People with Spina Bifida in Utah can get federal disability benefits like SSI and SSDI, plus Medicaid for healthcare. Utah does not have a state disability program, but residents can access federal programs and some state services. This guide explains eligibility, how to apply, and what benefits are available.
To get federal disability benefits in Utah, you must meet Social Security Administration (SSA) rules. For Social Security Disability Insurance (SSDI), you need a qualifying disability that stops you from working for at least 12 months, and enough work credits from jobs where you paid FICA taxes. For Supplemental Security Income (SSI), you must have limited income and assets, and meet the SSA’s definition of disability. Children with Spina Bifida may qualify for SSI or as a disabled adult child if their parent has a work record. In 2025, the Substantial Gainful Activity (SGA) limit is $1,620/month for most people, or $2,700/month if you are blind. Earning above SGA may affect your benefits[2][3][5].
Utah does not have its own state disability program, so residents rely on federal benefits like SSI and SSDI. If you have Spina Bifida, you may qualify for these programs if your condition meets SSA medical criteria. Utah Medicaid covers medical care for disabled adults and children, including those with Spina Bifida. To qualify for Medicaid, you may need to be on SSI or have a disability determination from the State Medicaid Medical Review Board. Utah also offers Medicaid waivers for home and community-based services, which can help with daily living needs[4][3].
Utah does not have a state disability program, but residents can access federal benefits and some state services. Utah Medicaid provides health coverage for disabled adults and children, including those with Spina Bifida. The State Medicaid Medical Review Board can make disability determinations if you are not on SSI or SSDI. Utah also offers Medicaid waivers for home and community-based services, which can help with daily living needs for people with physical disabilities. These waivers may cover personal care, therapy, and assistive devices[4][3].
ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. In 2025, you can contribute up to $19,000 per year to an ABLE account. These accounts can pay for disability-related expenses like medical care, housing, and education[6].
For SSI in 2025, the SGA limit is $1,620/month for most people, or $2,700/month if you are blind. Earning above SGA may affect your benefits. For Medicaid, income and asset limits apply, but these are higher for disabled individuals[3][5][4].
You must report changes in income, work, or health to the SSA and Medicaid. Not reporting changes can lead to overpayments and penalties. If you get an overpayment, contact the SSA or Medicaid to set up a repayment plan[3][4].
Contact the Disability Law Center Utah for free legal help with disability applications and appeals[6].
Utah Medicaid waivers can help with home care, therapy, and assistive devices for people with physical disabilities[4].
Yes, if your Spina Bifida meets SSA medical criteria and you meet work or income rules for SSI or SSDI. Utah does not have a state disability program, but federal benefits are available[5][4].
Apply online at SSA.gov, by phone, or in person. You’ll need medical records and proof of income. Utah Medicaid can be applied for at Medicaid.utah.gov[5][4].
The SGA limit in 2025 is $1,620/month for most people, or $2,700/month if you are blind. Earning above SGA may affect your benefits[3][5].
No, Utah does not have a state disability program. Residents rely on federal benefits like SSI and SSDI, plus Medicaid for healthcare[1][4].
Yes, children with Spina Bifida may qualify for SSI or as a disabled adult child if their parent has a work record. They must meet SSA disability rules[5].
Utah Medicaid covers medical care for disabled adults and children. The State Medicaid Medical Review Board can make disability determinations if you are not on SSI or SSDI[4].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Report any changes in income, work, or health to the SSA and Medicaid. Not reporting changes can lead to overpayments and penalties[3][4].
Yes, but your earnings must be below the SGA limit ($1,620/month in 2025). Working above SGA may affect your benefits[3][5].
ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. In 2025, you can contribute up to $19,000 per year to an ABLE account[6].
If denied, you can request reconsideration or a disability hearing. Working with a lawyer increases your chances of approval at a hearing[1].
