People with Huntington’s Disease in Oregon may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and key programs.
To qualify for Social Security Disability Insurance (SSDI), you must have worked in jobs covered by Social Security and have a disability that prevents you from working for at least 12 months. Huntington’s Disease is listed as a qualifying condition by the Social Security Administration (SSA). You must also meet the SSA’s work credit requirements, typically 20 credits in the last 10 years. For Supplemental Security Income (SSI), you must have limited income and resources and meet the SSA’s definition of disability. In 2025, the monthly earnings limit for SSDI is $1,620 (or $2,700 if blind). SSI considers income and resources, with limits of $2,000 for an individual and $3,000 for a couple. Children with Huntington’s Disease may also qualify for benefits if they meet the SSA’s criteria.
Source: SSA Disability Qualifications (accessed 2025-11-06)
In Oregon, individuals with Huntington’s Disease may qualify for state-specific disability programs, including Medicaid waivers for home and community-based services (HCBS). These waivers help cover costs for personal care, respite care, and other supports. Oregon’s Public Employees’ Benefit Board (PEBB) offers short-term disability for eligible employees, but Huntington’s Disease is typically a long-term condition. The Oregon Public Employees Retirement System (PERS) has updated disability rules in 2025, making it easier for police and firefighters to qualify for disability benefits if they can no longer perform their previous job duties. For most Oregon residents, state disability benefits are tied to federal programs like SSI and SSDI, but some local programs may offer additional support.
Source: Oregon.gov PERS 2025 Legislation (accessed 2025-11-06) Source: Oregon.gov PEBB Short-Term Disability (accessed 2025-11-06)
Source: SSA Disability Application (accessed 2025-11-06)
Source: SSA Disability Application (accessed 2025-11-06) Source: Oregon ABLE Savings Program (accessed 2025-11-06) Source: Oregon ADRC (accessed 2025-11-06)
Source: SSA.gov (accessed 2025-11-06)
Source: Oregon.gov PERS 2025 Legislation (accessed 2025-11-06) Source: Oregon ABLE Savings Program (accessed 2025-11-06) Source: Oregon.gov PEBB Short-Term Disability (accessed 2025-11-06)
The Oregon ABLE Savings Program allows people with disabilities to save money for disability-related expenses without losing eligibility for SSI or Medicaid. In 2025, the annual contribution limit is $18,000, and the additional ABLE to Work contribution is up to $15,060 or the total of your wages, whichever is less. Funds can be used for housing, education, transportation, and other qualified expenses.
Source: Oregon ABLE Savings Program (accessed 2025-11-06)
For SSI in 2025, the income limit is $2,000 for an individual and $3,000 for a couple. For SSDI, the monthly earnings limit is $1,620 (or $2,700 if blind). Oregon’s Medicaid waivers may have different income and resource limits, so check with the ADRC for specific details.
Source: SSA.gov (accessed 2025-11-06)
It is important to report any changes in your income, resources, or living situation to avoid overpayments. If you receive too much in benefits, you may have to pay it back. Report changes to the Social Security Administration and Oregon’s Medicaid agency as soon as possible.
Source: SSA.gov (accessed 2025-11-06)
Contact Oregon’s Aging and Disability Resource Connection (ADRC) at 1-855-673-2273 for help with applications and support services.
Yes, Huntington’s Disease is a qualifying disability for both SSI and SSDI. You must meet the SSA’s work credit requirements for SSDI and the income and resource limits for SSI.
In 2025, the SSI income limit is $2,000 for an individual and $3,000 for a couple. Oregon’s Medicaid waivers may have different limits.
Contact Oregon’s Aging and Disability Resource Connection (ADRC) at 1-855-673-2273 or visit their website. They can help you apply for HCBS waivers and other support services.
Yes, the Oregon ABLE Savings Program allows people with disabilities to save money for disability-related expenses without losing eligibility for SSI or Medicaid.
SSI is for people with limited income and resources, while SSDI is for people who have worked and paid Social Security taxes. Both programs provide monthly payments to people with disabilities.
Yes, you can work while receiving disability benefits, but there are limits on how much you can earn. In 2025, the monthly earnings limit for SSDI is $1,620 (or $2,700 if blind).
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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If you don’t report changes in your income, you may receive too much in benefits and have to pay it back. Report changes as soon as possible to avoid overpayments.
Yes, children with Huntington’s Disease may qualify for SSI or SSDI if they meet the SSA’s criteria. They may also qualify for Medicaid waivers and other support services.
The approval process can take several months. It’s important to apply as soon as possible and provide all required documentation.
Yes, you can get help with your application from the Social Security Administration, Oregon’s ADRC, or a disability advocate.
