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Washington • Rare/Genetic
People with Rett Syndrome in Washington may qualify for federal disability benefits (SSI/SSDI) and state programs like ABD and Medicaid waivers. This guide covers eligibility, how to apply, and key resources for families.
To qualify for federal disability benefits with Rett Syndrome, you must have a severe medical condition that prevents substantial work and is expected to last at least 12 months or result in death[1][3][9]. The Social Security Administration (SSA) uses the same medical definition for both SSI and SSDI. For SSDI, you need enough work credits from jobs where Social Security taxes were paid. Most adults need 40 credits, with 20 earned in the last 10 years before becoming disabled. For SSI, you must have limited income and resources, regardless of work history[1][3][9].
If you earn more than $1,550 per month (non-blind) in 2025, you may not qualify for SSDI or SSI, unless your work is considered an unsuccessful work attempt[1].
Washington residents with Rett Syndrome may qualify for state programs in addition to federal benefits. The Aged, Blind, and Disabled (ABD) program provides cash assistance to low-income individuals while they wait for SSI approval. To qualify for ABD, you must be 18 or older with a disability that prevents work for at least 12 months, meet income and resource limits, and not already receive SSI or TANF[4].
Washington also offers a State Supplementary Payment (SSP) to SSI recipients, increasing monthly benefits to help cover the state's higher cost of living[5]. Medicaid waivers (HCBS) may provide home and community-based services for those with Rett Syndrome who meet financial and medical criteria[4].
Washington residents with Rett Syndrome may qualify for an ABLE account, which allows tax-free savings for disability-related expenses without affecting SSI or Medicaid eligibility. Learn more about ABLE accounts and how to open one[internal_link_able_accounts].
For SSI in 2025, the federal income limit is $967/month for individuals and $1,450/month for couples. Washington's ABD program has its own income and resource limits, which are lower. Check with Washington Connection for current ABD limits[4][5].
If you receive too much in benefits, you may have to pay back the overpayment. Report any changes in income, living situation, or medical condition to avoid overpayments. Learn more about avoiding overpayments and reporting changes[internal_link_overpayments_and_reporting].
Contact Disability Determination Services for help with medical documentation and the application process[7].
Use Washington Connection to check your eligibility for ABD and other state benefits[11].
Yes, Rett Syndrome usually meets the Social Security Administration's definition of disability. You may qualify for SSI or SSDI if you meet the medical and financial requirements[1][3][9].
You can apply online at SSA.gov, by phone, or in person at a local Social Security office. You will need medical records and proof of income[1][3][9].
ABD is a state cash assistance program for low-income residents with disabilities who are waiting for SSI approval. It provides $450/month for individuals or $570/month for couples[4].
Yes, you must repay ABD benefits once you start receiving SSI, unless new state laws change this in the future. The payback requirement is currently in effect[4].
SSP is an extra monthly payment for SSI recipients in Washington to help cover the state's higher cost of living. It is added to your federal SSI payment[5].
Yes, you can work for at least 9 months and still get your full disability payment. This is called a trial work period. After that, your benefits may be reduced if you earn more than $1,550/month (non-blind)[1][10].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized assistance.
Medicaid waivers provide home and community-based services for people with disabilities who meet financial and medical criteria. They can help with care, therapy, and support at home[4].
Disability Determination Services can help you gather and submit medical records and documentation for your application[7].
Yes, ABD recipients may get referrals to the Housing and Essential Needs (HEN) program for help with housing and basic needs[4].
An ABLE account lets you save money for disability-related expenses without affecting SSI or Medicaid eligibility. Washington residents can open an ABLE account to help cover costs for Rett Syndrome[internal_link_able_accounts].
