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Alaska • Rare/Genetic
People with Fragile X Syndrome in Alaska may qualify for federal disability benefits like SSI and SSDI, state programs such as Adult Public Assistance, Medicaid waivers, and ABLE accounts. These programs help cover medical costs, daily living expenses, and support independence.
To qualify for federal disability benefits, you must have a medical condition that stops you from working for at least 12 months. For SSI, your income and resources must be low. For SSDI, you need enough work credits. Fragile X Syndrome can qualify if it causes significant limitations in daily life or work. Children with Fragile X Syndrome may also qualify for SSI if their condition meets Social Security’s definition of disability. ^1
In Alaska, people with Fragile X Syndrome may qualify for several state programs. Adults who are disabled and meet income and resource limits can get cash help through Adult Public Assistance (APA). Children under 19 with disabilities may qualify for Medicaid TEFRA, which helps families with high medical costs. Alaska also offers ABLE accounts, letting families save for disability-related expenses without losing benefits. ^2^4
Start here: Alaska benefits hub
These programs help cover medical costs, daily living, and support independence. [^1][^6]
These programs help cover medical costs, daily living, and support independence. [^2][^4][^5][^6]
The Alaska ABLE Plan lets people with disabilities save for qualified expenses without losing federal benefits. You can save up to $14,000 per year. Funds can be used for education, transportation, assistive technology, and more. The account is tax-advantaged, like a 529 college savings plan. [^5]
Always check current limits, as they can change.
You must report changes in income, resources, or living situation to avoid overpayments. Overpayments can lead to loss of benefits or repayment. Report changes as soon as possible to the agency that pays your benefits. [^6]
Contact Alaska Department of Health and Social Services or Comagine Health for help with applications. They can guide you through the process and answer questions.
Yes, Fragile X Syndrome can qualify for SSI and SSDI if it causes significant limitations in daily life or work. Children may qualify for SSI if their condition meets Social Security’s definition of disability. Adults may qualify for APA if they meet income and resource limits.
You can apply for SSI/SSDI online, by phone, or at a local Social Security office. You’ll need medical records and proof of disability. Most applicants are denied at first but can appeal.
Alaska offers Adult Public Assistance (APA) for adults, Medicaid TEFRA for children, and ABLE accounts for tax-free savings. Medicaid waivers provide home and community-based services.
Yes, you can open an Alaska ABLE account. This lets you save up to $14,000 per year for disability expenses without losing SSI or Medicaid benefits.
The average SSDI payment in Alaska is about $1,334 per month. The average SSI payment is about $613 per month. Amounts depend on work history, income, and resources.
You need a diagnosis and medical records showing how Fragile X Syndrome limits your daily life or work. Include doctor’s notes, test results, and treatment plans.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, children under 19 with Fragile X Syndrome may qualify for Medicaid TEFRA if they meet the medical criteria. The program uses the child’s income, not parents’.
Yes, you must report changes in income, resources, or living situation to avoid overpayments. Report changes as soon as possible to the agency that pays your benefits.
SSI is for people with low income and resources. SSDI is for those who worked and paid Social Security taxes. Both require medical proof of disability. SSI is needs-based, SSDI is work-based.
It takes about 6 months to get an initial decision for SSI/SSDI. Most applicants are denied at first but can appeal. The full process can take up to 2 years.
