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Rhode Island • Rare/Genetic
People with Prader-Willi Syndrome in Rhode Island can access federal and state disability benefits, including SSI, SSDI, Medicaid, and vocational rehabilitation. Eligibility depends on medical need, income, and work history. This guide explains how to apply and what support is available.
Prader-Willi Syndrome is a rare genetic disorder that can cause intellectual disability, obesity, and behavioral challenges. For federal disability programs, eligibility is based on medical severity and financial need.
Both programs require a medical review by the Social Security Administration. Approval depends on how the condition affects daily life and ability to work.
In Rhode Island, people with Prader-Willi Syndrome may qualify for several state programs:
State eligibility is based on medical need, income, and employment status. Some programs may require a referral from a doctor or social worker.
Start with federal programs, then add state benefits as needed.
SSI (Supplemental Security Income): Monthly cash payments for people with limited income and resources. Children and adults with Prader-Willi Syndrome may qualify.
SSDI (Social Security Disability Insurance): Monthly payments for people with a qualifying disability and enough work credits. Adults with Prader-Willi Syndrome may qualify if they have a work history.
Medicaid: Health coverage for people with low income and resources. Children and adults with Prader-Willi Syndrome may qualify.
Medicare: Health coverage for people who receive SSDI for 24 months.
SSA Disability Programs (2025-11-06)
Temporary Disability Insurance (TDI): Short-term wage replacement for non-work-related illness or injury. Provides up to 30 weeks of benefits. Weekly payments range from $130 to $1,070, based on your earnings.
Vocational Rehabilitation Services: Job training, counseling, and support for people with disabilities. Helps with job search, resume writing, and workplace accommodations.
Medicaid Waivers (HCBS): Home and community-based services for people with developmental disabilities. Includes personal care, respite care, and supported employment.
ABLE Accounts: Tax-free savings accounts for disability-related expenses. Rhode Island residents can open an ABLE account through the state program.
RI TDI Program (2025-11-06)
RI Office of Rehabilitation Services (2025-11-06)
RI Medicaid Waivers (2025-11-06)
RI ABLE Accounts (2025-11-06)
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Rhode Island residents can open an ABLE account through the state program. Contributions are tax-free, and withdrawals for qualified expenses are not taxed.
SSI and Medicaid have strict income and resource limits. For SSI, the 2024 federal limit is $943 per month for an individual. Medicaid limits vary by program and household size. ABLE accounts have a lifetime limit of $100,000 for SSI eligibility.
If you receive too much in benefits, you may have to pay it back. Report changes in income, resources, or living situation to avoid overpayments. Keep records of all payments and reports.
Contact the RI Office of Rehabilitation Services at 401-421-7005 for help with vocational rehab and benefit applications.
Rhode Island offers Home and Community-Based Services (HCBS) waivers for people with developmental disabilities. These waivers provide support for living at home or in the community.
Yes, children with Prader-Willi Syndrome may qualify for SSI if their family meets income and resource limits. The Social Security Administration reviews medical records to determine eligibility.
Contact the Rhode Island Department of Human Services. You may need a referral from a doctor or social worker. The waiver provides home and community-based services for people with developmental disabilities.
TDI provides short-term wage replacement for non-work-related illness or injury. You must have earned at least $16,800 in your base period and be unable to work for at least 7 days.
Yes, it is possible to get both SSI and SSDI if you meet the eligibility criteria for each program. SSI is based on income and resources, while SSDI is based on work history.
Download the application from ORS.RI.gov or call 401-421-7005. Complete the Release of Information form (ORS-37). Vocational rehab helps with job training and employment.
An ABLE account is a tax-free savings account for disability-related expenses. Rhode Island residents can open an account through the state program. It does not affect SSI or Medicaid eligibility.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, report changes in income, resources, or living situation to avoid overpayments. Keep records of all payments and reports to ensure you receive the correct amount of benefits.
If your application is denied, you have 60 days to file an appeal with the Social Security Administration or the state agency. You may be asked to attend an interview or provide more information.
Yes, vocational rehabilitation and Medicaid waivers may cover durable medical equipment. Contact the Office of Rehabilitation Services or your Medicaid case manager for more information.
Processing times vary. SSI/SSDI applications can take several months. State programs like TDI may process applications in a few weeks. Follow up regularly and keep copies of all documents.
