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Illinois • Neurological/Developmental
People with epilepsy in Illinois can access federal and state benefits, including SSI, SSDI, Medicaid, and specialized programs. Eligibility depends on income, assets, and medical criteria. This guide explains how to apply and what support is available.
To qualify for federal disability benefits like SSI or SSDI, epilepsy must result in marked and severe functional limitations that have lasted or are expected to last at least 12 months. For SSI, income and resources are limited. For SSDI, you must have worked in jobs covered by Social Security and have enough work credits. Children with epilepsy may also qualify for SSI if their condition meets the disability criteria and family income is within limits. The Social Security Administration reviews medical records and functional limitations to determine eligibility[3][4][6].
In Illinois, adults with epilepsy aged 16–64 who work may qualify for Health Benefits for Workers with Disabilities (HBWD). HBWD allows up to $25,000 in assets and monthly premiums based on income. The income limit is $4,393 for a single person and $5,962 for a couple. You must have a disability that limits work and meet Medicaid eligibility rules. Children with epilepsy may qualify for Medicaid or SSI if their condition causes marked and severe functional limitations and family income is within limits[1][4][5].
An IL ABLE account allows people with epilepsy to save money for disability-related expenses without losing SSI or Medicaid benefits. To qualify, the onset of disability must have occurred before age 26 (increasing to age 46 in 2026). You must be receiving SSI or SSDI, or have a condition on the SSA’s Compassionate Allowances list, or have a written diagnosis from a physician. You self-certify eligibility when applying[2].
If your income or resources change, you must report it to Social Security or the Illinois Department of Human Services. Failing to report changes can result in overpayments and penalties. Keep records of all income and resource changes and report them promptly to avoid issues[8].
Contact the Illinois Department of Human Services Help Line at 1-800-843-6154 for help with Medicaid or HBWD applications. For SSI/SSDI, call Social Security at 1-800-772-1213.
Yes, epilepsy can qualify for SSI, SSDI, and Medicaid if it causes marked and severe functional limitations. You must provide medical records showing how epilepsy affects your daily life and ability to work[3][4].
The maximum SSI benefit for an individual is $967 per month as of January 2025. Income and resource limits apply, and your eligibility depends on your total income and resources[8].
You can apply for Medicaid online through the Illinois Department of Human Services website or contact your local Family Community Resource Center. You will need to provide proof of income, residency, and medical records[1][5].
HBWD is a Medicaid program for workers with disabilities aged 16–64 in Illinois. It allows up to $25,000 in assets and monthly premiums based on income. You must have a disability that limits work and meet Medicaid eligibility rules[1].
Yes, you can work and receive disability benefits. There are work incentives that help you keep benefits while working. The SGA limit for 2025 is expected to be around $1,620 per month for non-blind individuals[3][4].
An ABLE account lets people with epilepsy save money for disability-related expenses without losing SSI or Medicaid benefits. You must have a disability that started before age 26 (increasing to age 46 in 2026) and meet other eligibility criteria[2].
Disclaimer: This guide is for informational purposes only. Always verify eligibility and requirements with official agencies.
Yes, children with epilepsy may qualify for SSI, Medicaid, or Medicaid waivers if their condition causes marked and severe functional limitations and family income is within limits. Early intervention services may also be available[4][9].
You must report changes in income or resources to Social Security or the Illinois Department of Human Services. Failing to report changes can result in overpayments and penalties. Keep records and report changes promptly[8].
You need medical records showing your epilepsy diagnosis, treatment history, and how it affects your daily life and ability to work. A written diagnosis from a physician is required for some programs[2][4].
Yes, the Benefit Access Program offers free transit for seniors and disabled individuals aged 16+ with income limits. You can apply online or contact the Illinois Department on Aging[7].
