SSI isn't just for adults—children with disabilities can qualify too. Here's what parents and guardians need to know about SSI for children.
In this article, we'll cover:
- Eligibility requirements for children
- How children's SSI is calculated
- Dedicated accounts for back pay
- What happens at age 18
1. Eligibility Requirements for Children
The child must:
- Be under age 18
- Have a physical or mental condition that:
- Very seriously limits activities
- Has lasted or expected to last 12+ months
- Or is expected to result in death
- Meet family income and resource limits
Disability definition for children:
- "Marked and severe functional limitations"
- Different from adult standard
- Not based on ability to work
- Based on functioning compared to peers
Family income matters:
- Parents' income considered ("deeming")
- More income = less SSI for child
- Some exclusions apply
- Different rules than adult SSI
Resource limits:
- Still $2,000 for child
- Parents' resources may count too
- Some resources excluded
- Similar rules to adults
2. How Children's SSI Is Calculated
Parental deeming:
- Parents' income and resources "deemed" to child
- Only for children living with parents
- Calculations can be complex
- Many exclusions and deductions
What's excluded from deeming:
- SNAP benefits
- Housing assistance
- Need-based assistance
- Certain exclusions for working parents
Example calculation:
- Start with parents' gross income
- Subtract allowable exclusions
- Subtract parent's "allocation"
- Subtract allocation for other children
- Remainder is deemed to child
- This reduces child's SSI
When deeming doesn't apply:
- Child doesn't live with parents
- Parental rights terminated
- Child is in their own household
- Different rules apply
Important: Getting a child's SSI approved can be complex due to deeming rules. Consider consulting a benefits specialist.
3. Dedicated Accounts for Back Pay
What it is:
- Special savings account for child's SSI back pay
- Required when back pay exceeds specific amounts
- Managed by representative payee
- Restricted use
When required:
- Past-due benefits for past period > 3 months
- Large lump sum payments
- Ongoing installments may go here too
- SSA will specify
What it can be used for:
- Medical treatment and rehabilitation
- Education
- Job training
- Personal needs assistance
- Special equipment
- Therapy services
- Other approved expenses
What it can't be used for:
- Food and shelter
- Routine clothing
- Regular ongoing expenses
- Things SSI is meant to cover
Why it matters:
- Money in dedicated account excluded from resources
- Doesn't count toward $2,000 limit
- Protects child's ongoing eligibility
- Must keep separate from other funds
4. What Happens at Age 18
The redetermination:
- SSA reviews case at 18
- Child's SSI doesn't automatically continue
- Must meet adult disability definition
- Different standard than childhood
Adult standard:
- Must be unable to engage in SGA
- Due to medically determinable impairment
- Expected to last 12+ months or result in death
- Work-based, not functioning-based
Key changes:
- Parents' income/resources no longer count
- Own income and resources matter
- May now qualify for more (or less)
- Fresh evaluation
Preparing for 18:
- Gather medical documentation
- Document ongoing limitations
- Consider work history (or inability)
- Be ready for evaluation
If denied at 18:
- Can appeal
- May qualify for vocational rehabilitation
- Other support programs may help
- Don't assume it's over
Being a Representative Payee
For parent of child on SSI:
- You manage the benefits
- Use funds for child's benefit
- Keep records
- File annual accounting
Responsibilities:
- Use funds for child's current needs
- Save excess for child (in dedicated account if required)
- Not your money—it's the child's
- Account to SSA annually
What to track:
- All income (SSI)
- All expenses paid from SSI
- Keep receipts
- Document everything
How Purple Helps
Purple can help manage a child's SSI:
- Track benefit deposits
- Monitor resources
- Keep spending records
- Easy accounting documentation
- Stay organized for SSA