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California • Rare/Genetic
People with Rett Syndrome in California can access State Disability Insurance (SDI), Paid Family Leave (PFL), Medicaid waivers, and federal programs. In 2025, SDI and PFL benefits increase to 70–90% of wages, with faster claims processing and higher weekly payments.
People with Rett Syndrome may qualify for federal disability programs like Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). SSDI is for those who worked and paid Social Security taxes. SSI helps low-income individuals with disabilities, regardless of work history. Both programs require medical proof of disability and ongoing eligibility reviews. Children with Rett Syndrome may qualify for SSI if family income and resources are limited. Adults may qualify for SSDI if they have enough work credits or for SSI if they meet income and asset limits. [^1]
In California, people with Rett Syndrome can get State Disability Insurance (SDI) if they cannot work due to illness or injury. Paid Family Leave (PFL) helps caregivers take time off to care for a seriously ill family member, including a child with Rett Syndrome. Starting in 2025, SDI and PFL benefits increase to 70–90% of wages, with a maximum weekly benefit of $1,681. There is no wage cap for contributions. To qualify, you must have earned at least $300 in wages subject to SDI tax in the past 12 months and be unable to work due to disability. [^2][^3]
Federal programs for Rett Syndrome include Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). SSDI provides monthly payments to adults with disabilities who have a work history. SSI helps children and adults with limited income and resources. Both programs require medical proof of disability and ongoing eligibility reviews. Medicaid and Medicare may also be available for healthcare coverage. [^1]
California offers State Disability Insurance (SDI) for short-term wage replacement due to illness or injury. Paid Family Leave (PFL) helps caregivers take time off to care for a seriously ill family member, including a child with Rett Syndrome. In 2025, SDI and PFL benefits increase to 70–90% of wages, with a maximum weekly benefit of $1,681. There is no wage cap for contributions. Medicaid waivers provide home and community-based services for people with disabilities. ABLE accounts help save for disability-related expenses without losing benefits. [^2][^3][^4]
California ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Contributions are tax-free, and funds can be used for housing, education, transportation, and more. Anyone can contribute, and the account owner controls the funds. [^5]
For SSI, the federal income limit in 2025 is $943 per month for an individual. California adds a state supplement, so total payments may be higher. For SSDI, there is no strict income limit, but you must not earn more than $1,550 per month from work. ABLE accounts have a lifetime limit of $100,000 before SSI benefits are affected. [^1][^5]
If you receive too much in benefits, you must report it and may need to repay the overpayment. Report changes in income, living situation, or medical status to avoid overpayments. Keep records of all payments and communications. [^6]
Starting in 2025, California SDI and PFL benefits increase to 70–90% of wages, with a maximum weekly benefit of $1,681. Claims can be filed 30 days in advance, and payments must be issued within 14 days of claim start or receipt, whichever is later. [^4]
SDI provides short-term wage replacement if you cannot work due to illness, injury, pregnancy, or childbirth. In 2025, benefits increase to 70–90% of wages, up to $1,681 per week. You must have earned at least $300 in wages subject to SDI tax in the past 12 months. [^2][^3]
Apply online through the EDD website. File your claim up to 30 days before your leave starts. Submit medical records and proof of income. EDD must pay within 14 days of claim start or receipt, whichever is later. [^2][^3]
PFL helps caregivers take time off to care for a seriously ill family member, including a child with Rett Syndrome. Benefits are 70–90% of wages, up to $1,681 per week in 2025. You can file up to 30 days in advance. [^2][^3]
Yes, California offers Medicaid waivers for home and community-based services. These waivers help people with disabilities live at home instead of in institutions. Contact your local county social services agency for details. [^5]
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Contributions are tax-free, and funds can be used for housing, education, transportation, and more. [^5]
Disclaimer: This guide is for informational purposes only. Always check official sources for the most current eligibility and application details.
The federal SSI income limit in 2025 is $943 per month for an individual. California adds a state supplement, so total payments may be higher. ABLE accounts have a lifetime limit of $100,000 before SSI benefits are affected. [^1][^5]
If you receive an overpayment, you must report it and may need to repay the excess. Report changes in income, living situation, or medical status to avoid overpayments. Keep records of all payments and communications. [^6]
Yes, adults with Rett Syndrome may qualify for SSDI if they have enough work credits. Children may qualify for SSI if family income and resources are limited. Both programs require medical proof of disability. [^1]
Contact the California Employment Development Department (EDD) for SDI/PFL. For SSI/SSDI, call Social Security. For Medicaid waivers, contact your county social services agency. Disability Rights California offers free legal help. [^5]
Yes, SSI and SSDI offer work incentives to help people with disabilities try working without losing benefits. These include trial work periods, continued Medicaid coverage, and help with work expenses. [^1]
