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Purple··4 min read

SSI for Children: How It Works

SSI isn't just for adults—children with disabilities can qualify too. Here's what parents and guardians need to know about SSI for children.

In this article, we'll cover:

  1. Eligibility requirements for children
  2. How children's SSI is calculated
  3. Dedicated accounts for back pay
  4. What happens at age 18

1. Eligibility Requirements for Children

The child must:

  • Be under age 18
  • Have a physical or mental condition that:
    • Very seriously limits activities
    • Has lasted or expected to last 12+ months
    • Or is expected to result in death
  • Meet family income and resource limits

Disability definition for children:

  • "Marked and severe functional limitations"
  • Different from adult standard
  • Not based on ability to work
  • Based on functioning compared to peers

Family income matters:

  • Parents' income considered ("deeming")
  • More income = less SSI for child
  • Some exclusions apply
  • Different rules than adult SSI

Resource limits:

  • Still $2,000 for child
  • Parents' resources may count too
  • Some resources excluded
  • Similar rules to adults

2. How Children's SSI Is Calculated

Parental deeming:

  • Parents' income and resources "deemed" to child
  • Only for children living with parents
  • Calculations can be complex
  • Many exclusions and deductions

What's excluded from deeming:

  • SNAP benefits
  • Housing assistance
  • Need-based assistance
  • Certain exclusions for working parents

Example calculation:

  • Start with parents' gross income
  • Subtract allowable exclusions
  • Subtract parent's "allocation"
  • Subtract allocation for other children
  • Remainder is deemed to child
  • This reduces child's SSI

When deeming doesn't apply:

  • Child doesn't live with parents
  • Parental rights terminated
  • Child is in their own household
  • Different rules apply

Important: Getting a child's SSI approved can be complex due to deeming rules. Consider consulting a benefits specialist.

3. Dedicated Accounts for Back Pay

What it is:

  • Special savings account for child's SSI back pay
  • Required when back pay exceeds specific amounts
  • Managed by representative payee
  • Restricted use

When required:

  • Past-due benefits for past period > 3 months
  • Large lump sum payments
  • Ongoing installments may go here too
  • SSA will specify

What it can be used for:

  • Medical treatment and rehabilitation
  • Education
  • Job training
  • Personal needs assistance
  • Special equipment
  • Therapy services
  • Other approved expenses

What it can't be used for:

  • Food and shelter
  • Routine clothing
  • Regular ongoing expenses
  • Things SSI is meant to cover

Why it matters:

  • Money in dedicated account excluded from resources
  • Doesn't count toward $2,000 limit
  • Protects child's ongoing eligibility
  • Must keep separate from other funds

4. What Happens at Age 18

The redetermination:

  • SSA reviews case at 18
  • Child's SSI doesn't automatically continue
  • Must meet adult disability definition
  • Different standard than childhood

Adult standard:

  • Must be unable to engage in SGA
  • Due to medically determinable impairment
  • Expected to last 12+ months or result in death
  • Work-based, not functioning-based

Key changes:

  • Parents' income/resources no longer count
  • Own income and resources matter
  • May now qualify for more (or less)
  • Fresh evaluation

Preparing for 18:

  • Gather medical documentation
  • Document ongoing limitations
  • Consider work history (or inability)
  • Be ready for evaluation

If denied at 18:

  • Can appeal
  • May qualify for vocational rehabilitation
  • Other support programs may help
  • Don't assume it's over

Being a Representative Payee

For parent of child on SSI:

  • You manage the benefits
  • Use funds for child's benefit
  • Keep records
  • File annual accounting

Responsibilities:

  • Use funds for child's current needs
  • Save excess for child (in dedicated account if required)
  • Not your money—it's the child's
  • Account to SSA annually

What to track:

  • All income (SSI)
  • All expenses paid from SSI
  • Keep receipts
  • Document everything

How Purple Helps

Purple can help manage a child's SSI:

  • Track benefit deposits
  • Monitor resources
  • Keep spending records
  • Easy accounting documentation
  • Stay organized for SSA

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