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Missouri • Rare/Genetic
People with Rett Syndrome in Missouri can get help from federal and state programs. These include Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid waivers, and ABLE accounts. In 2025, benefit amounts will increase due to a 2.5% cost-of-living adjustment. Learn how to apply and what you need to qualify.
To get federal disability benefits for Rett Syndrome, you must meet Social Security's definition of disability. This means your condition must be severe and expected to last at least 12 months or result in death. For adults, you need a certain number of work credits (usually 40, with 20 in the last 10 years). For children, the rules are different. The child must have a qualifying disability and meet income and resource limits for SSI. The Social Security Administration (SSA) reviews each case to see if it meets the rules. The rules are the same in every state, but some programs have state-specific rules.
Source: SSA Disability Qualifications (2024-11-06)
In Missouri, people with Rett Syndrome can get extra help from state programs. Missouri offers Medicaid waivers for people with disabilities, which can pay for home care, therapy, and other services. The MO ABLE program lets people with disabilities save money without losing benefits. Missouri also has income limits for Medicaid and other programs. These limits change each year. For 2025, the income limits for MO HealthNet (Medicaid) are:
| Household Size | Max Annual Income | |----------------|-------------------| | 1 | $13,303 | | 2 | $17,978 | | 3 | $22,653 | | 4 | $27,328 |
These limits are for MO HealthNet for the Aged and Disabled. Limits for other programs may be different. Check with your local Family Support Division office for the most up-to-date info.
Source: MO HealthNet Income Limits (2024-11-06) Source: MO ABLE Program (2024-11-06)
Source: SSA Disability Application (2024-11-06) Source: MO HealthNet Application (2024-11-06) Source: MO ABLE Program (2024-11-06)
Source: SSA Disability Benefits (2024-11-06)
Missouri offers several programs for people with disabilities:
To apply for Medicaid waivers or MO HealthNet, contact your local Family Support Division office. For ABLE accounts, visit the MO ABLE website.
Source: MO HealthNet (2024-11-06) Source: MO ABLE Program (2024-11-06) Source: Missouri Vocational Rehabilitation (2024-11-06)
The MO ABLE program lets people with disabilities save money without losing federal benefits. You can save up to $18,000 per year. The account can be used for qualified disability expenses like housing, education, and health care. To open an account, visit the MO ABLE website.
Source: MO ABLE Program (2024-11-06)
| Program | 1 Person | 2 People | |---------|----------|----------| | MO HealthNet (Aged/Disabled) | $13,303 | $17,978 | | MO HealthNet (Blind) | $15,650 | $21,150 | | Federal Poverty Level | $15,650 | $21,150 |
These are the 2025 income limits for MO HealthNet. Limits for other programs may be different. Check with your local Family Support Division office for the most up-to-date info.
Source: MO HealthNet Income Limits (2024-11-06)
If your income or living situation changes, you must report it to Social Security and Medicaid. Not reporting changes can lead to overpayments and penalties. Report changes as soon as possible. You can report changes online, by phone, or in person.
Source: SSA Reporting Changes (2024-11-06)
Call Social Security at 1-800-772-1213 or your local Family Support Division office for help with your application.
Rett Syndrome is a rare genetic disorder that affects brain development. It mostly affects girls and causes problems with movement, speech, and behavior. Most people with Rett Syndrome need lifelong care.
To qualify, your Rett Syndrome must be severe and expected to last at least 12 months or result in death. Adults need work credits for SSDI or meet income limits for SSI. Children must meet income limits for SSI.
SSDI is for people who have worked and paid Social Security taxes. SSI is for people with low income and resources. Both can help people with Rett Syndrome.
In 2025, the maximum SSDI payment is about $3,917 per month. The federal SSI payment is $943 per month for an individual. Actual amounts depend on your income and work history.
Yes, but there are limits. In 2025, you can earn up to $1,620 per month (or $2,700 if blind) without losing benefits. This is called the Substantial Gainful Activity (SGA) limit.
A Medicaid waiver pays for home care, therapy, and other services for people with disabilities. You must meet income and disability requirements to qualify.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most up-to-date rules and requirements.
Apply through the Family Support Division. Call 1-855-373-4636 for help. You will need to provide proof of income and disability.
An ABLE account lets people with disabilities save money without losing federal benefits. You can save up to $18,000 per year for qualified disability expenses.
Yes, you must report changes in income, living situation, or health to Social Security and Medicaid. Not reporting changes can lead to overpayments and penalties.
Call Social Security at 1-800-772-1213. For Medicaid, call the Family Support Division at 1-855-373-4636. For ABLE accounts, visit the MO ABLE website.
