Huntington’s Disease Benefits in Oregon

To qualify for Social Security Disability Insurance (SSDI), you must have worked in jobs covered by Social Security and have a disability that prevents you from working for at least 12 months. Huntington’s Disease is listed as a qualifying condition by the Social Security Administration (SSA). You must also meet the SSA’s work credit requirements, typically 20 credits in the last 10 years. For Supplemental Security Income (SSI), you must have limited income and resources and meet the SSA’s definition of disability. In 2025, the monthly earnings limit for SSDI is $1,620 (or $2,700 if blind). SSI considers income and resources, with limits of $2,000 for an individual and $3,000 for a couple. Children with Huntington’s Disease may also qualify for benefits if they meet the SSA’s criteria.

Source: SSA Disability Qualifications (accessed 2025-11-06)

In Oregon, individuals with Huntington’s Disease may qualify for state-specific disability programs, including Medicaid waivers for home and community-based services (HCBS). These waivers help cover costs for personal care, respite care, and other supports. Oregon’s Public Employees’ Benefit Board (PEBB) offers short-term disability for eligible employees, but Huntington’s Disease is typically a long-term condition. The Oregon Public Employees Retirement System (PERS) has updated disability rules in 2025, making it easier for police and firefighters to qualify for disability benefits if they can no longer perform their previous job duties. For most Oregon residents, state disability benefits are tied to federal programs like SSI and SSDI, but some local programs may offer additional support.

Source: Oregon.gov PERS 2025 Legislation (accessed 2025-11-06) Source: Oregon.gov PEBB Short-Term Disability (accessed 2025-11-06)

• Review federal eligibility for SSI/SSDI.
• Gather medical records and work history.
• Apply online at SSA.gov or visit a local Social Security office.
• For Medicaid waivers, contact Oregon’s Aging and Disability Resource Connection (ADRC).
• For ABLE accounts, apply through the Oregon ABLE Savings Program.

Source: SSA Disability Application (accessed 2025-11-06)

• Step 1: Confirm your diagnosis and gather medical records, including a doctor’s statement about your condition and how it affects your ability to work.
• Step 2: Check your work history and Social Security credits. You can view your credits on SSA.gov.
• Step 3: Apply for SSDI or SSI online at SSA.gov, by phone, or in person at a Social Security office. The application will ask for personal information, work history, and medical details.
• Step 4: If denied, you can appeal within 60 days. The appeals process may include a reconsideration, a hearing, and review by the Appeals Council.
• Step 5: For Medicaid waivers, contact Oregon’s ADRC at 1-855-673-2273 or visit their website. They can help you apply for HCBS waivers and other support services.
• Step 6: For ABLE accounts, apply online at Oregon ABLE Savings Program. You must have a qualifying disability and meet the program’s requirements.
• Step 7: Report any changes in your income, resources, or living situation to avoid overpayments.

Source: SSA Disability Application (accessed 2025-11-06) Source: Oregon ABLE Savings Program (accessed 2025-11-06) Source: Oregon ADRC (accessed 2025-11-06)

• Social Security Disability Insurance (SSDI): Provides monthly payments to people who have worked and paid Social Security taxes.
• Supplemental Security Income (SSI): Provides monthly payments to people with limited income and resources.
• Medicaid: Provides health coverage to people with disabilities, often linked to SSI eligibility.
• Medicare: Provides health coverage after receiving SSDI for 24 months.
• Medicaid Waivers (HCBS): Provide home and community-based services for people with disabilities.

Source: SSA.gov (accessed 2025-11-06)

• Oregon Medicaid Waivers (HCBS): Oregon offers several Medicaid waivers for people with disabilities, including the Aged and Disabled Waiver and the Intellectual and Developmental Disabilities Waiver. These waivers help cover costs for personal care, respite care, and other supports.
• Oregon ABLE Savings Program: Allows people with disabilities to save money without losing eligibility for SSI or Medicaid.
• Oregon Public Employees’ Benefit Board (PEBB): Offers short-term disability for eligible employees, but Huntington’s Disease is typically a long-term condition.
• Oregon Public Employees Retirement System (PERS): Provides disability benefits for public employees, with updated rules in 2025 for police and firefighters.

Source: Oregon.gov PERS 2025 Legislation (accessed 2025-11-06) Source: Oregon ABLE Savings Program (accessed 2025-11-06) Source: Oregon.gov PEBB Short-Term Disability (accessed 2025-11-06)

The Oregon ABLE Savings Program allows people with disabilities to save money for disability-related expenses without losing eligibility for SSI or Medicaid. In 2025, the annual contribution limit is $18,000, and the additional ABLE to Work contribution is up to $15,060 or the total of your wages, whichever is less. Funds can be used for housing, education, transportation, and other qualified expenses.

Source: Oregon ABLE Savings Program (accessed 2025-11-06)

For SSI in 2025, the income limit is $2,000 for an individual and $3,000 for a couple. For SSDI, the monthly earnings limit is $1,620 (or $2,700 if blind). Oregon’s Medicaid waivers may have different income and resource limits, so check with the ADRC for specific details.

Source: SSA.gov (accessed 2025-11-06)

It is important to report any changes in your income, resources, or living situation to avoid overpayments. If you receive too much in benefits, you may have to pay it back. Report changes to the Social Security Administration and Oregon’s Medicaid agency as soon as possible.

Source: SSA.gov (accessed 2025-11-06)

• Oregon Aging and Disability Resource Connection (ADRC)
  Phone: 1-855-673-2273

  Website

  For help with Medicaid waivers and other support services.

• Can I get SSI or SSDI for Huntington’s Disease?

  Yes, Huntington’s Disease is a qualifying disability for both SSI and SSDI. You must meet the SSA’s work credit requirements for SSDI and the income and resource limits for SSI.

• What is the income limit for SSI in Oregon?

  In 2025, the SSI income limit is $2,000 for an individual and $3,000 for a couple. Oregon’s Medicaid waivers may have different limits.

• How do I apply for Medicaid waivers in Oregon?

  Contact Oregon’s Aging and Disability Resource Connection (ADRC) at 1-855-673-2273 or visit their website. They can help you apply for HCBS waivers and other support services.

• Can I save money with an ABLE account in Oregon?

  Yes, the Oregon ABLE Savings Program allows people with disabilities to save money for disability-related expenses without losing eligibility for SSI or Medicaid.

• What is the difference between SSI and SSDI?

  SSI is for people with limited income and resources, while SSDI is for people who have worked and paid Social Security taxes. Both programs provide monthly payments to people with disabilities.

• Can I work while receiving disability benefits?

  Yes, you can work while receiving disability benefits, but there are limits on how much you can earn. In 2025, the monthly earnings limit for SSDI is $1,620 (or $2,700 if blind).

• What happens if I don’t report changes in my income?