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Wisconsin • Rare/Genetic
People with Ehlers-Danlos Syndrome in Wisconsin can get help with Social Security, Medicaid, Medicare, and other benefits. Disability Benefit Specialists at local Aging and Disability Resource Centers (ADRCs) provide free support for adults ages 18-59. Learn how to apply, what programs are available, and how to keep your benefits.
To qualify for federal disability benefits like Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI), your Ehlers-Danlos Syndrome must be severe enough to stop you from working for at least 12 months. You must have a medical diagnosis and documentation showing how your condition limits your daily activities and ability to work. For SSDI, you need enough work credits (usually 40, with 20 in the last 10 years). For SSI, your income and resources must be below certain limits. Both programs require a review of your medical records and work history [9].
If your Ehlers-Danlos Syndrome began before age 22 and a parent worked and paid Social Security taxes, you may qualify for SSDI as a “child’s benefit” [10].
In Wisconsin, adults ages 18-59 with Ehlers-Danlos Syndrome can get help from Disability Benefit Specialists at local Aging and Disability Resource Centers (ADRCs). These specialists help with Medicaid, Medicare, Social Security, and other benefits. Wisconsin Medicaid offers programs like Family Care Partnership, IRIS, and the Medicaid Purchase Plan for people with disabilities. You may also qualify for FoodShare, housing help, and prescription drug assistance. To get help, contact your local ADRC. If you are age 60 or older, ask about elder benefit specialists [4][6][8].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. You can use the funds for housing, transportation, personal assistance, assistive technology, and health care. Wisconsin residents can open an ABLE account through the state’s ABLE program. The account does not affect most means-tested benefits [6].
For SSDI, there is no income limit, but you must not be able to do substantial gainful activity (SGA). In 2025, SGA is $20,757 per year. For SSI, the income limit is much lower and changes each year. For Wisconsin Medicaid, income limits depend on the program and household size. Check with your local ADRC or Access Wisconsin for current limits [3][6].
You must report changes in income, resources, or living situation to avoid overpayments. If you get too much money, you may have to pay it back. Report changes to Social Security, Medicaid, and other programs as soon as possible. Keep records of all reports and communications [6].
Contact your local Aging and Disability Resource Center (ADRC) for free help with disability benefits applications, appeals, and questions.
Yes, if your Ehlers-Danlos Syndrome is severe enough to stop you from working for at least 12 months, you may qualify for SSDI or SSI. You need medical proof and may need to show how it limits your daily life. Contact your local ADRC for help with the application.
Contact your local Aging and Disability Resource Center (ADRC) for free help. They can help you apply for Social Security, Medicaid, and other programs. You can also apply online or by phone. Gather your medical records and proof of income before you start.
Wisconsin offers Medicaid programs like Family Care Partnership, IRIS, Medicaid Purchase Plan, and QDWI for people with disabilities. These programs help with health care, long-term care, and support services. Contact your local ADRC for more information.
Yes, but there are limits. If you earn more than the substantial gainful activity (SGA) limit ($20,757 in 2025), your SSDI or WRS disability benefits may be suspended. SSI has lower income limits. Ask about work incentives and reporting rules.
An ABLE account is a tax-advantaged savings account for people with disabilities. You can use it for disability-related expenses without losing SSI or Medicaid benefits. Wisconsin residents can open an ABLE account through the state’s program.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for your specific situation.
Yes, you must report changes in income, resources, or living situation to avoid overpayments. If you get too much money, you may have to pay it back. Report changes to Social Security, Medicaid, and other programs as soon as possible.
Yes, Disability Benefit Specialists at local ADRCs can help you with applications, appeals, and understanding your benefits. They are free and trained in disability benefits and entitlement programs.
If your application is denied, you can appeal. Your ADRC specialist can help you with the appeal process. You may need to provide more medical evidence or attend a hearing.
Yes, Wisconsin has programs for people with rare and genetic disabilities, including Medicaid waivers, SSI, SSDI, and ABLE accounts. Contact your local ADRC for help with these programs.
You must complete and submit required forms each year to keep your benefits. If you get WRS disability benefits, you must do this annually. Social Security and Medicaid may also require periodic reviews.
