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Virginia • Rare/Genetic
People with Cystic Fibrosis in Virginia may qualify for federal and state disability benefits, including Medicaid waivers, SSI, SSDI, and special programs. This guide explains eligibility, how to apply, and where to get help.
People with Cystic Fibrosis may qualify for federal disability benefits if their condition limits their ability to work or live independently. The two main programs are Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). SSI is for people with limited income and resources, while SSDI is for those who have worked and paid Social Security taxes. Both programs have strict medical and financial rules. In 2025, the SSI federal maximum is $967 per month for an individual and $1,450 for a couple. SSDI payments depend on your work history. The Substantial Gainful Activity (SGA) limit for 2025 is $1,620 per month for non-blind individuals and $2,700 for blind individuals. If you earn more than this, you may not qualify for benefits. SSI recipients in Virginia also get Medicaid coverage automatically[2][6].
In Virginia, people with Cystic Fibrosis may qualify for Medicaid through the Aged, Blind, or Disabled (ABD) program if they meet income and disability rules. Virginia also offers three Medicaid waivers for people with developmental disabilities: Building Independence, Family & Individual Support, and Community Living. These waivers help pay for home and community supports, such as personal care, respite, and supported living. There is a waiting list for these waivers, and slots are given based on urgency of need. To apply, contact your local Community Services Board (CSB). Cystic Fibrosis is not always considered a developmental disability, but if it causes significant functional limitations, you may qualify for waiver services. Virginia also has ABLE accounts, which let people with disabilities save money without losing benefits[1][7][2].
Virginia ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. You can save up to $17,000 per year (2025 limit) and use the funds for qualified disability expenses like housing, education, and health care. To open an account, visit the Virginia ABLE website or call the ABLE customer service line. ABLE accounts do not count toward SSI or Medicaid asset limits[2].
For SSI in Virginia, the federal income limit in 2025 is $967 per month for an individual and $1,450 for a couple. SSDI has no income limit, but you must not earn more than the Substantial Gainful Activity (SGA) limit of $1,620 per month (non-blind) or $2,700 (blind) to keep benefits. Medicaid ABD and waiver programs have their own income and asset limits, which vary by program and household size. Check with your local CSB for exact limits[2][6][7].
If your income, living situation, or health changes, you must report it to SSA or DMAS to avoid overpayments. Overpayments can happen if you get more benefits than you are entitled to. If you get an overpayment notice, you can request a waiver or set up a repayment plan. Always keep records of your reports and follow agency instructions[2].
Contact your local Community Services Board (CSB) for help with Medicaid and waiver applications. They can guide you through the process and answer your questions.
Yes, if your Cystic Fibrosis limits your ability to work and you meet the income and asset rules. SSI gives monthly cash and Medicaid eligibility in Virginia. Apply through the SSA website or local office[2].
Virginia offers Medicaid for Aged, Blind, or Disabled (ABD) and three Medicaid waivers for developmental disabilities. If Cystic Fibrosis causes significant functional limitations, you may qualify for waiver services. Contact your local CSB for help[1][7].
Contact your local Community Services Board (CSB) to start the waiver application. You will need medical records and proof of income. There is a waiting list, and slots are assigned by urgency of need[1].
Yes, there are work incentives that let you keep benefits while working. The SGA limit in 2025 is $1,620 per month for non-blind individuals. If you earn more, you may lose benefits. Check with SSA for details[2][6].
An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. You can save up to $17,000 per year and use funds for qualified disability expenses. Open an account through the Virginia ABLE website[2].
Yes, veterans with service-connected disabilities may get VA disability payments, health care, and student loan forgiveness. Check with the VA for eligibility and how to apply[4].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always check with official agencies for the most current rules and eligibility.
There is a waiting list for Medicaid waivers in Virginia. Approval time depends on urgency of need and available slots. Contact your CSB for updates on your application status[1].
If denied, you can appeal the decision. Follow the instructions in your denial letter and submit your appeal within the deadline. You can get help from a disability advocate or legal aid[2].
Yes, your local Community Services Board (CSB) can help with Medicaid and waiver applications. The Social Security Administration also has staff to help with SSI and SSDI applications[1][2].
Yes, children with Cystic Fibrosis may qualify for SSI, Medicaid, and waiver services. Family & Individual Support and Community Living waivers are available for children. Contact your local CSB for help[1][2].
