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Texas • Rare/Genetic
People with Ehlers-Danlos Syndrome in Texas may qualify for federal disability benefits like SSDI and SSI if their condition prevents them from working. Texas does not have a state disability program, so most benefits come from the Social Security Administration. You can also save for disability-related expenses with a Texas ABLE account.
To get Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) for Ehlers-Danlos Syndrome, your condition must:
SSDI requires a work history and enough Social Security work credits. SSI is for people with limited income and resources[2][6].
The Social Security Administration uses a 5-step process to decide if you are disabled. This includes checking your work activity, the severity of your condition, if your condition is on the SSA's Blue Book list, your ability to do past work, and your ability to do other work[1][6].
Texas does not have a state-run disability benefits program. All disability benefits for Ehlers-Danlos Syndrome come from federal programs like SSDI and SSI[3].
Texas residents must meet the same federal eligibility rules as people in other states. The Texas Disability Determination Services (DDS) reviews medical evidence and makes the final decision on your claim[1].
If you have Ehlers-Danlos Syndrome, you may also qualify for Medicaid waivers or other state services if you meet income and disability requirements. These programs can help with home care, therapy, and other supports[internal_link: Medicaid Waivers (HCBS)].
Texas also offers the Texas ABLE Program, which lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid[4].
Step 1: Collect Medical Evidence
Step 2: Check Eligibility
Step 3: Apply
Step 4: Wait for a Decision
Step 5: Appeal if Denied
The main federal disability programs for Ehlers-Danlos Syndrome are:
Texas does not have a state disability benefits program. All disability benefits for Ehlers-Danlos Syndrome come from federal programs like SSDI and SSI[3].
Texas offers the Texas ABLE Program, which lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid[4].
Texas also has Medicaid waivers (HCBS) that can help with home care, therapy, and other supports if you meet income and disability requirements[internal_link: Medicaid Waivers (HCBS)].
Other state services may include vocational rehabilitation, transportation, and support groups for people with rare diseases[internal_link: Medicaid Waivers (HCBS)].
The Texas ABLE Program lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid. To qualify, you must be a Texas resident and have developed your disability before age 26. You can use ABLE funds for things like medical care, education, housing, and transportation[4].
In 2025, the SSI Federal Benefit Rate is $967/month for individuals and $1,450/month for couples. The resource limit is $2,000 for individuals and $3,000 for couples. SSDI has no income limit, but you cannot earn more than $1,620/month (non-blind) or $2,700/month (blind) from work[2][5].
If your income or resources change, you must report it to Social Security. Not reporting changes can lead to overpayments and penalties. See our guide on avoiding overpayments and reporting changes for more details[internal_link: Avoiding Overpayments & Reporting Changes].
Most disability claims are denied at first. Consider getting help from a disability advocate or lawyer to improve your chances of success[3].
Save for disability-related expenses without losing SSI or Medicaid with a Texas ABLE account[4].
Yes, Ehlers-Danlos Syndrome can qualify for SSDI or SSI if it meets Social Security's definition of disability. Your condition must be medically documented, expected to last at least 12 months, and prevent you from working[1][6].
In 2025, the SSI Federal Benefit Rate is $967/month for individuals and $1,450/month for couples. The resource limit is $2,000 for individuals and $3,000 for couples[2][3].
You can apply online at SSA.gov, by phone, or in person at a Social Security office. You will need medical records and information about your work history and income[3].
No, Texas does not have a state disability benefits program. All disability benefits for Ehlers-Danlos Syndrome come from federal programs like SSDI and SSI[3].
A Texas ABLE account lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid. You must be a Texas resident and have developed your disability before age 26[4].
Yes, you can work during a trial work period for SSDI. For SSI, you can earn some income without losing benefits, but there are limits[2][internal_link: SSI & SSDI Work Incentives].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for advice on your specific situation.
You need medical records that show your diagnosis, symptoms, treatment, and how your condition limits your ability to work. Include notes from doctors, hospitals, and therapists[1][6].
Most claims are denied at first. You can appeal within 60 days by requesting a reconsideration, a hearing, or review by the Appeals Council. Consider getting help from a disability advocate or lawyer[3].
Yes, Texas has Medicaid waivers (HCBS) that can help with home care, therapy, and other supports if you meet income and disability requirements[internal_link: Medicaid Waivers (HCBS)].
The process can take several months to over a year, especially if your claim is denied and you appeal. Most claims are denied at first, but you can appeal[3].
