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Oregon • Rare/Genetic
People with Prader-Willi Syndrome in Oregon may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and key programs.
To qualify for federal disability benefits like SSI or SSDI, you must have a medically determinable impairment that severely limits your ability to work. For adults, this means you cannot do substantial gainful activity (SGA). In 2025, SGA is defined as earning more than $1,620 per month (or $2,700 if blind). Children with Prader-Willi Syndrome may qualify for SSI if their condition causes marked and severe functional limitations. SSDI requires enough work credits, usually 40, with 20 earned in the last 10 years before disability began. SSI is for those with limited income and resources, typically $2,000 for an individual and $3,000 for a couple in 2025[2][6].
In Oregon, people with Prader-Willi Syndrome may qualify for state disability programs, including the Public Employees' Benefit Board (PEBB) short-term disability for eligible employees, which covers 60% of earnings up to $1,662 weekly for 4–13 weeks. Oregon also offers Medicaid waivers for home and community-based services, which can provide support for daily living, therapy, and respite care. The Oregon ABLE Savings Program allows eligible individuals to save up to $15,060 in 2025 from wages, or their total wages if less, without losing benefits. State-specific rules may affect benefit amounts and work incentives, so it's important to check with the Oregon Department of Human Services and the Oregon ABLE Savings Program for the latest information[4][7].
The Oregon ABLE Savings Program allows eligible individuals with disabilities to save up to $15,060 in 2025 from wages, or their total wages if less, without losing benefits. These accounts can be used for disability-related expenses such as education, housing, transportation, and personal support services. Contributions are made with after-tax dollars, but earnings grow tax-free, and withdrawals for qualified expenses are tax-free[7].
For SSI in 2025, the income limit is $2,000 for an individual and $3,000 for a couple. For SSDI, the substantial gainful activity (SGA) limit is $1,620 per month (or $2,700 if blind). Oregon state programs may have different income limits, so check with the Oregon Department of Human Services for the latest information[2][6].
It is crucial to report any changes in income, living situation, or medical status to avoid overpayments. Overpayments can result in repayment demands and loss of benefits. Oregon agencies and the SSA provide guidance on how to report changes and avoid overpayments[5].
Contact your local Social Security office or the Oregon Department of Human Services for assistance with applications and questions about eligibility.
People with Prader-Willi Syndrome in Oregon may qualify for SSI, SSDI, Medicaid, Medicare, and SNAP. These programs provide financial, health, and food assistance based on income, resources, and medical need[2][6].
You can apply for SSI or SSDI online at the SSA website, by phone, or in person at a local SSA office. You will need to provide medical records and proof of income and residency[6].
Oregon Medicaid waivers provide home and community-based services for people with disabilities. You can apply through the Oregon Department of Human Services by contacting their office or visiting their website[4].
Yes, the Oregon ABLE Savings Program allows eligible individuals to save up to $15,060 in 2025 from wages, or their total wages if less, without losing benefits. These accounts can be used for disability-related expenses[7].
The income limit for SSI in 2025 is $2,000 for an individual and $3,000 for a couple. Oregon state programs may have different income limits, so check with the Oregon Department of Human Services for the latest information[2].
You must report any changes in income, living situation, or medical status to the SSA and Oregon agencies. Overpayments can result in repayment demands and loss of benefits[5].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Families of children with Prader-Willi Syndrome may qualify for SSI, Medicaid waivers, and other state programs. Local disability support organizations can provide additional resources and assistance[4].
Yes, you can work while receiving disability benefits, but there are limits on how much you can earn. For SSI, earnings must be below the SGA limit. Oregon state programs may have different rules, so check with the Oregon Department of Human Services for the latest information[2].
