People with Williams Syndrome in Oregon may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and key changes in 2025.
To qualify for federal disability benefits like SSI or SSDI, you must have a medically determinable impairment that prevents you from doing substantial gainful activity (SGA). For adults, SGA in 2025 is $1,620 per month ($2,700 if blind). Children with Williams Syndrome may qualify for SSI if their condition causes marked and severe functional limitations. You must also meet income and resource limits for SSI. SSDI requires enough work credits, usually 40, with 20 in the last 10 years. The Social Security Administration uses the "Blue Book" to list qualifying conditions, including rare genetic disorders like Williams Syndrome[3][7][5].
In Oregon, people with Williams Syndrome may qualify for state-specific programs such as Medicaid waivers for rare conditions, which can provide home and community-based services. Oregon also offers the ABLE savings program, allowing you to save up to $15,060 in 2025 in wages without losing benefits. For public safety workers, new 2025 rules allow up to 10% of previous monthly salary in irregular or unpredictable earned income while receiving disability benefits. SNAP work requirements now apply in some counties, but exemptions exist for those attending school or with disabilities[2][1][8].
Oregon’s ABLE Savings Program lets people with disabilities save up to $15,060 in 2025 in wages without losing SSI or Medicaid benefits. You can use the funds for disability-related expenses like therapy, education, or housing. Open an account at oregonablesavings.com[8].
For SSI in 2025, the resource limit is $2,000 for an individual and $3,000 for a couple. SSDI has no resource limit but earnings must be below $1,620 per month ($2,700 if blind). Oregon’s ABLE accounts allow up to $15,060 in wages saved in 2025 without affecting benefits[3][8].
Report changes in income, employment, or living situation to Social Security and ODHS to avoid overpayments. If you get too much in benefits, you may have to pay it back. Keep records of all changes and report them promptly[2][5].
Contact Oregon’s Aging and Disability Resource Connection (ADRC) for free help with applications and questions.
Yes, if Williams Syndrome causes marked and severe functional limitations and you meet income and resource limits. Children and adults may qualify for SSI based on medical evidence and financial need[3][5].
Contact Oregon’s Aging and Disability Resource Connection (ADRC) or visit odhs.oregon.gov. They can help you apply for waivers that provide home care and support services[5].
The resource limit for SSI is $2,000 for an individual and $3,000 for a couple. Earnings must be below $1,620 per month for adults, or $2,700 if blind[3][8].
Yes, but there are limits. For SSDI, earnings must be below $1,620 per month ($2,700 if blind). SSI has work incentives and reporting rules to help you keep benefits while working[3][5].
An ABLE account lets you save up to $15,060 in 2025 in wages without losing SSI or Medicaid benefits. Use the funds for disability expenses like therapy, education, or housing[8].
Yes, able-bodied adults without dependents must work 80 hours/month in some counties, but people with disabilities are exempt. Check ODHS for full exemption details[2].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Report changes in income, employment, or living situation to Social Security and ODHS. Keep records and report changes promptly to avoid overpayments[2][5].
Yes, if you meet the eligibility rules for both programs. SSDI is based on work credits, SSI on financial need and disability[5].
You need genetic testing, doctor’s notes, therapy reports, and evidence showing how Williams Syndrome limits daily activities and work[3][5].
Contact Oregon’s Aging and Disability Resource Connection (ADRC) or visit odhs.oregon.gov. They offer help with applications and questions[5].
