Open a Purple account in minutes. Banking built for people with disabilities.
Utah • Rare/Genetic
People with Fragile X Syndrome in Utah may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid, and work incentives. Eligibility depends on medical criteria, income, and work history. This guide explains how to apply and what to expect in 2025.
To qualify for federal disability benefits like SSI or SSDI, you must meet the Social Security Administration’s definition of disability. For Fragile X Syndrome, this means the condition must severely limit your ability to work or function independently. Adults need 40 credits (20 in the last 10 years) for SSDI. Children may qualify for SSI if their family meets income limits. The SSA reviews medical evidence to decide if your condition meets their criteria.
In 2025, the Substantial Gainful Activity (SGA) limit is $1,620 per month for non-blind individuals and $2,700 for those who are statutorily blind. Earning above SGA may affect your benefits. If you are a child with Fragile X Syndrome, your benefits may continue after age 18 if you have a qualifying disability.
In Utah, individuals with Fragile X Syndrome may qualify for Medicaid if they meet the state’s disability criteria. Utah’s Medicaid Aged, Blind, or Disabled Programs cover medical needs for those who are disabled, including those receiving SSI or SSDI. If you do not receive SSI or SSDI, the State Medicaid Medical Review Board can determine disability based on medical evidence, without considering substantial gainful employment.
Utah also offers Medicaid waivers for home and community-based services (HCBS), which can provide additional support for people with Fragile X Syndrome. These waivers may cover therapies, respite care, and other services not included in standard Medicaid.
Step 1: Collect all medical records, including diagnosis and treatment history for Fragile X Syndrome.
Step 2: Apply for SSI or SSDI online at SSA.gov, by phone, or at a local SSA office. You will need to provide personal information, work history, and medical evidence.
Step 3: If approved for SSI or SSDI, you may automatically qualify for Utah Medicaid. If not, apply for Medicaid through the Utah Department of Workforce Services or the Medicaid portal.
Step 4: For Medicaid waivers, contact the Utah Division of Services for People with Disabilities (DSPD) to learn about available programs and eligibility.
Step 5: Report any changes in income, employment, or health to SSA and Medicaid to avoid overpayments.
Step 6: If your application is denied, you can appeal the decision.
SSA Apply for Benefits (2025)
Utah Medicaid Application (2025)
Utah DSPD Waivers (2025)
SSI (Supplemental Security Income): Monthly cash payments for low-income individuals with disabilities.
SSDI (Social Security Disability Insurance): Monthly payments for those who have worked and paid into Social Security.
Medicare: Health insurance for those who receive SSDI after 24 months.
Medicaid: Health coverage for low-income individuals with disabilities.
ABLE Accounts: Tax-advantaged savings accounts for disability-related expenses.
SSA Disability Programs (2025)
Medicaid Overview (2025)
ABLE Accounts (2025)
Utah Medicaid Aged, Blind, or Disabled: Medical assistance for disabled individuals, including those with Fragile X Syndrome.
Medicaid Waivers (HCBS): Additional services like therapies, respite care, and support for independent living.
Utah ABLE Accounts: State-sponsored savings accounts for people with disabilities.
Workforce Services: Vocational rehabilitation and employment support.
Utah Medicaid Waivers (2025)
Utah ABLE Accounts (2025)
Utah Workforce Services (2025)
ABLE accounts allow people with disabilities to save money without losing SSI or Medicaid benefits. In Utah, you can open an ABLE account through the state program. The 2025 contribution limit is $19,000 per year. Funds can be used for disability-related expenses like education, housing, and transportation.
In 2025, the SGA limit for SSDI is $1,620 per month for non-blind individuals and $2,700 for those who are statutorily blind. Earning above SGA may affect your benefits. SSI has separate income limits based on household size and resources.
You must report changes in income, employment, or health to SSA and Medicaid to avoid overpayments. If you receive too much money, you may have to pay it back. Reporting changes promptly helps protect your benefits.
Contact the Utah Division of Services for People with Disabilities or your local Social Security office for help with applications and questions.
Fragile X Syndrome is a genetic condition that causes intellectual disability, behavioral challenges, and physical features. It is the most common inherited cause of intellectual disability.
Yes, if Fragile X Syndrome severely limits your ability to work or function independently, you may qualify for SSI or SSDI. The SSA reviews medical evidence to decide eligibility.
You can apply for Utah Medicaid online, by phone, or in person. If you receive SSI or SSDI, you may automatically qualify. Otherwise, the State Medicaid Medical Review Board can determine disability based on medical evidence.
Medicaid waivers in Utah provide extra services like therapies, respite care, and support for independent living for people with disabilities, including Fragile X Syndrome.
Yes, you can work and still receive benefits, but there are limits. In 2025, the SGA limit is $1,620 per month for non-blind individuals and $2,700 for those who are statutorily blind.
An ABLE account is a tax-advantaged savings account for people with disabilities. In Utah, you can save up to $19,000 per year for disability-related expenses without losing SSI or Medicaid benefits.
Disclaimer: This guide is for informational purposes only. Always consult official sources or a benefits expert for personalized advice.
You must report changes in income, employment, or health to SSA and Medicaid. Reporting changes promptly helps avoid overpayments and protects your benefits.
If you earn above the SSI income limit, your benefits may be reduced or stopped. You can appeal the decision or reapply if your income changes.
Yes, children with Fragile X Syndrome may qualify for SSI if their family meets income limits. Benefits may continue after age 18 if they have a qualifying disability.
Families can access Medicaid, Medicaid waivers, ABLE accounts, and support services through Utah’s Division of Services for People with Disabilities and Workforce Services.
