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West Virginia • Rare/Genetic
People with Prader-Willi Syndrome in West Virginia can access federal disability benefits like SSI and SSDI, state Medicaid waivers, and ABLE accounts. These programs help cover medical care, daily living needs, and financial support.
To qualify for federal disability benefits in West Virginia, you must meet Social Security Administration (SSA) rules. For Supplemental Security Income (SSI), you must have limited income and resources and a qualifying disability. For Social Security Disability Insurance (SSDI), you must have worked and paid into Social Security, and have a disability that prevents work for at least 12 months. Children with disabilities may qualify for benefits based on a parent’s record if the disability began before age 22. Prader-Willi Syndrome is recognized as a qualifying condition if it meets SSA’s medical criteria for disability.
Each program has strict rules about income, resources, and medical proof. You must provide medical records and other documents to prove your disability.
Sources: SSA Disability Qualifications (accessed 2025-11-06)
In West Virginia, people with Prader-Willi Syndrome may qualify for additional state programs. The West Virginia Medicaid waiver program helps people with disabilities live at home with specialized care instead of in institutions. These waivers cover services like personal care, therapy, and assistive technology. The Children with Disabilities Community Service Program (CDCSP) is one example for children. Adults may qualify for other waivers based on their needs.
West Virginia also offers ABLE accounts, which let people with disabilities save money without losing SSI or Medicaid benefits. To qualify for an ABLE account, you must have a disability that began before age 26 and meet SSA’s definition of disability.
State agencies and advocacy groups, like DRWV, provide help with applications and appeals. They can also help with access to assistive technology and employment services.
Sources: WV Medicaid Waivers (accessed 2025-11-06), WVABLE (accessed 2025-11-06), DRWV 2025 Priorities (accessed 2025-11-06)
Step 1: Review Eligibility
Step 2: Gather Documents
Step 3: Apply for Federal Benefits
Step 4: Apply for Medicaid Waivers
Step 5: Apply for ABLE Account
Step 6: Seek Help
Sources: SSA Apply for Benefits (accessed 2025-11-06), WV Medicaid Waivers (accessed 2025-11-06), WVABLE (accessed 2025-11-06), (accessed 2025-11-06)
Each program has its own rules and application process. You may qualify for more than one program.
Sources: SSA Disability Benefits (accessed 2025-11-06)
These programs can help with medical care, daily living needs, and financial support.
Sources: WV Medicaid Waivers (accessed 2025-11-06), WVABLE (accessed 2025-11-06), DRWV 2025 Priorities (accessed 2025-11-06), 211 West Virginia (accessed 2025-11-06)
WVABLE is West Virginia’s ABLE account program. ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. To qualify, you must have a disability that began before age 26 and meet SSA’s definition of disability. You can use the account for qualified disability expenses like housing, education, and transportation. There are annual and lifetime contribution limits. Visit WVABLE.gov to apply.
Sources: WVABLE (accessed 2025-11-06)
SSI has strict income and resource limits. In 2025, the federal SSI limit is $943 per month for an individual and $1,415 for a couple. Some states add a small supplement. SSDI has no income limit, but you must not be able to do substantial work. Medicaid and Medicaid waivers have their own income and asset rules. ABLE accounts have annual and lifetime contribution limits. Check SSA.gov and WVABLE.gov for current limits.
Sources: SSA SSI Limits (accessed 2025-11-06), WVABLE (accessed 2025-11-06)
If you get too much money from SSI or SSDI, you may have to pay it back. Report changes in income, resources, or living situation to SSA right away. Overpayments can happen if you don’t report changes or if SSA makes a mistake. You can ask for a waiver if you can’t pay back the overpayment. For Medicaid and Medicaid waivers, report changes to the Bureau for Medical Services. For ABLE accounts, report changes to WVABLE.
Sources: SSA Overpayments (accessed 2025-11-06), WVABLE (accessed 2025-11-06)
Call 211 for free help finding local resources. DRWV and other advocacy groups can help with applications and appeals.
People with Prader-Willi Syndrome in West Virginia can get SSI, SSDI, and Medicaid if they meet SSA’s rules. Children may qualify for benefits based on a parent’s record. These programs provide monthly cash and health insurance.
Contact the Bureau for Medical Services or visit their website. Ask about the Children with Disabilities Community Service Program (CDCSP) or other waivers. Submit an application and supporting documents.
An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. To qualify, you must have a disability that began before age 26. Apply at WVABLE.gov.
Yes, SSI and SSDI have work incentives. You can earn some income without losing benefits. Check SSA.gov for current rules and limits.
Legal aid and advocacy groups like DRWV can help with appeals. You can also hire an SSI attorney. Most initial claims are denied, so appeals are common.
Yes, the Children with Disabilities Community Service Program (CDCSP) helps children with disabilities live at home with support. Other Medicaid waivers may also be available.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Report changes in income, resources, or living situation to SSA right away. For Medicaid and Medicaid waivers, report changes to the Bureau for Medical Services. For ABLE accounts, report changes to WVABLE.
SSI is for low-income people with disabilities, blindness, or age 65+. SSDI is for people with a work history and a qualifying disability. Both provide monthly cash benefits.
Yes, call 211 for local resources. DRWV and other advocacy groups can help with applications and appeals. Legal aid may also be available.
In 2025, the federal SSI limit is $943 per month for an individual and $1,415 for a couple. Some states add a small supplement. Check SSA.gov for current limits.
