Fragile X Syndrome Benefits in Delaware

To qualify for federal disability benefits (SSI or SSDI) with Fragile X Syndrome, you must have a medical condition that prevents you from working for at least a year or is expected to result in death. For SSDI, you generally need 40 work credits, with 20 earned in the last 10 years. For SSI, you must have limited income and resources. Fragile X Syndrome often meets these criteria, especially for children and adults with significant developmental or cognitive impairments [^1].

Medical evidence from a doctor is required to prove your condition and its impact on daily life and work. The Social Security Administration (SSA) uses a listing for intellectual disabilities, which may apply to Fragile X Syndrome [^1].

State-specific information is limited; start here:

• Delaware residents with Fragile X Syndrome may qualify for Medicaid waivers for home and community-based services (HCBS). These waivers help cover costs for therapies, respite care, and other supports.
• To qualify for Delaware Medicaid, you must meet income and asset limits. Children with Fragile X Syndrome may qualify for Medicaid through the Children’s Health Insurance Program (CHIP) or other pathways.
• Delaware does not have a state-specific short-term disability program like California. Most disability benefits are federal (SSI/SSDI) or through Medicaid waivers [^2].

For more details, contact Delaware’s Division of Medicaid and Medical Assistance or the Division of Developmental Disabilities Services.

• Gather medical records and proof of income.
• Apply for SSI/SSDI online at SSA.gov or at your local Social Security office.
• Apply for Medicaid waivers through Delaware’s Division of Medicaid and Medical Assistance.
• Consider opening an ABLE account for disability-related savings.
• Report changes in your situation to avoid overpayments.

• Step 1: Collect all medical records, including genetic testing results and documentation of how Fragile X Syndrome affects daily life and work.
• Step 2: Apply for SSI or SSDI online at SSA.gov, by phone, or in person. You will need to provide your medical evidence and work history.
• Step 3: If denied, you can appeal. Ask your doctor to complete a medical source statement to support your claim.
• Step 4: Apply for Delaware Medicaid waivers through the Division of Medicaid and Medical Assistance. You may need to complete a functional assessment.
• Step 5: Open an ABLE account to save for disability-related expenses without affecting SSI or Medicaid eligibility.
• Step 6: Report any changes in income, resources, or living situation to Social Security and Medicaid to avoid overpayments.

Each step may take several weeks or months. Keep copies of all documents and follow up regularly.

• Social Security Disability Insurance (SSDI): For those who have worked and paid into Social Security. Pays monthly benefits based on work history.
• Supplemental Security Income (SSI): For those with limited income and resources. Pays monthly benefits to help with basic needs.
• Medicaid: Federal-state program that covers medical costs for low-income individuals with disabilities.
• Medicare: For those who receive SSDI for 24 months, covers medical costs.
• Medicaid Waivers (HCBS): Federal program that allows states to provide home and community-based services to people with disabilities.
• ABLE Accounts: Tax-advantaged savings accounts for disability-related expenses.

• Delaware Medicaid Waivers: Provides home and community-based services for people with developmental disabilities, including Fragile X Syndrome. Services may include therapies, respite care, and supported living.
• Division of Developmental Disabilities Services (DDDS): Helps individuals with developmental disabilities access services and supports.
• Children’s Health Insurance Program (CHIP): Provides health coverage for children with disabilities who do not qualify for Medicaid.
• Delaware ABLE Account: Allows individuals with disabilities to save for disability-related expenses without affecting SSI or Medicaid eligibility.
• State Vocational Rehabilitation Services: Helps individuals with disabilities prepare for, find, and keep jobs.

These programs can help cover costs for therapies, respite care, and other supports for individuals with Fragile X Syndrome in Delaware.

Delaware offers ABLE accounts, which allow individuals with disabilities to save for disability-related expenses without affecting SSI or Medicaid eligibility. You can open an account online and use funds for qualified expenses like education, housing, and transportation. Contributions are tax-free, and earnings grow tax-free [^3].

For SSI, the income limit is $943 per month for an individual in 2024. For Medicaid, limits vary by program and household size. ABLE accounts have a lifetime contribution limit of $100,000, but higher balances do not affect Medicaid eligibility [^4].

Report changes in income, resources, or living situation to Social Security and Medicaid to avoid overpayments. Overpayments can result in repayment demands or loss of benefits. Keep records of all reports and follow up regularly [^5].

• Delaware Division of Medicaid and Medical Assistance
  Phone: 1-800-372-2022

  Hours: Monday-Friday, 8:00 AM - 4:30 PM

  Website

  For Medicaid and Medicaid waivers.
• Delaware Division of Developmental Disabilities Services
  Phone: 1-800-962-1266

  Hours: Monday-Friday, 8:00 AM - 4:30 PM

  Website

  For developmental disabilities services.
• Social Security Administration
  Phone: 1-800-772-1213

  TTY: 1-800-325-0778

  Hours: Monday-Friday, 7:00 AM - 7:00 PM

  Website

  For SSI and SSDI applications and questions.

• Can Fragile X Syndrome qualify for disability benefits in Delaware?

  Yes, Fragile X Syndrome can qualify for SSI and SSDI if it limits your ability to work. You must provide medical evidence to prove your condition and its impact on daily life.

• What medical evidence is needed for Fragile X Syndrome benefits?

  You need genetic testing results, doctor’s reports, and documentation of how Fragile X Syndrome affects your daily life and work. This evidence is required for SSI, SSDI, and Medicaid waivers.

• How do I apply for Medicaid waivers in Delaware?

  Apply through Delaware’s Division of Medicaid and Medical Assistance. You may need to complete a functional assessment and provide medical records to show eligibility.

• What is an ABLE account and how can it help?

  An ABLE account is a tax-advantaged savings account for disability-related expenses. It does not affect SSI or Medicaid eligibility and can be used for education, housing, and transportation.

• What are the income limits for SSI and Medicaid in Delaware?

  For SSI, the income limit is $943 per month for an individual in 2024. For Medicaid, limits vary by program and household size. ABLE accounts have a lifetime contribution limit of $100,000.

• How do I report changes to avoid overpayments?

  Report changes in income, resources, or living situation to Social Security and Medicaid. Overpayments can result in repayment demands or loss of benefits. Keep records of all reports.