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Missouri • Rare/Genetic
People with Cystic Fibrosis in Missouri may qualify for Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid, and other state programs. This guide explains eligibility, how to apply, and what changes are coming in 2025.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with Cystic Fibrosis, you must meet the Social Security Administration's definition of disability. This means your condition must be severe enough to stop you from working for at least 12 months or be expected to result in death. Cystic Fibrosis is listed in the Social Security Blue Book under Section 3.04, which covers chronic respiratory disorders. If your symptoms match the listing, you may qualify automatically. If not, you may still qualify if your condition is equally severe. You must also meet work and income requirements for SSDI or SSI.
For children with Cystic Fibrosis, eligibility is based on the parent's work record or the child's own disability and family income.
Source: SSA Disability Qualifications (accessed 2025-11-06)
In Missouri, people with Cystic Fibrosis may qualify for additional state benefits beyond federal programs. Missouri offers Medicaid waivers for people with disabilities, which can help cover costs not paid by regular Medicaid. These waivers provide services like home care, therapy, and assistive devices. To qualify, you must meet both federal disability criteria and Missouri's income and asset limits.
Missouri also has the MO ABLE program, which lets people with disabilities save money without losing benefits. The program is for those who became disabled before age 26. Missouri's income limits for Medicaid and other programs are updated each year. For 2025, the maximum annual income for a household of one is $20,814 for some programs, but this varies by program and household size.
Source: MO HealthNet Income Limits 2025 (accessed 2025-11-06) Source: MO ABLE Program (accessed 2025-11-06)
Source: SSA How to Apply (accessed 2025-11-06) Source: MO HealthNet Application (accessed 2025-11-06) Source: MO ABLE Application (accessed 2025-11-06)
Source: SSA Disability Programs (accessed 2025-11-06)
Source: MO HealthNet Income Limits 2025 (accessed 2025-11-06) Source: MO ABLE Program (accessed 2025-11-06) Source: MO Medicaid Waivers (accessed 2025-11-06)
The MO ABLE program lets people with disabilities save money without losing federal benefits. You can use the account for qualified disability expenses like medical care, education, and housing. To qualify, you must have become disabled before age 26. The program is run by the Missouri Developmental Disabilities Council.
Source: MO ABLE Program (accessed 2025-11-06)
Missouri's income limits for Medicaid and other programs are updated each year. For 2025, the maximum annual income for a household of one is $20,814 for some programs, but this varies by program and household size. For example, MO HealthNet for the Aged and Disabled has a limit of $13,303 for a household of one, while MO HealthNet for the Blind has a limit of $15,650.
Source: MO HealthNet Income Limits 2025 (accessed 2025-11-06)
If your income, resources, or living situation changes, you must report it to Social Security and Missouri agencies. Failing to report changes can result in overpayments, which you may have to repay. Report changes as soon as possible to avoid problems.
Source: SSA Reporting Changes (accessed 2025-11-06)
In 2025, Social Security Disability benefits will increase by about 2.5% due to the cost-of-living adjustment. This means your monthly payment will go up to help keep up with inflation.
Yes, if your Cystic Fibrosis is severe enough to stop you from working for at least 12 months. You must also meet work credit requirements. Cystic Fibrosis is listed in the Social Security Blue Book, so you may qualify automatically if your symptoms match the listing.
The maximum SSDI payment in Missouri in 2025 is about $3,917 per month. This is a 2.5% increase from 2024 due to the cost-of-living adjustment.
To apply for Medicaid waivers in Missouri, contact your local Family Support Division office. You must meet federal disability criteria and Missouri's income and asset limits. The waivers can help pay for home care, therapy, and assistive devices.
The MO ABLE program lets people with disabilities save money without losing federal benefits. You can use the account for qualified disability expenses. To qualify, you must have become disabled before age 26.
For 2025, the maximum annual income for a household of one is $20,814 for some Medicaid programs in Missouri. This varies by program and household size. For example, MO HealthNet for the Aged and Disabled has a limit of $13,303 for a household of one.
Yes, you can work while getting disability benefits, but there are income limits. For SSDI, the Substantial Gainful Activity (SGA) limit in 2025 is about $1,620 per month for non-blind individuals. Exceeding this limit may affect your benefits.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for your specific situation.
If your income, resources, or living situation changes, report it to Social Security and Missouri agencies as soon as possible. Failing to report changes can result in overpayments, which you may have to repay.
SSI is for people with limited income and resources, regardless of work history. SSDI is for people who have worked and paid Social Security taxes. Both programs provide monthly payments, but eligibility and payment amounts differ.
Yes, children with Cystic Fibrosis may qualify for SSI or Medicaid based on family income. Children who were receiving benefits as a minor may continue to receive benefits if they have a qualifying disability.
The cost-of-living adjustment for disability benefits in 2025 is about 2.5%. This means your monthly payment will increase by 2.5% to help keep up with inflation.
