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Rhode Island • Neurodegenerative
People with Amyotrophic Lateral Sclerosis (ALS) in Rhode Island can access federal and state disability benefits, including Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid, and vocational rehabilitation. Rhode Island also offers unique programs like the Ticket to Work Medicaid Buy-In and Temporary Disability Insurance (TDI) for short-term needs.
Amyotrophic Lateral Sclerosis (ALS) is a qualifying condition for Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI). The Social Security Administration (SSA) fast-tracks ALS claims, meaning approval is usually quicker than for other disabilities. To qualify for SSDI, you must have worked and paid Social Security taxes. SSI is for those with limited income and resources. Both programs provide monthly payments and access to health coverage (Medicare after 24 months for SSDI, Medicaid for SSI)[^1][^2].
In Rhode Island, people with ALS may also qualify for state-specific programs. The Ticket to Work Medicaid Buy-In allows working adults ages 16–64 with disabilities to keep Medicaid coverage regardless of income or assets. The Sherlock Plan is available for those 65 and older, with income and asset limits. Temporary Disability Insurance (TDI) provides short-term wage replacement for non-work-related illness or injury, including ALS, if you meet earnings and contribution requirements. Vocational Rehabilitation Services are available to help with employment and assistive equipment needs[^3][^4][^5].
Rhode Island offers ABLE accounts, which allow people with disabilities to save money without losing eligibility for means-tested benefits like SSI or Medicaid. Contributions are tax-free, and funds can be used for qualified disability expenses. Learn more about ABLE accounts and eligibility at the official ABLE website[^20].
For SSI, federal income limits apply. For Rhode Island Medicaid Buy-In (Ticket to Work), there are no income or asset limits for working people with disabilities. The Sherlock Plan has income and asset limits (250% Federal Poverty Level, $10,000/$20,000 assets for individuals/couples)[^21].
It’s important to report any changes in income, employment, or health status to avoid overpayments. Overpayments can result in repayment demands or loss of benefits. Always report changes promptly to the Social Security Administration and Rhode Island agencies[^22].
ALS is a Compassionate Allowance condition, meaning Social Security fast-tracks these claims for quicker approval. Apply online or at a local office.
Rhode Island’s Ticket to Work Medicaid Buy-In allows working adults with disabilities to keep Medicaid coverage regardless of income or assets.
Yes, ALS is a Compassionate Allowance condition, meaning Social Security fast-tracks these claims for quicker approval. You can apply online or at a local office.
SSDI is based on work history and Social Security taxes paid. SSI is for those with limited income and resources. Both provide monthly payments and health coverage.
Yes, Rhode Island’s Ticket to Work Medicaid Buy-In allows working adults with disabilities to keep Medicaid coverage regardless of income or assets.
You must have earned at least $18,000 in your base period and paid into the TDI fund. Apply online at the RI Department of Labor and Training website.
It’s a Medicaid program for working people with disabilities ages 16–64. There are no income or asset limits, so you can earn and save more while keeping Medicaid coverage.
Yes, Vocational Rehabilitation Services can help with employment and assistive equipment. They may also help with funding for durable medical equipment.
Disclaimer: This guide is for informational purposes only. Always verify eligibility and requirements with official agencies.
You have 60 days to file an appeal with the Social Security Administration. You can also request a face-to-face hearing.
Yes, it’s possible to be eligible for both SSDI and SSI if you meet the criteria for each program.
Report any changes to the Social Security Administration and Rhode Island agencies promptly to avoid overpayments or loss of benefits.
Yes, the Supplemental Nutrition Assistance Program (SNAP) provides food assistance for low-income individuals, including those with disabilities.
