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Wisconsin • Rare/Genetic
People with Fragile X Syndrome in Wisconsin may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid, and Medicaid waivers. Benefit specialists at local Aging and Disability Resource Centers can help with eligibility and applications.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI), a person must have a medical condition that meets the Social Security Administration's definition of disability. For Fragile X Syndrome, this means the condition must severely limit the ability to work or function independently. SSDI requires work credits, while SSI is for those with limited income and resources. Both programs require medical evidence and a review of functional limitations. Children with Fragile X Syndrome may qualify for SSI if their condition meets childhood disability criteria. Adults with Fragile X Syndrome may qualify for SSDI if they have enough work credits or for SSI if they meet income and resource limits.
Source: Social Security Administration [Accessed: 2025-11-06]
In Wisconsin, people with Fragile X Syndrome may qualify for Medicaid, Medicaid waivers, and other state programs. Medicaid covers a wide range of services for people with disabilities, including home and community-based services through waivers. The Medicaid Purchase Plan (MAPP) is available for those who do not qualify for regular Medicaid but need help with medical costs. Wisconsin also offers the Family Care Partnership and IRIS programs for long-term care services. Eligibility for these programs depends on income, resources, and functional needs. People with Fragile X Syndrome may also qualify for FoodShare, housing assistance, and other state programs. Benefit specialists at local Aging and Disability Resource Centers can help determine eligibility and apply for benefits.
Source: Wisconsin Department of Health Services [Accessed: 2025-11-06]
Source: Wisconsin Department of Health Services [Accessed: 2025-11-06]
Source: Social Security Administration [Accessed: 2025-11-06]
Source: Wisconsin Department of Health Services [Accessed: 2025-11-06]
ABLE accounts allow people with disabilities to save money without losing SSI or Medicaid eligibility. Funds can be used for housing, transportation, personal assistance services, assistive technology, and health care not covered by insurance, Medicaid, or Medicare. ABLE accounts are tax-advantaged and do not affect eligibility for most means-tested programs. Wisconsin residents can open an ABLE account through the ABLE National Resource Center. The account can be used to pay for expenses related to Fragile X Syndrome, such as therapy, assistive devices, and transportation.
Source: ABLE National Resource Center [Accessed: 2025-11-06]
Source: Social Security Administration [Accessed: 2025-11-06]
It is important to report changes in income, resources, or living situation to avoid overpayments and loss of benefits. Overpayments can occur if you do not report changes or if there is an error in your benefit calculation. If you receive an overpayment notice, you can request a waiver or set up a repayment plan. The Disability Benefit Specialist at your ADRC can help with overpayments and reporting changes.
Source: Social Security Administration [Accessed: 2025-11-06]
Contact your local Aging and Disability Resource Center (ADRC) for free help with eligibility and applications. Disability Benefit Specialists can guide you through the process and help with appeals if needed.
Fragile X Syndrome is a genetic condition that causes intellectual disability, behavioral challenges, and physical features. It is the most common inherited cause of intellectual disability and can affect both males and females.
Yes, people with Fragile X Syndrome may qualify for SSI or SSDI if their condition meets Social Security's definition of disability. Children may qualify for SSI, and adults may qualify for SSDI or SSI depending on work history and income.
SSI is for people with disabilities who have limited income and resources. SSDI is for people who have worked and have enough work credits. Both programs provide monthly payments for people with disabilities.
You can apply for Medicaid in Wisconsin online, by phone, or in person. You will need to provide proof of income, resources, and disability. The Disability Benefit Specialist at your ADRC can help with the application process.
Medicaid waivers provide home and community-based services for people with disabilities. These services are not covered by regular Medicaid and can include personal care, respite care, and assistive technology.
Yes, people with Fragile X Syndrome can open an ABLE account. These accounts allow tax-advantaged savings for disability-related expenses without losing SSI or Medicaid eligibility.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
The income limit for SSI in 2025 is $943 per month for an individual and $1,415 for a couple. Resources must be less than $2,000 for an individual and $3,000 for a couple.
You must report changes in income, resources, or living situation to avoid overpayments and loss of benefits. You can report changes online, by phone, or in person. The Disability Benefit Specialist at your ADRC can help with reporting changes.
Medicaid covers a wide range of services for people with Fragile X Syndrome, including medical care, therapy, personal care, and home and community-based services through waivers.
Yes, you can work while receiving SSI or SSDI, but there are limits on how much you can earn. The Ticket to Work program supports career development for people with disabilities.
