People with Huntington’s Disease in Texas may qualify for federal disability benefits like SSDI and SSI, plus state Medicaid waivers and ABLE accounts. Eligibility depends on medical documentation, income, and work history. This guide explains how to apply and what support is available.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) with Huntington’s Disease, your condition must be medically documented, expected to last at least 12 months or result in death, and significantly limit your ability to work. The Social Security Administration (SSA) uses a 5-step process to determine eligibility, including checking if you are working above the Substantial Gainful Activity (SGA) limit, assessing the severity of your condition, and evaluating if you can do past or other work. Huntington’s Disease is listed in the SSA’s Blue Book under neurological disorders, which can help speed up approval if criteria are met[1].
For SSDI, you must have worked and paid Social Security taxes, and have enough work credits. For SSI, you must have limited income and resources. In 2025, the SGA limit is $1,620 per month for non-blind individuals and $2,700 for blind individuals[2].
In Texas, the Disability Determination Services (DDS) reviews your application and medical evidence to decide if you meet federal disability standards. Huntington’s Disease is considered a severe impairment, and if your symptoms match the SSA’s Blue Book listing, you may qualify for expedited review. Texas also offers Medicaid waivers for home and community-based services (HCBS), which can provide additional support for people with Huntington’s Disease. These waivers help cover costs for in-home care, respite care, and other services not covered by standard Medicaid[1].
To apply for Medicaid waivers, you must meet both medical and financial eligibility requirements. Texas uses a functional assessment to determine your level of need. If you have Huntington’s Disease, you may qualify for programs like the Community Living Assistance and Support Services (CLASS) waiver or the Medically Dependent Children Program (MDCP) if you are under 21[1].
Step 1: Collect Medical Evidence Get detailed records from your doctor, including diagnosis, symptoms, and how Huntington’s Disease affects your daily life and ability to work. This is crucial for your SSDI or SSI application[1].
Step 2: Check Eligibility For SSDI, ensure you have enough work credits. For SSI, confirm your income and resources are below the limits. In 2025, the SSI resource limit is $2,000 for individuals and $3,000 for couples[2].
Step 3: Apply for SSDI or SSI Apply online at SSA.gov, by phone at 1-800-772-1213, or in person at a Social Security office. You can also apply for both programs at the same time[1].
Step 4: Apply for Medicaid Waivers Contact the Texas Health and Human Services Commission (HHSC) or your local authority to apply for Medicaid waivers. You may need to complete a functional assessment to determine your level of need[1].
Step 5: Open an ABLE Account If you became disabled before age 26, you can open an ABLE account to save for disability-related expenses without losing benefits[1].
ABLE accounts allow people with disabilities to save money for disability-related expenses without losing eligibility for SSI, Medicaid, or other benefits. In Texas, you can open an ABLE account if you became disabled before age 26. The account can hold up to $100,000 without affecting SSI eligibility, and earnings are tax-free[1].
If your income or resources change, you must report it to the SSA to avoid overpayments. Overpayments can result in repayment demands or benefit reductions. Always report changes promptly to avoid penalties[1].
Contact a disability advocate or attorney for help with your application. Many offer free consultations for people with Huntington’s Disease.
Yes, Huntington’s Disease is recognized by the SSA as a qualifying disability. If your condition is severe and meets SSA criteria, you may qualify for SSDI or SSI in Texas[1].
Gather medical records, check eligibility, and apply online at SSA.gov, by phone, or in person. You can apply for both programs at the same time[1].
In 2025, the SGA limit is $1,620 per month for non-blind individuals and $2,700 for blind individuals. Earning above this limit may affect your benefits[2].
Yes, Texas offers Medicaid waivers for home and community-based services. These waivers can provide support for in-home care, respite care, and other services[1].
An ABLE account lets you save for disability-related expenses without losing benefits. In Texas, you can open one if you became disabled before age 26[1].
Approval times vary, but Huntington’s Disease is often expedited due to its severity. Most decisions take 3–6 months, but some cases are faster[1].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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You can work, but your earnings must be below the SGA limit. Work incentives allow you to test your ability to work without losing benefits[2].
You can appeal the decision. Most appeals are decided by an administrative law judge. Consider getting help from a disability attorney or advocate[1].
Children with Huntington’s Disease may qualify for SSI if they meet medical and financial criteria. Family income and resources are considered[4].
Report changes to the SSA promptly to avoid overpayments. You can report online, by phone, or in person[1].
