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Missouri • Rare/Genetic
People with Prader-Willi Syndrome in Missouri may qualify for federal and state disability benefits, including Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid waivers, and ABLE accounts. This guide covers eligibility, how to apply, and key changes for 2025.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with Prader-Willi Syndrome, you must meet the Social Security Administration's (SSA) definition of disability. This means your condition must prevent you from working and is expected to last at least 12 months or result in death. Prader-Willi Syndrome is listed in the SSA's Blue Book under Section 10.00 (Genetic Disorders), making it easier to qualify for benefits.
For SSDI, you generally need 40 work credits, with 20 earned in the last 10 years. For SSI, there are no work credit requirements, but you must have limited income and resources. Children with Prader-Willi Syndrome may qualify for benefits as dependents or disabled adults if their parent is receiving Social Security benefits.
In 2025, the Substantial Gainful Activity (SGA) limit for non-blind individuals is $1,620 per month, and for blind individuals, it is $2,700 per month. Earning above these limits may affect your benefits[1].
In Missouri, people with Prader-Willi Syndrome may also qualify for state-specific programs, such as Medicaid waivers and ABLE accounts. Missouri's Medicaid waivers provide home and community-based services (HCBS) for people with developmental disabilities, including Prader-Willi Syndrome. These waivers can help cover costs for therapies, respite care, and other supports.
Missouri's ABLE program allows individuals with disabilities to save money without losing federal benefits. The program is designed for people who became disabled before age 26. Missouri also offers MO HealthNet for the Aged and Disabled, which provides health coverage for people with disabilities who meet income and resource limits. In 2025, the maximum annual income for MO HealthNet for the Aged and Disabled is $13,303 for a single person and $17,978 for a couple[5].
The Missouri ABLE program allows individuals with disabilities to save money without losing federal benefits. The program is designed for people who became disabled before age 26. Contributions to an ABLE account are not subject to federal income tax, and withdrawals for qualified disability expenses are tax-free. Missouri also offers a state tax deduction for contributions to an ABLE account[7].
| Program | 2025 Maximum Annual Income (Single) | 2025 Maximum Annual Income (Couple) | | --- | --- | --- | | MO HealthNet for the Aged and Disabled | $13,303 | $17,978 | | MO HealthNet for the Blind | $15,650 | $21,150 | | SSI | $10,980 | $16,470 | | SSDI | No income limit, but SGA limit is $1,620/month for non-blind, $2,700/month for blind[1][5].
It is important to report any changes in income, living situation, or medical condition to the Social Security Administration and Missouri DHSS to avoid overpayments. Overpayments can result in penalties or loss of benefits. If you receive an overpayment, contact the Social Security Administration or Missouri DHSS to set up a repayment plan[4].
In 2025, Social Security benefits will increase by 2.5% due to the cost-of-living adjustment (COLA). The SGA limit for non-blind individuals is $1,620 per month, and for blind individuals, it is $2,700 per month. Stay informed about these changes to ensure you receive the correct benefits.
Prader-Willi Syndrome is a rare genetic disorder that affects appetite, growth, metabolism, and behavior. It is caused by a deletion or abnormality on chromosome 15. People with Prader-Willi Syndrome may have intellectual disabilities, obesity, and behavioral problems.
To qualify for SSDI with Prader-Willi Syndrome, you must meet the Social Security Administration's definition of disability. This means your condition must prevent you from working and is expected to last at least 12 months or result in death. You also need 40 work credits, with 20 earned in the last 10 years[1].
To qualify for SSI with Prader-Willi Syndrome, you must meet the Social Security Administration's definition of disability and have limited income and resources. There are no work credit requirements for SSI[1].
In 2025, the SGA limit for non-blind individuals is $1,620 per month, and for blind individuals, it is $2,700 per month. The maximum annual income for SSI is $10,980 for a single person and $16,470 for a couple. There is no income limit for SSDI, but earning above the SGA limit may affect your benefits[1][5].
Missouri Medicaid waivers provide home and community-based services (HCBS) for people with developmental disabilities, including Prader-Willi Syndrome. These waivers can help cover costs for therapies, respite care, and other supports[5].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
An ABLE account is a savings account for people with disabilities that allows them to save money without losing federal benefits. The program is designed for people who became disabled before age 26. Missouri offers a state tax deduction for contributions to an ABLE account[7].
To apply for Missouri Medicaid waivers, contact the Missouri Department of Health and Senior Services (DHSS). You will need to provide medical records and proof of disability. The application process may take several months[5].
The cost-of-living adjustment (COLA) for 2025 is 2.5%. This means Social Security benefits will increase by 2.5% to keep pace with inflation[1].
Yes, children with Prader-Willi Syndrome may qualify for benefits as dependents or disabled adults if their parent is receiving Social Security benefits. Children who were receiving benefits as a minor child on a parent’s Social Security record may be eligible to continue receiving benefits on that parent’s record upon reaching age 18 if they have a qualifying disability[4].
If you earn more than the SGA limit, your SSDI or SSI benefits may be suspended or terminated. The SGA limit for non-blind individuals is $1,620 per month, and for blind individuals, it is $2,700 per month in 2025[1].
