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North Carolina • Rare/Genetic
People with Ehlers-Danlos Syndrome in North Carolina may qualify for federal disability benefits like SSDI and SSI, as well as state programs such as Medicaid waivers and ABLE accounts. This guide explains eligibility, how to apply, and what support is available.
To qualify for Social Security Disability Insurance (SSDI), you must have a medical condition that prevents you from working for at least 12 months and meet work credit requirements. For Supplemental Security Income (SSI), you must have limited income and resources, and your disability must meet Social Security’s definition. Ehlers-Danlos Syndrome can qualify if it severely limits your ability to work and is expected to last at least a year or result in death. The Social Security Administration uses a strict medical review process to determine eligibility [1].
In North Carolina, eligibility for state disability programs often depends on your employment status and years of service. For example, state employees in the Teachers’ and State Employees’ Retirement System (TSERS) may qualify for disability benefits after one year of service, with short-term and long-term plans available. If you have fewer than five years of service, benefits may be limited. Medicaid waivers for home and community-based services are available for those with intellectual or developmental disabilities, but eligibility can sometimes extend to rare genetic conditions like Ehlers-Danlos Syndrome if they cause significant functional limitations [2].
ABLE accounts let you save money for disability-related expenses without losing eligibility for means-tested benefits like SSI and Medicaid. In North Carolina, you can open an ABLE account through the NC ABLE Program. Contributions are limited, but earnings grow tax-free. Withdrawals for qualified expenses are also tax-free [4].
For SSI, the income limit in 2025 is $943/month for an individual and $1,415/month for a couple. SSDI has no strict income limit, but you must not earn more than the Substantial Gainful Activity (SGA) threshold, which is $1,550/month in 2025 for non-blind individuals. Medicaid income limits vary based on household size and program [1][4].
It’s important to report any changes in your income, employment, or health to Social Security and other benefit programs. Failing to report changes can lead to overpayments, which you may have to repay. Always keep records of your reports and follow up to confirm they were received [4].
Contact Social Security at 1-800-772-1213 or your local NCWorks Career Center for free help with your disability application.
Yes, if your Ehlers-Danlos Syndrome prevents you from working for at least 12 months and you meet the work credit requirements, you may qualify for SSDI. Social Security reviews your medical records to determine eligibility.
North Carolina offers disability income plans for state employees through TSERS, Medicaid waivers for home and community-based services, and ABLE accounts for disability-related savings.
Contact your local Department of Social Services (DSS) office or visit nc.gov for information on Medicaid waivers. You may need to provide medical documentation and proof of income.
In 2025, the SSI income limit is $943/month for an individual and $1,415/month for a couple. SSDI has no strict income limit, but you must not earn more than the SGA threshold.
Yes, you can work, but your earnings must stay below the SGA threshold. Social Security offers work incentives to help you try working without losing benefits.
An ABLE account lets you save money for disability-related expenses without losing eligibility for means-tested benefits. Withdrawals for qualified expenses are tax-free.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Yes, you must report any changes to Social Security and other benefit programs to avoid overpayments and keep your benefits active.
Yes, state employees in TSERS may qualify for short-term and long-term disability benefits after one year of service. Benefits are limited if you have fewer than five years of service.
The SGA threshold for SSDI in 2025 is $1,550/month for non-blind individuals and $2,590/month for blind individuals. Earning above this amount may affect your eligibility.
You can get help from Social Security, Employment and Independence for People with Disabilities (EIPD), or local NCWorks Career Centers. They offer guidance and support throughout the application process.
