits. Rett Syndrome is a Compassionate Allowance condition, so approval may be faster. Contact the Social Security Administration or your local SSA office to apply [ssa.gov, 2025-11-05].
Indiana offers Medicaid waivers for children and adults with disabilities, including Rett Syndrome. These waivers provide home and community-based services like therapy and personal care. Contact the Indiana Family and Social Services Administration (FSSA) or your local Area Agency on Aging and Disability for more information [in.gov, 2025-11-05].
You can apply online at ssa.gov, by phone, or in person at a local SSA office. For children, parents or guardians can apply on their behalf. Gather medical records and proof of income before applying. Rett Syndrome is a Compassionate Allowance condition, so approval may be faster [ssa.gov, 2025-11-05].
The Substantial Gainful Activity (SGA) limit for 2025 is expected to be $1,530 per month for non-blind individuals and $2,550 for blind individuals. If you earn more than this, you may lose SSDI benefits. SSI has different income limits [disabilitylawgroup.com, 2025-11-05].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Yes, there are work incentives that allow some people with disabilities to earn income while keeping benefits. The SGA limit sets the maximum you can earn and still receive SSDI. SSI has different rules for earned income [ssa.gov, 2025-11-05].
An ABLE account lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Indiana residents can open an ABLE account through the state's ABLE program. Funds can be used for education, housing, transportation, and other qualified expenses [in.gov, 2025-11-05].
If your income or living situation changes, you must report it to the Social Security Administration to avoid overpayments. Report changes online, by phone, or in person at a local SSA office. If you receive an overpayment notice, you can request a waiver or set up a repayment plan [ssa.gov, 2025-11-05].
SSDI is for people with a work history who paid Social Security taxes. SSI is for people with limited income and resources. Children with Rett Syndrome may qualify for SSI if their family meets income limits. Adults may qualify for SSDI if they have a work history, or for SSI if they have low income [ssa.gov, 2025-11-05].
Yes, depending on your eligibility, you may be able to collect both SSDI and SSI benefits at the same time. This is known as receiving 'concurrent' benefits. The Social Security Administration will tell you if you qualify for one or both programs after you apply [ssa.gov, 2025-11-05].
