Pennsylvanians with Spina Bifida can access federal and state benefits, including SSI, SSDI, Medicaid, and ABLE accounts. These programs help cover medical care, living expenses, and support independence. This guide explains eligibility, how to apply, and key resources.
People with Spina Bifida may qualify for federal disability benefits if their condition meets the Social Security Administration (SSA) definition of disability. This means the condition must be severe, expected to last at least one year or result in death, and prevent substantial gainful activity (SGA). For SSDI, you need enough work credits from jobs where you paid Social Security taxes. For SSI, you must have limited income and resources, regardless of work history. Both programs require medical proof of disability, such as doctor reports or test results. Some people qualify for both programs at once, called concurrent benefits[1][2][7].
In Pennsylvania, Spina Bifida is recognized as a qualifying disability for both SSI and SSDI if it meets federal criteria. The state also offers Medical Assistance for Workers with Disabilities (MAWD), which lets people with disabilities work and keep Medicaid coverage even if their income rises. To qualify for MAWD, you must be employed, have a disability that meets SSA standards, and have countable income below 250% of the Federal Poverty Level and $10,000 or less in countable resources. Spina Bifida may also qualify for Medicaid waivers for home and community-based services, which help with daily living and independence[4][5].
ABLE accounts let people with disabilities save money without losing access to SSI, Medicaid, or other benefits. In Pennsylvania, you can open an ABLE account through the PA ABLE Savings Program. You must have a disability that began before age 26 (or 46 starting in 2026). The account grows tax-free, and withdrawals for qualified disability expenses are tax-free. You can use the funds for things like rent, groceries, assistive technology, and medical care[6].
If your income, resources, or living situation changes, you must report it to the agency that pays your benefits. This helps avoid overpayments and keeps your benefits accurate. For SSI and SSDI, report changes online, by phone, or in person. For Medicaid and MAWD, report changes to your County Assistance Office. If you get an overpayment, you may need to repay it, but you can ask for a waiver if it wasn’t your fault[1][4].
Contact your local County Assistance Office or a disability advocate for help with your application. They can answer questions and help you gather documents.
Yes, some people qualify for both SSI and SSDI if their SSDI benefit is low. This is called concurrent benefits. SSI can supplement your income up to the federal benefit rate. You must meet the eligibility rules for both programs[1].
Spina Bifida qualifies if it meets the SSA’s definition of disability: it must be severe, expected to last at least one year or result in death, and prevent substantial gainful activity. You’ll need medical proof, such as doctor reports or test results[7].
MAWD is a Pennsylvania program that lets people with disabilities work and keep Medicaid coverage. You must be employed, have a disability that meets SSA standards, and have countable income below 250% of the Federal Poverty Level and $10,000 or less in countable resources[4].
Yes, both SSI and SSDI have work incentives. SSDI recipients can earn up to $1,550/month during a trial work period without losing benefits. SSI recipients can work but face benefit reductions. MAWD lets you work and keep Medicaid coverage[1][4].
You can apply for Medicaid online at COMPASS.state.pa.us, by phone, or in person at your local County Assistance Office. You’ll need to prove income, resources, and disability. If you get SSI, you automatically qualify for Medicaid[1][5].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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An ABLE account is a tax-advantaged savings account for people with disabilities. You can open one through the PA ABLE Savings Program. You must have a disability that began before age 26 (or 46 starting in 2026) and a Social Security number[6].
If your income changes, you must report it to the agency that pays your benefits. This helps avoid overpayments and keeps your benefits accurate. For SSI and SSDI, report changes online, by phone, or in person. For Medicaid and MAWD, report changes to your County Assistance Office[1][4].
Yes, Medicaid waivers (HCBS) provide home and community-based services for people with disabilities, such as personal care, therapy, and assistive technology. You can apply through your local County Assistance Office[4].
If you’re denied, you can appeal the decision. You have 60 days to file an appeal. You can get help from a disability advocate or attorney. The appeal process includes a reconsideration, a hearing, and, if needed, a review by the Appeals Council[2].
Yes, children with Spina Bifida may qualify for SSI if they meet the SSA’s definition of disability and their family’s income and resources are limited. They may also qualify for Medicaid and other state programs[1].
