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Illinois • Rare/Genetic
People with Prader-Willi Syndrome in Illinois may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid, and ABLE accounts. These programs help cover medical care, living expenses, and support independence.
People with Prader-Willi Syndrome may qualify for federal disability benefits if their condition causes marked and severe functional limitations. For Supplemental Security Income (SSI), children must not earn more than $1,620 per month in 2025 (or $2,700 if blind). Adults must meet the same Substantial Gainful Activity (SGA) limits. Social Security Disability Insurance (SSDI) requires work credits and a qualifying disability. Both programs review medical evidence and functional limitations to decide eligibility[3][7].
In Illinois, adults with Prader-Willi Syndrome who work may qualify for the Health Benefits for Workers with Disabilities (HBWD) program. This program allows individuals aged 16–64 to keep Medicaid coverage while working, with income limits up to $4,393 per month for a single person and $5,962 for a couple. HBWD also allows up to $25,000 in assets, which is higher than most Medicaid programs[1]. Illinois also offers ABLE accounts, which let people with disabilities save for qualified expenses without losing benefits[8].
Illinois ABLE accounts let people with disabilities save for qualified expenses without losing benefits. You can save up to $17,000 per year (2025 limit) and up to $500,000 total. Funds can be used for housing, education, transportation, and other disability-related costs[8].
Report changes in income, assets, or living situation to avoid overpayments. Overpayments can lead to benefit reductions or repayment. Use the SSI & SSDI Work Incentives guide to understand reporting rules[4].
Contact the DHS Benefits Planning Program at 1-217-588-6326 or the Ticket to Work Help Line at 1-866-968-7842 for expert help with applications.
People with Prader-Willi Syndrome may qualify for SSI, SSDI, and Medicaid. SSI provides cash for those with limited income, SSDI for those with work credits, and Medicaid for health coverage[3][5][7].
Yes, Illinois offers the HBWD program for workers with disabilities. You can work and keep Medicaid coverage if your income is below the limit. SSI and SSDI also have work incentives[1][4].
You can apply online at ssa.gov, by phone at 1-800-772-1213, or in person at a Social Security office. You will need medical records and proof of income[5].
The income limit for HBWD is $4,393 per month for a single person and $5,962 for a couple. The asset limit is $25,000[1].
Yes, Illinois ABLE accounts let you save for disability expenses without losing benefits. You can save up to $17,000 per year and up to $500,000 total[8].
Earnings above the SGA limit ($1,620/month in 2025) may affect SSI and SSDI benefits. Work incentives help you keep benefits while working[3][7].
Disclaimer: This guide provides general information about disability benefits in Illinois. For specific eligibility and application details, contact the relevant agencies.
The maximum SSI payment in Illinois is $967 per month for an individual and $1,450 for a couple in 2025[6].
Yes, report changes in income, assets, or living situation to avoid overpayments. Overpayments can lead to benefit reductions or repayment[4].
The asset limit for HBWD is $25,000, which is higher than most Medicaid programs[1].
Contact the DHS Benefits Planning Program at 1-217-588-6326, the Ticket to Work Help Line at 1-866-968-7842, or your local DHS Family Community Resource Center[4].
