People with Rett Syndrome in Texas may qualify for federal disability benefits like SSI and SSDI, plus state-specific Medicaid waivers and support programs. This guide explains eligibility, how to apply, and key resources for families.
Contact your local Social Security office or Texas Health and Human Services for help with applications and questions.
Yes, children with Rett Syndrome may qualify for SSI if their condition causes marked and severe functional limitations. The child’s income and resources, and those of family members, are considered in eligibility [4].
In 2025, the SGA limit is $1,620/month for non-blind individuals and $2,700/month for blind individuals. Earning above this may affect eligibility for SSDI or SSI [2].
Contact the Texas Health and Human Services Commission to apply for Medicaid waivers. You’ll need to provide proof of disability and financial need [7].
Yes, work incentives allow some to earn income without losing benefits. The trial work period lets SSDI recipients earn over $1,160/month for nine months without losing benefits [2].
An ABLE account is a tax-advantaged savings account for disability-related expenses. In Texas, you can save up to $17,000/year without losing SSI or Medicaid eligibility [7].
Approval times vary, but most initial decisions take 3–6 months. Appeals can take longer. Providing complete medical records can speed up the process [1].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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You can appeal the decision. The appeals process includes reconsideration, a hearing, and review by the Appeals Council. Legal help may improve your chances [1].
Yes, adults with Rett Syndrome may qualify for SSI if they have limited income and resources. They may also qualify for SSDI if a parent has a qualifying work history [6].
Yes, Texas offers Medicaid waivers and support services for families of children with disabilities. Contact the Texas Health and Human Services Commission for more information [7].
Report changes in income, resources, or living situation to Social Security and Medicaid to avoid overpayments. Overpayments can result in repayment or benefit suspension [2].
