Williams Syndrome Benefits in Oregon

To qualify for federal disability benefits like SSI or SSDI, you must have a medically determinable impairment that prevents you from doing substantial gainful activity (SGA). For adults, SGA in 2025 is $1,620 per month ($2,700 if blind). Children with Williams Syndrome may qualify for SSI if their condition causes marked and severe functional limitations. You must also meet income and resource limits for SSI. SSDI requires enough work credits, usually 40, with 20 in the last 10 years. The Social Security Administration uses the "Blue Book" to list qualifying conditions, including rare genetic disorders like Williams Syndrome[3][7][5].

In Oregon, people with Williams Syndrome may qualify for state-specific programs such as Medicaid waivers for rare conditions, which can provide home and community-based services. Oregon also offers the ABLE savings program, allowing you to save up to $15,060 in 2025 in wages without losing benefits. For public safety workers, new 2025 rules allow up to 10% of previous monthly salary in irregular or unpredictable earned income while receiving disability benefits. SNAP work requirements now apply in some counties, but exemptions exist for those attending school or with disabilities[2][1][8].

• Gather medical records showing Williams Syndrome diagnosis and how it limits daily activities.
• Apply for SSI/SSDI online at ssa.gov or at your local Social Security office.
• For Medicaid waivers, contact Oregon’s Aging and Disability Resource Connection (ADRC).
• Apply for an ABLE account at oregonablesavings.com.
• Report changes in income or status to avoid overpayments.

• Step 1: Collect medical records, including genetic testing, doctor’s notes, and therapy reports that show how Williams Syndrome affects your ability to work or do daily tasks.
• Step 2: Apply for SSI/SSDI online at ssa.gov or in person at a Social Security office. The state’s Disability Determination Services (DDS) will review your case[5].
• Step 3: If you need Medicaid waivers for home care or support, contact Oregon’s ADRC hotline or visit odhs.oregon.gov for waiver applications.
• Step 4: Open an ABLE account at oregonablesavings.com to save for disability expenses without losing benefits.
• Step 5: Report any changes in income, employment, or living situation to Social Security and ODHS to avoid overpayments or loss of benefits[5][8][2].

• SSI (Supplemental Security Income): Monthly cash for people with limited income and resources who have a qualifying disability.
• SSDI (Social Security Disability Insurance): Monthly cash for people with enough work credits and a qualifying disability.
• Medicaid: Health coverage for low-income people with disabilities.
• SNAP: Food assistance for low-income individuals and families.
• Medicare: Health coverage for people on SSDI after 24 months.
• ABLE Accounts: Tax-advantaged savings for disability expenses[5][7][8].

• Oregon Medicaid Waivers (HCBS): Waivers for rare conditions like Williams Syndrome can provide home care, therapy, and support services. Apply through Oregon’s Aging and Disability Resource Connection.
• Oregon ABLE Savings Program: Save up to $15,060 in 2025 in wages without losing SSI or Medicaid benefits.
• PERS Disability Benefits: For public safety workers, new 2025 rules allow up to 10% of previous monthly salary in irregular or unpredictable earned income while receiving disability benefits.
• SNAP (Food Stamps): Food assistance with new work requirements in some counties, but exemptions for those with disabilities or in school[2][1][8].

Oregon’s ABLE Savings Program lets people with disabilities save up to $15,060 in 2025 in wages without losing SSI or Medicaid benefits. You can use the funds for disability-related expenses like therapy, education, or housing. Open an account at oregonablesavings.com[8].

For SSI in 2025, the resource limit is $2,000 for an individual and $3,000 for a couple. SSDI has no resource limit but earnings must be below $1,620 per month ($2,700 if blind). Oregon’s ABLE accounts allow up to $15,060 in wages saved in 2025 without affecting benefits[3][8].

Report changes in income, employment, or living situation to Social Security and ODHS to avoid overpayments. If you get too much in benefits, you may have to pay it back. Keep records of all changes and report them promptly[2][5].

• Oregon Aging and Disability Resource Connection (ADRC)
  Phone: 1-855-673-2372

  Website

  Free help with benefits applications and questions.

• Can someone with Williams Syndrome get SSI in Oregon?

  Yes, if Williams Syndrome causes marked and severe functional limitations and you meet income and resource limits. Children and adults may qualify for SSI based on medical evidence and financial need[3][5].

• How do I apply for Medicaid waivers for Williams Syndrome in Oregon?

  Contact Oregon’s Aging and Disability Resource Connection (ADRC) or visit odhs.oregon.gov. They can help you apply for waivers that provide home care and support services[5].

• What is the income limit for SSI in Oregon in 2025?

  The resource limit for SSI is $2,000 for an individual and $3,000 for a couple. Earnings must be below $1,620 per month for adults, or $2,700 if blind[3][8].

• Can I work and still get SSI or SSDI in Oregon?

  Yes, but there are limits. For SSDI, earnings must be below $1,620 per month ($2,700 if blind). SSI has work incentives and reporting rules to help you keep benefits while working[3][5].

• What is an ABLE account and how does it help in Oregon?

  An ABLE account lets you save up to $15,060 in 2025 in wages without losing SSI or Medicaid benefits. Use the funds for disability expenses like therapy, education, or housing[8].

• Are there new SNAP work requirements in Oregon for people with disabilities?

  Yes, able-bodied adults without dependents must work 80 hours/month in some counties, but people with disabilities are exempt. Check ODHS for full exemption details[2].