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Rhode Island • Neurodegenerative
People with Huntington’s Disease in Rhode Island can get financial help from federal programs like SSDI and SSI, plus state benefits such as Temporary Disability Insurance (TDI) and Medicaid. You may also qualify for vocational rehab and other support services.
To get federal disability benefits in Rhode Island, you must meet the Social Security Administration’s (SSA) definition of disability. Huntington’s Disease is a recognized condition that often qualifies for Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). SSDI is for people who have worked and paid Social Security taxes. SSI is for those with limited income and resources, including children and adults. Both programs require medical proof of disability. If you qualify, you may also get Medicare (after 24 months for SSDI) or Medicaid (immediately for SSI)[^2][^3].
In Rhode Island, you may also qualify for Temporary Disability Insurance (TDI) if you are unable to work due to a non-work-related illness or injury. To get TDI, you must have paid into the TDI fund and earned at least $18,000 in your base period (or meet alternate criteria). You must be unemployed for at least 7 days due to your illness. TDI pays up to 30 weeks of benefits. Huntington’s Disease may qualify if it causes a temporary inability to work. You can also apply for vocational rehabilitation services if your disability is a barrier to employment[^1][^5][^4].
An ABLE account lets people with disabilities save money without losing eligibility for SSI, Medicaid, and other benefits. Rhode Island residents can open an ABLE account to pay for disability-related expenses. Learn more about ABLE accounts and how to apply on the official ABLE website[^3].
For SSI, the income limit is set by the federal government and changes each year. For SSDI, there is no strict income limit, but you must not be able to do substantial gainful activity. For TDI in Rhode Island, you must have earned at least $18,000 in your base period or meet alternate criteria. For Medicaid, income limits depend on household size and other factors[^1][^5][^3].
If you get too much money from SSI or SSDI, you may have to pay it back. Report any changes in income, living situation, or medical status to the Social Security Administration right away. This helps avoid overpayments and keeps your benefits accurate[^3].
You must apply for TDI within 30 days of starting your leave. Don’t wait—file your claim as soon as possible to avoid delays.
For SSDI, SSI, and TDI, you’ll need strong medical evidence. Work with your doctor to gather all necessary records.
Yes, Huntington’s Disease is a recognized disability for both SSDI and SSI. You must provide medical proof and meet the SSA’s definition of disability. Rhode Island also offers TDI for short-term, non-work-related illness.
You can apply online at SSA.gov, by phone at 1-800-772-1213, or at a local Social Security office. You will need medical records and proof of income.
TDI provides weekly payments for up to 30 weeks if you can’t work due to a non-work-related illness or injury. You must have paid into the TDI fund and earned at least $18,000 in your base period.
Yes, if you qualify for SSI, you get Medicaid right away. If you have SSDI, you get Medicare after 24 months. You can also apply for Medicaid separately if you have low income.
Vocational rehabilitation helps people with disabilities prepare for, get, or keep a job. You can apply through the Office of Rehabilitation Services for job training and support.
TDI pays up to $1,070 per week as of 2024. The exact amount depends on your earnings in your highest quarter of the base period.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Yes, report any changes in income, living situation, or medical status to the Social Security Administration. This helps avoid overpayments and keeps your benefits accurate.
Yes, you can get help with durable medical equipment through vocational rehabilitation or private providers. Some programs may help pay for equipment you need.
An ABLE account lets you save money without losing eligibility for SSI, Medicaid, and other benefits. You can use it for disability-related expenses.
Contact the Rhode Island Department of Human Services, Office of Rehabilitation Services, or local advocacy groups for more support and resources.
