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Pennsylvania • Neurological/Developmental
If you or a family member has Down Syndrome in Pennsylvania, you may qualify for federal and state disability benefits, health coverage, and financial tools like ABLE accounts. This guide explains eligibility, how to apply, and key programs—helping you access the support you need.
To qualify for federal disability benefits like SSI or SSDI, you must have a medically documented condition—like Down Syndrome—that severely limits your ability to work, is expected to last at least one year, or result in death[2]. SSDI also requires a work history and sufficient Social Security credits[2].
SSI is for those with limited income and resources, regardless of work history. SSDI is for people who have worked and paid into Social Security. In 2025, the SSI resource limit is $2,000 for an individual and $3,000 for a couple. There are no asset limits for SSDI[1].
Both programs require a disability determination by the Social Security Administration (SSA), which reviews medical and work evidence[2].
Pennsylvania residents with Down Syndrome can access both federal benefits and state programs. For SSI recipients, Pennsylvania automatically provides Medical Assistance (Medicaid), so you get health coverage right away—without the 24-month waiting period that SSDI recipients face for Medicare[1].
Pennsylvania’s Medical Assistance for Workers with Disabilities (MAWD) lets people ages 16–64 who work and have a disability—like Down Syndrome—get Medicaid if their income is under 250% of the federal poverty level and resources are below $10,000. There is a monthly premium (5% of your income)[4].
For children and adults with developmental disabilities, Pennsylvania also offers Medicaid waivers (Home and Community-Based Services, or HCBS), which fund services like respite care, therapies, and supported employment. These waivers have their own eligibility rules, including disability severity and waiting lists for some programs. State-specific information is limited; start your search at the PA Department of Human Services and your local County Assistance Office.
**Start early—**applying for disability benefits can take months. Gather medical records, work history, and financial documents. You can apply for SSI and SSDI online, by phone (1-800-772-1213), or at your local Social Security office[2]. For Pennsylvania Medicaid or MAWD, apply online, by phone, in person, or by mail[4]. Keep copies of everything you submit.
1. Collect Documentation: Gather medical records showing Down Syndrome diagnosis and how it affects daily life. For SSDI, also collect proof of work history. For SSI and Medicaid, have income, asset, and household information ready.
2. Choose Where to Apply:
3. Complete the Application: Answer all questions fully. For SSI/SSDI, include detailed medical and work information. For Medicaid/MAWD, report all income and resources.
4. Submit Evidence: Send copies (not originals) of medical records, paystubs, tax returns, and any other required proof.
5. Follow Up: Check your application status online or by phone. Respond quickly if the Social Security Administration or County Assistance Office contacts you for more information.
6. Appeal if Denied: If your application is denied, you can appeal. Many people are approved after an appeal—don’t give up.
SSI (Supplemental Security Income): Pays monthly cash benefits to people with limited income and resources, regardless of work history. In 2025, the maximum federal benefit rate is $943/month for an individual[1]. SSI recipients in Pennsylvania also get automatic Medicaid (Medical Assistance)[1].
SSDI (Social Security Disability Insurance): Pays monthly benefits based on your work history and Social Security tax contributions. The average SSDI benefit in 2025 is $1,537/month, and you may qualify for Medicare after a 24-month waiting period[1]. Dependents may also be eligible.
ABLE Accounts: These tax-advantaged savings accounts let people with disabilities (onset before age 26, soon to be 46) save money without losing SSI, Medicaid, or other benefits[5]. Funds can be used for qualified disability expenses.
Pennsylvania Medicaid (Medical Assistance): SSI recipients get Medicaid immediately[1]. Others may qualify based on income, disability, or age. Medicaid covers doctor visits, prescriptions, therapies, and more.
Medical Assistance for Workers with Disabilities (MAWD): If you work, are 16–64, have a disability like Down Syndrome, and meet income/resource limits, you can get Medicaid with a monthly premium (5% of your income)[4].
Medicaid Waivers (HCBS): Pennsylvania offers several Medicaid waiver programs for people with developmental disabilities. These waivers pay for services not usually covered, like respite care, personal assistance, and supported employment. Availability and eligibility vary; contact your County Assistance Office or the PA Department of Human Services for details and waiting list information.
ABLE accounts are special savings accounts for people with disabilities. In Pennsylvania, you can save up to $100,000 in an ABLE account without affecting SSI eligibility. Withdrawals for qualified disability expenses—like education, housing, transportation, and healthcare—are tax-free. Note: The ABLE Age Adjustment Act will raise the age of disability onset for eligibility to 46 starting in 2026[5].
SSI has strict income limits—$943/month for an individual in 2025[1]. Some income (like the first $20/month) isn’t counted. SSI also has a resource limit: $2,000 for an individual, $3,000 for a couple.
SSDI has no income or asset limits, but you must not be engaging in substantial gainful activity (SGA).
Pennsylvania Medicaid and MAWD also have income and resource limits. For MAWD, income must be under 250% of the federal poverty level and resources under $10,000; a monthly premium applies[4].
You must report changes in income, living situation, or work to Social Security and the County Assistance Office. Failing to report can lead to overpayments, which you may have to pay back. If you get too much in benefits, contact the agency right away to arrange repayment[1]. For tips on avoiding overpayments, see our guide on reporting changes.
Pennsylvania’s Medicaid waivers (HCBS) can fund therapies, respite care, and supported employment for people with Down Syndrome. These services help individuals live more independently. Waivers have waiting lists—apply early and ask your County Assistance Office about the ‘Consolidated Waiver’ and other options.
Starting in 2026, ABLE account eligibility will expand to include people whose disability began before age 46 (up from age 26). This means more adults with Down Syndrome can save without losing benefits[5].
SSI is a needs-based program for people with limited income and resources, no work history required. SSDI is an insurance program based on your work history and Social Security contributions. SSI recipients get Medicaid right away; SSDI recipients get Medicare after 24 months[1].
Yes, if your household income and resources are below SSI limits and your child’s Down Syndrome severely limits their functioning. The process starts with applying to Social Security and providing medical evidence.
ABLE accounts let you save money without losing SSI or Medicaid. Funds can be used for qualified disability expenses. The account can have up to $100,000 without affecting SSI. Onset of disability must be before age 26 (rising to 46 in 2026)[5].
Medical Assistance for Workers with Disabilities (MAWD) is a Pennsylvania Medicaid program for working people with disabilities, ages 16–64, who meet income and resource limits. You pay a monthly premium based on your income[4].
Apply online at COMPASS, at your County Assistance Office, by phone, or by mail. SSI recipients get Medicaid automatically; others must meet income, resource, and disability requirements.
Disclaimer: This guide is for informational purposes only and not legal advice. Benefit rules and amounts change. Always check with official agencies for the latest information.
Yes, Pennsylvania offers Medicaid waivers (HCBS) for people with developmental disabilities, including Down Syndrome. These waivers can pay for services like respite care, therapies, and supported employment. Contact your County Assistance Office for details.
SSDI has a trial work period; you can earn up to $1,550/month (2025) without losing benefits. SSI has lower limits, and benefits are reduced as you earn more. Always report income changes to avoid overpayments[1].
It can take several months. Apply as soon as possible, provide complete medical and work information, and respond quickly to requests for more details.
Yes, some people get “concurrent benefits” if their SSDI payment is low and they also meet SSI income/resource limits. This is called a “concurrent claim.”[1]
You can appeal. Many people are approved after appealing. Start the appeal process as soon as you get your denial notice. Consider getting help from an advocate or attorney.
