People with Amyotrophic Lateral Sclerosis (ALS) in North Carolina can access federal disability benefits like SSDI and SSI, state disability programs, Medicaid, and support services. This guide explains eligibility, how to apply, and what benefits are available.
To qualify for federal disability benefits in North Carolina, you must have a medical condition that prevents you from working and is expected to last at least a year or result in death. For Social Security Disability Insurance (SSDI), you need enough work credits based on your earnings. Supplemental Security Income (SSI) is for those with limited income and resources. ALS is a Compassionate Allowances condition, meaning applications are fast-tracked by the Social Security Administration (SSA) for quicker approval[2][7].
In North Carolina, state employees who participate in the Teachers’ and State Employees’ Retirement System (TSERS) may qualify for the Disability Income Plan of North Carolina (DIP-NC). Eligibility depends on years of creditable service. Short-term disability (STD) pays 50% of monthly salary (up to $3,000/month) after a 60-day waiting period, for up to 365 days. Long-term disability (LTD) may follow if the disability continues. Employees with fewer than five years of service may have limited benefits[1][8].
ABLE accounts allow people with disabilities to save money without losing eligibility for means-tested benefits. North Carolina offers ABLE accounts for eligible residents. Contributions are tax-free, and funds can be used for qualified disability expenses[4].
For SSI, the federal income limit is $943/month in 2025 for an individual. For Medicaid, income limits vary based on household size and program. Check with your local Department of Social Services for current limits[4].
It’s important to report any changes in income, resources, or living situation to avoid overpayments. If you receive an overpayment, contact Social Security or your state agency to discuss repayment options[4].
ALS is a Compassionate Allowances condition, so Social Security fast-tracks applications for quicker approval. You may receive benefits within weeks instead of months.
Yes, ALS is a Compassionate Allowances condition, so Social Security fast-tracks applications for quicker approval. You may receive benefits within weeks instead of months[2][7].
State employees in TSERS may qualify for the Disability Income Plan of North Carolina (DIP-NC), which provides short-term and long-term disability benefits based on years of service[1][8].
You can apply for Medicaid through your local Department of Social Services or online at nc.gov. Medicaid provides health coverage for low-income individuals and those with disabilities[4].
An ABLE account allows people with disabilities to save money without losing eligibility for means-tested benefits. North Carolina offers ABLE accounts for eligible residents. You can open one online or through a financial institution[4].
Yes, Social Security offers work incentives that allow you to work and keep your benefits. Contact Employment and Independence for People with Disabilities (EIPD) for support[4].
SSDI is for those who have worked and paid Social Security taxes. SSI is for those with limited income and resources. Both provide monthly payments to people with disabilities[4].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Yes, North Carolina offers Medicaid waivers for home and community-based services (HCBS) for people with disabilities, including ALS. These waivers help pay for services not covered by regular Medicaid[4].
Because ALS is a Compassionate Allowances condition, applications are fast-tracked and you may receive benefits within weeks instead of months[2][7].
North Carolina offers support services through the North Carolina Assistive Technology Program (NCATP), Employment and Independence for People with Disabilities (EIPD), and local NCWorks Career Centers[3][4].
Yes, after a 24-month waiting period from the start date of SSDI, you become eligible for Medicare in North Carolina[5].
