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Missouri • Rare/Genetic
People with Williams Syndrome in Missouri may qualify for federal disability benefits like SSI and SSDI, plus state programs such as Medicaid waivers and ABLE accounts. This guide explains eligibility, how to apply, and key changes for 2025.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with Williams Syndrome, you must meet the Social Security Administration’s (SSA) definition of disability. This means your condition must prevent you from doing substantial work for at least 12 months. For children, the rules are different: a child with Williams Syndrome may qualify if the condition severely limits their activities. Adults with Williams Syndrome who became disabled before age 22 may also qualify for benefits based on a parent’s work record. The SSA reviews medical records and work history to decide eligibility.
Learn more about federal eligibility.
In Missouri, people with Williams Syndrome may also qualify for state-specific programs. Missouri Medicaid offers waivers for home and community-based services (HCBS), which can help with care at home or in the community. These waivers are for people with developmental disabilities, including Williams Syndrome. Missouri also has the MO ABLE program, which lets people with disabilities save money without losing SSI or Medicaid benefits. To qualify for state programs, you may need to meet income and asset limits, and show that your disability affects your daily life.
Learn more about federal programs.
The MO ABLE program lets people with Williams Syndrome save money without losing SSI or Medicaid benefits. You can use ABLE funds for qualified disability expenses like education, housing, and transportation. Missouri residents can open an ABLE account online or by phone. There are annual and lifetime contribution limits, but the account does not count as a resource for SSI or Medicaid.
Learn more about income limits.
If your income or health changes, you must report it to Social Security and Medicaid. Failing to report changes can lead to overpayments, which you may have to repay. You can report changes online, by phone, or in person. If you get an overpayment notice, you can request a waiver or set up a repayment plan.
Yes, if Williams Syndrome meets Social Security’s disability criteria. You must show it prevents you from working for at least 12 months. Children may qualify if the condition severely limits their activities.
The 2025 Substantial Gainful Activity (SGA) limit is expected to be about $1,620/month for non-blind individuals and $2,700/month for blind individuals. Earning above this may affect SSDI benefits.
Contact the Missouri Department of Health and Senior Services. You may need to join a waiting list. Medicaid waivers help people with developmental disabilities get home and community-based services.
Yes, the MO ABLE program lets you save up to $18,000/year without losing SSI or Medicaid benefits. Funds can be used for qualified disability expenses.
The maximum SSDI payment in 2025 is about $3,917/month, after a 2.5% cost-of-living increase. Actual payments depend on your work history.
Yes, you must report changes to Social Security and Medicaid. Not reporting can lead to overpayments, which you may have to repay.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, if the disability began before age 22, adults may qualify for Disabled Adult Child benefits on a parent’s Social Security record.
For a single person, the MO HealthNet income limit is $13,303/year (133% FPL). Limits vary by household size.
Working may reduce SSI payments, but SSDI has work incentives. The SGA limit is $1,620/month in 2025. Report all work to avoid overpayments.
Call Social Security at 1-800-772-1213, Missouri Protection and Advocacy Services at 1-800-392-8667, or your local Family Support Division office.
