Huntington’s Disease Benefits in Connecticut

To get federal disability benefits for Huntington’s Disease, you must meet Social Security’s definition of disability. This means your condition must prevent you from working for at least 12 months and meet the criteria in the Social Security Blue Book. Huntington’s Disease is listed in the Blue Book under neurological disorders. You may qualify for Supplemental Security Income (SSI) if you have limited income and resources, or Social Security Disability Insurance (SSDI) if you have enough work credits. Children with Huntington’s Disease may also qualify for benefits if they meet the definition of disability for children. The amount of money you can earn while disabled is limited; in 2025, the Substantial Gainful Activity (SGA) limit is $1,620 per month for most people, or $2,700 if you are blind. [^1][^2]

In Connecticut, people with Huntington’s Disease may qualify for state cash assistance through the Aid to Aged, Blind, and Disabled (AABD) program. This program supplements your income and helps maintain a standard of living set by the state. The state disregards the 2025 Social Security Cost of Living Adjustment (COLA) when calculating AABD eligibility, so the full COLA will not count as income. This helps protect your benefits and keeps federal Medicaid funding. You must meet financial and technical requirements for Medicaid or the Medicaid for Employed Disabled program. Connecticut also offers Medicaid waivers for home and community-based services, which can help adults with Huntington’s Disease live outside of institutions. [^3][^4]

• Check if you qualify for federal SSI or SSDI at ssa.gov.
• Apply for Connecticut state benefits online at connect.ct.gov or call 1-855-626-6632.
• Ask about Medicaid waivers and home care programs through the Department of Social Services.
• Gather medical records and proof of income for your application.
• Submit your application and follow up for updates.

• Step 1: Review eligibility for federal disability benefits (SSI/SSDI) on the Social Security website. Huntington’s Disease is listed in the Blue Book, so you may qualify if your condition meets the criteria.
• Step 2: Apply for SSI or SSDI online at ssa.gov or by calling Social Security. You will need to provide medical records, proof of income, and work history.
• Step 3: Apply for Connecticut state benefits, including AABD and Medicaid, at connect.ct.gov or by calling 1-855-626-6632. You can also visit a local Department of Social Services office.
• Step 4: Ask about Medicaid waivers for home and community-based services. These programs can help you get personal care, respite care, and other supports to live at home.
• Step 5: Gather all required documents, such as medical records, proof of income, and identification, and submit your application.
• Step 6: Follow up with the agency to check the status of your application and provide any additional information they request.
• Step 7: If approved, you will receive benefits and can access additional support services through the state. [^5][^6]

• Social Security Disability Insurance (SSDI): For people who have worked and paid into Social Security.
• Supplemental Security Income (SSI): For people with limited income and resources.
• Medicaid: Health coverage for people with disabilities who meet income and resource limits.
• Medicare: Health coverage for people who get SSDI after a 24-month waiting period.
• Family Benefits: Spouses, ex-spouses, and children of disabled workers may qualify for benefits.
• Work Incentives: Programs to help people with disabilities work and keep their benefits. [^1][^2]

• Aid to Aged, Blind, and Disabled (AABD): State cash assistance for people with disabilities.
• Medicaid Waivers: Home and community-based services for adults with disabilities, including the Acquired Brain Injury (ABI) Waiver.
• Personal Services Program: Grants for personal assistants to help people with severe disabilities live at home.
• Family Support Grant Program: Subsidies for families with children who have developmental disabilities.
• Legal Services for Indigent People: Civil legal help for low-income individuals.
• State Supplement Program: Cash assistance to supplement income for the aged, blind, or disabled.
• Neighborhood Assistance: Tax credits for businesses that invest in community services for low-income families. [^3][^4]

An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. In Connecticut, you can open an ABLE account to pay for qualified disability expenses like housing, education, and transportation. The account grows tax-free, and withdrawals for qualified expenses are not taxed. You must have a disability that began before age 26 to qualify. [^7]

For SSI in 2025, the federal income limit is $943 per month for an individual and $1,415 for a couple. Connecticut’s AABD program has its own income limits, which are adjusted each year. The state disregards the 2025 Social Security COLA when calculating AABD eligibility, so the full COLA will not count as income. [^3][^8]

If you get too much money from SSI, SSDI, or state benefits, you may have to pay it back. Report any changes in income, resources, or living situation to the agency right away. This helps avoid overpayments and keeps your benefits safe. [^9]

• Connecticut Department of Social Services
  Phone: 1-855-626-6632

  TTY: 1-800-842-4524

  Website

  Main agency for state benefits and services.

• Can I get SSI or SSDI for Huntington’s Disease?

  Yes, Huntington’s Disease is listed in the Social Security Blue Book. If your condition meets the criteria, you can get SSI or SSDI. You must meet the definition of disability and have enough work credits for SSDI or limited income and resources for SSI. [^1]

• Does Connecticut have special programs for Huntington’s Disease?

  Connecticut offers state cash assistance, Medicaid waivers, and home care programs for people with Huntington’s Disease. The state also has programs for children with disabilities and legal help for low-income individuals. [^3][^4]

• How does the Social Security COLA affect my benefits in Connecticut?

  In 2025, Connecticut will not count the Social Security COLA as income when calculating eligibility for the AABD program. This means the full COLA will be disregarded, so your benefits will not be reduced. [^3]

• Can I work while getting disability benefits in Connecticut?

  Yes, you can work and keep your benefits if you do not earn more than the Substantial Gainful Activity (SGA) limit. In 2025, the SGA limit is $1,620 per month for most people, or $2,700 if you are blind. [^1]

• What is the AABD program in Connecticut?

  The Aid to Aged, Blind, and Disabled (AABD) program provides state cash assistance to supplement income for people with disabilities. The state disregards the 2025 Social Security COLA when calculating eligibility. [^3]

• How do I apply for Medicaid waivers in Connecticut?

  You can apply for Medicaid waivers through the Department of Social Services. The ABI Waiver is for adults with acquired brain injury, including Huntington’s Disease. Contact a regional office for more information. [^4]