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Oregon • Rare/Genetic
People with cystic fibrosis in Oregon can access federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. New 2025 rules affect work income limits and eligibility for some programs. This guide explains eligibility, how to apply, and key resources.
To qualify for Social Security Disability Insurance (SSDI), you must have a disability that prevents you from working, and you must have paid enough Social Security taxes through work. Cystic fibrosis is listed in the Social Security Administration's Blue Book under respiratory disorders (Section 3.04) and qualifies if it meets the criteria.
Supplemental Security Income (SSI) is for people with limited income and resources. You must be disabled, blind, or age 65+, and meet strict income and asset limits. Cystic fibrosis can qualify if it meets SSA's definition of disability.
Both programs require a medical review to confirm your disability. The Social Security Administration uses the "Blue Book" to evaluate medical conditions.
You can work and still get benefits, but there are limits. For SSDI, you cannot earn more than the Substantial Gainful Activity (SGA) limit ($1,550/month in 2024, $1,600/month in 2025). For SSI, your countable income must be below the federal benefit rate.
If you are denied, you can appeal. Legal help is available.
For more details, see the SSA Blue Book and eligibility page.
In Oregon, people with cystic fibrosis may qualify for state disability benefits, Medicaid waivers, and other support programs.
The Oregon Public Service Retirement System (OPSRP) allows disability beneficiaries to earn up to 10% of their previous monthly salary in "irregular or unpredictable" income each month without losing benefits. If you earn more than 10%, your benefits may end.
Oregon Medicaid offers Home and Community-Based Services (HCBS) waivers for people with cystic fibrosis who need long-term care. These waivers help pay for home care, therapy, and other services.
Oregon also has programs for paid caregiving, prescription drug discounts (ArrayRx), and general assistance for those who are homeless or at risk.
SNAP (food stamps) work requirements for able-bodied adults without dependents start in six counties October 1, 2025, and statewide in January 2026. Some people are exempt, including those attending school at least half-time.
State-specific eligibility rules can change. Always check with the Oregon Department of Human Services for updates.
Step 1: Review the Social Security Administration's Blue Book to see if cystic fibrosis meets the criteria for disability. If it does, you can apply for SSI or SSDI.
Step 2: Gather all required documents, including medical records, proof of income, and work history.
Step 3: Apply for SSI or SSDI online at ssa.gov, by phone at 1-800-772-1213, or in person at a local SSA office. You can also apply for both at the same time.
Step 4: After you apply, the State of Oregon's Disability Determination Services will review your medical records and decide if you are eligible.
Step 5: If approved, you will receive monthly benefits. If denied, you can appeal.
Step 6: Apply for Oregon Medicaid waivers and other state programs through the Oregon Department of Human Services. You can apply online or by phone.
Step 7: If you need help, contact your local Aging and Disability Resource Connection office. They can help you apply and answer questions.
Step 8: Report any changes in income or living situation to avoid overpayments.
Step 9: Use the SSI Income Estimator tool to see if you qualify for SSI.
Step 10: Consider opening an ABLE account to save money without losing benefits.
Contact your local Aging and Disability Resource Connection (ADRC) for free help applying for benefits, understanding eligibility, and finding local resources.
Yes, cystic fibrosis can qualify for federal SSI and SSDI if it meets Social Security Administration criteria. Oregon also offers state disability benefits and Medicaid waivers for people with cystic fibrosis.
For SSDI, you cannot earn more than $1,600/month in 2025. For SSI, your countable income must be below the federal benefit rate. Oregon allows disability beneficiaries to earn up to 10% of their previous monthly salary in "irregular or unpredictable" income each month.
An Oregon ABLE account lets you save up to $15,060 in 2025 without losing SSI or Medicaid benefits. You can use the money for qualified disability expenses like medical care, housing, and education.
You can apply for Oregon Medicaid waivers through the Oregon Department of Human Services. You will need to provide medical records and proof of income. Contact your local Aging and Disability Resource Connection for help.
SSI is for people with limited income and resources. SSDI is for people who have worked and paid Social Security taxes. Both programs can help people with cystic fibrosis in Oregon.
Yes, you can work and still get disability benefits in Oregon, but there are limits. For SSDI, you cannot earn more than $1,600/month in 2025. For SSI, your countable income must be below the federal benefit rate.
Disclaimer: This guide is for informational purposes only and is not legal advice. Always check with official agencies for the most current rules and eligibility.
ArrayRx is Oregon's prescription drug program. It gives a discount card for prescription drugs to all Oregon residents, including people with cystic fibrosis. You can sign up on the ArrayRx website.
Report any changes in income, living situation, or work status to the Social Security Administration and Oregon Department of Human Services to avoid overpayments. Keep records of all income and expenses.
Oregon offers paid caregiving services for people with cystic fibrosis. These services can be provided in your home, the community, or a care facility. Learn more on the Oregon Department of Human Services website.
Yes, Oregon offers SNAP (food stamps) for people with low income. New work requirements start in October 2025. Some people are exempt, including those attending school at least half-time.
