If you have Spina Bifida in Wisconsin, you may qualify for federal and state disability benefits, Medicaid waivers, ABLE accounts, and more. This guide covers eligibility, key programs, how to apply, and where to get expert help in Wisconsin.
Most federal disability benefits—SSI, SSDI, Medicare, and Medicaid—require proof of a qualifying disability, such as Spina Bifida, and meeting income and asset rules. SSDI requires enough work credits; SSI is for those with limited income and resources, regardless of work history. Children and adults with Spina Bifida can both qualify, but the rules differ by age and living situation[6][9][10]. Federal programs have strict medical, income, and asset requirements, and the SSA uses a “Listing of Impairments” to determine if Spina Bifida automatically qualifies. If not, you may qualify under other criteria. The Ticket to Work program supports adults ages 18–64 who want to work while keeping their benefits[6]. Always report changes in income, assets, or medical condition promptly to avoid overpayments.
Wisconsin’s Aging and Disability Resource Centers (ADRCs) provide Disability Benefit Specialists who help people with Spina Bifida and other physical disabilities (ages 18–59) navigate state and federal benefits, including Medicaid, Medicare, Social Security, low-income programs, and private insurance[1][4]. Eligibility for Wisconsin Medicaid waivers (such as Family Care and IRIS) depends on both disability and income thresholds. For disability retirement from the Wisconsin Retirement System, you must be unable to work due to your disability, and there are annual earnings limits ($20,757 in 2025) if you try to work while receiving benefits[3]. The Disability Rights Wisconsin Ombudsman program helps those ages 18–59 use Medicaid-funded long-term supports to live at home. State-specific programs may have waiting lists or additional application steps, so it’s important to contact your local ADRC for guidance tailored to your situation[1][4].
Start by contacting your local Wisconsin Aging and Disability Resource Center (ADRC)—they can connect you with a Disability Benefit Specialist for free, confidential help with SSI, SSDI, Medicaid, Medicare, and other programs[1][4][6]. Specialists can help complete applications, gather medical evidence, and represent you in appeals, if needed. If you are employed by the State of Wisconsin, check eligibility for Wisconsin Retirement System disability benefits online or by phone[3]. Use official government websites (SSA, Wisconsin DHS) to apply online, by phone, or in person. Keep records of all documents, and promptly report any changes in income or medical status.
If you have Spina Bifida and live in Wisconsin, here is a step-by-step guide to applying for benefits:
If you have Spina Bifida, you may qualify for several federal programs:
These programs have strict eligibility rules, and denials are common—expert help from a Disability Benefit Specialist can increase your chances of approval.
Wisconsin offers state-specific supports for people with Spina Bifida and other disabilities:
ABLE accounts let Wisconsin residents with Spina Bifida save money without losing key benefits like SSI or Medicaid. These accounts are tax-advantaged, and funds can pay for housing, transportation, assistive tech, and healthcare expenses not covered by insurance[6]. Up to $100,000 in ABLE savings does not count toward SSI asset limits. ABLE account withdrawals for qualified expenses are tax-free, and contributions can be made by the account holder, family, or friends. Learn more on the ABLE National Resource Center website[6].
Wisconsin Retirement System disability benefits have a strict earnings limit—in 2025, if you earn more than $20,757 from work, your disability benefit may be suspended[3]. SSI has its own income and asset limits, and earnings from work can affect benefit amounts. Always report any income changes promptly. Some special work incentives allow you to keep more of your earnings and benefits—ask your Disability Benefit Specialist for details or see our guide on SSI & SSDI Work Incentives.
Tip: Even small changes in income or household size should be reported right away to avoid overpayments.
If you receive SSI, SSDI, Medicaid, or other public benefits, you must report changes in income, assets, living situation, or medical condition. Failing to report can lead to overpayments, which you may have to pay back. If you receive more benefits than you should, contact the agency immediately to arrange repayment and prevent penalties[1][3][6]. Your Disability Benefit Specialist can help you understand what to report and how. For more, see our guide on Avoiding Overpayments & Reporting Changes.
Don’t navigate benefits alone. Wisconsin’s Aging and Disability Resource Centers (ADRCs) and Disability Benefit Specialists offer free, confidential help with applications, appeals, and understanding your rights. They can also represent you in administrative hearings if your benefits are denied[1][4].
Wisconsin residents with Spina Bifida can open ABLE accounts to save money for disability-related expenses without losing SSI or Medicaid. These accounts are tax-advantaged and do not count toward asset limits up to $100,000[6].
Yes, children with Spina Bifida may qualify for SSI if their condition is severe and their family’s income and resources are within federal limits. SSI for children is often based on household income until age 18[6][10].
Apply through ACCESS Wisconsin or contact your local Aging and Disability Resource Center (ADRC) for help with the application, including Medicaid waivers for home- and community-based services[4][6].
Yes, but your earnings may affect your benefits. SSI and SSDI have work incentives; Wisconsin Retirement System disability retirees have an annual earnings limit ($20,757 in 2025)[3][6].
SSI is need-based, with strict income and resource limits; SSDI is based on your work history and payroll tax contributions. See our SSI vs SSDI guide for details.
They provide free help with applications, appeals, annual reporting, and understanding how your benefits interact. They can represent you in appeals and connect you with other services[1][4].
Yes, you may qualify for tax credits, deductions, and exclusions. Check the IRS website and ask your Disability Benefit Specialist for state-specific tax advice[6].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Wisconsin’s network of ADRCs is the best place to start for personalized help. Ask about all possible benefits—many people qualify for more than they realize.
ABLE accounts are savings accounts for people with disabilities. Money saved does not count against SSI or Medicaid asset limits up to $100,000, and withdrawals for disability expenses are tax-free[6].
Contact your local ADRC and ask for a Disability Benefit Specialist. They can help with appeals and representation at hearings[1][4].
Report changes in income, assets, address, or medical condition to SSA, Medicaid, and your benefit specialist right away to avoid overpayments[1][3][6].
Yes, Disability Rights Wisconsin operates a helpline for Medicare Part D and prescription drug assistance for people with disabilities[5].
